Hi Nikkie, The car seat that we just got for Micah is an Evenflo Triumph Advance LX. It is wide like a lazy boy, in the backward position it tips back far...
Hi everyone, Ijust heard from a grandmother here in Ontario whose little granddaughter,Rebecca, was diagnosed with MPEI just days before Christmas. I told her...
I just wanted to add that I have invited another couple that wrote on Harry's guest book. They have a Micah too that has just been diagnosed with MPEI after...
Hi Rachel, I've been waiting to hear news from Denise, when did you last hear from her? I'd love to know how Cooper is going but I haven't heard about him ...
Margaret, I just got an email from Sami about 4 days ago, that is how I found out about Harry. Cooper is doing well. Infact he was doing so well that Sami and...
Hiya Rachel, Thanks for this - we've been looking for ages and we know there are a few that are supposed to be good for special needs children, but they don't...
-- Dr. Appleton in the UK is setting up a study centre on MPEI - those of you in England know him well, I would guess. I've been in contact with him and sent...
I would really like to be involved in some research into MPEI - in some weird way I feel that I need to do something worthwhile with Niamh's illness, or all...
Laura, I would also like to be involved in any research. Go ahead and give both the Docs our names and email if you would. I would also like to know any more...
Hi Laura, if you don't mind, could you e-mail Dr. Kobayashi about Kristan Lail. She was seen by Dr. Ingrid Tein at Sick Kids in December 2005 so he could...
... Are those the people who are pastors? I think I saw the website for their little guy. I hope they join us. There's definitely strength in numbers and I'm...
Laura, Yes, Jennifer and Kelly Patchin are their names. I hope that once they are home from vacation that they will want to join. They seem like really nice...
Hi my name is Tracey and i am Godmother to Molly Simpson who has MPEI, she has a page on Harry's Journey. Her mum Debbie doesnt have internet access but made...
Hi Tracey, Thank you so much for letting us know about Molly. Poor Debbie, what a situation all the excitment of a brand new baby and then all this worry over...
Hello Mary, A big welcome to our little group! I'm sorry that you had to join but also pleased that you have. I think that the more we parents can support each...
... but ... cure ... day. ... correct ... and ... situation ... Hi Moms, Dads, Grandmothers, Grandfathers, Godmothers, families and anyone I may have missed, ...
Hi Mary, I am so glad you could join us... I am Micah's Mom and he was diagnosed with MPEI this Sept. after many tests and a lot of heart ache. He still does...
Hi Tracey, I just want you to know that Molly is in our prayers and thoughts, I hope that all will get better. I had wondered for a long time if MPEI had...
Tracey, I also wanted to let you know that we're thinking of Molly and are sending positive, hopeful thoughts her way. I get so angry when I hear about all of...
Hi Tracey, Please also pass on all of our love & thoughts to Debs, Molly & Brian. I have tried to contact Debs severeal times, now I understand why she has...
Hi there, I just wanted to welcome you to the group too Mary - I hope you & your children find much support here. I am sorry you have had to find us, but glad...
Hi Tracey, welcome to the group. I will add Molly to my prayers at night. My older daughter Kristan was diagnosed with MPEI when she was a baby, she is now 5...
Hi Mary, welcome to the group. My daughter Kristan was approximately 4 1/2 months old when the seizures started but wasn't diagnosed with MPEI until months...
Hi Mary, I forgot to add that I am also in Canada. I'm in Victoria, BC. Satnam ... approximately ... with ... Keppra ... She ... helpful. ... join ... to ... ...
Satnam, Can you please tell me where you found this article regarding Keppra? Rylie's been on Keppra (we actually suggested it ourselves as the docs kept...
Hi Laura, the article was given to me by Kristan's neurologist back in April 2006, I don't know where she got it from. The copyright at the bottom is 2006,...
Hey Laura, I was wondering if you could resend me the article titled Hahn March 2007. I have tried to open the document several times and yet it is incripted...
Hi Everyone, Thanks for the warm welcome Margaret, Rachel, Nikkie, Satnam & Laura. I appreciate all for telling me about your children. The sharing will help...
Dear Tracey, I send molly a big kiss and hope that things get better for her. I am telling you this now to give you a bit of hope - but bear with me as it may...
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