Hi everyone, Tanya, I talked to Dawn on the weekend and she told me that Rebecca was on potassium bromide when she was under 6 months old, but with no...
Hey everyone! Life has been quite hectic and wonderful lately! Alexander just got another sibling- this time a sister- Anna Jane! She is doing wonderful, and...
Congratulations Vanessa, you will have so much fun dressing a girl. Glad to hear Alexander is doing well. Sent a reply earlier, but it seems to have gone...
Hey, big congratulations Vanessa, that's wonderful news! We are so enjoying our little boy after 2 girls, although we are very, very busy! Enjoy every moment,...
Hi everyone,just letting you know we are home today!Luke is now much straighter & well,we had a few hiccups in icu so stay was 1 week longer.Luke is now at...
hi Margaret,Luke is doing so well just 2 weeks after the op. pain was a huge issue plus he got a chest infection & an air pocket in his lung so the chest drain...
Hi Vanessa, Pleased to hear your good news. I am sure Anna Jane is keeping you busy and very happy. Good to hear Alexander is doing well. Lee, I am sure...
Sorry we have been missing in action for some time now but 3 kids is keeping us really busy we read the posts regularly but find little time to reply. I will...
Harry was on pottasium bromide when he was about 2.5yrs, maybe 3yrs. His breathing deteriorated on it and his sats were very very low. We came off the drug...
It looks like Kayne will be coming home from hosp in a couple of days – just sorting out what we need to support us at home. Since I last wrote his MRI came...
Hi Everyone:) Sarah, I don't know if it's just me, but your last 2 posts seem to have joined onto the previous post and disappeared. So sorry to sound...
Yes my last two posts seams to have disappeared into cyber space I am soooo disappointed as they took my appox 15 mins each to write and we all know time is...
Hi Margaret and everyone else, Maddie is pretty good right now. She's being sick a little more often than usual, but other than that she's well. She is...
Hello all, Our family has been very busy lately with work, and careproviders in our house. I have been working part time at the leather shop making hand bags...
Hi to all,have been very bust as Lukey is still not 100% almost 2mths after surgery,we are assuming it is his stomach as he isnt handling his feeds very well,i...
Hi everyone, It certainly has been quiet the last little while. I've been reading all the updates and am always interested in knowing what is going on with...
Hello everyone, Kristan has been having a nice summer so far. Have had her busy at summer camp for the last two weeks, her respite worker goes with her from...
Hello Everyone, I am happy to say that Katelyn has been home from the hospital since March and is doing well. She is now 8 months old! We feel very lucky that...
Hi Jennifer, So glad to hear that Katelyn is doing well. I just wanted to quickly let you know that our experiences with Rylie in terms of medication were...
Hi Jennifer, that is so great that Katelyn is doing well and making progress. We tried Stiripentol with Kristan and it didn't work for her, this was when she...
Hi Jennifer. My son is 22 months and was diagnosed with MPEI last July and since earlier this year, they are no longer thinking that is the accurate...
Hi Satnam, It was actually our London neuro who tried to get the stiripentol. He told us he had to call the drug maker in France and then was told that we...
Hi Jennifer, I am happy that Katelyn is home with you. It was so encouraging to hear that you are able to stay home and have that one day at work. I have been...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
