Hi Everyone, Thanks for all of your suggestions. We have finally seemed to get thru the arching and crying stage- which lasted about 6 months!!!! The only...
Hi Tanya, thanks so much for the words of courage,i will need it! the diet seems to work well for some children,i think it is helping Freyja but if you dont...
Hi Satnam, Sorry, I guess I assumed your other child was a boy. I am shocked -- I never thought girls could be a handful!!   : - ) Good luck with the...
Hi Mary, no need to apologize, Kristan's little sister is Sonya, I think I usually end up saying my other one and never say her name or that she's a girl! ...
Hi Lee, The docs took her off the diet as they believed it was the dilantin that was keeping her seizures under control. We stopped dilantin whilst on the diet...
Hi Tanya, Freyja is on a ketogenic formula made from MCT oil,carbohydrayte free mix,serivit & calogen. i vaguely remember doing the solids diet with...
Hi everyone Ive just recieved the following text from Niamhs mummy alison 'Its with overwhelming sadness that we let you knw that Niamh passed away this...
... Dear Alison and family, I am so sorry and sad. Please accept our sincere sympathy. God Bless you sweet Niamh. Thank you Denise for letting us know. ...
... Hi Alison, I am so very sorry to hear of your loss.My thoughts & prayers are with you & your family & may Niamh rest in peace. Thankyou Denise for letting...
Dearest, dearest Alison, We are all so, so sad to hear about beautiful Niamh. Our love and thoughts are with you and your family. Your beautiful angel...
Hi Denise, Thank you for letting us know. I'm always heartbroken to hear that another one of our kids has passed. God bless Niamh and Alison and Niall and...
Please know that we are thinking about you at this sad, sad time. This is going to be such a difficult for you both. Try to find some comfort in Niamh's...
Alison and Niall, We sincerely hope you find comfort in your memories of beautiful Niamh. She was a strong little girl who was very brave and who knew that...
My love and prayers are for you daily. WE are all saddened and aching with you. I trust that Niamh is in heaven in a perfect body with no pain. Please...
Alison, I wanted you to know how much we love Niamh too. Thank you for all of your research, care and being the best Mommy ever! You are such an amazing...
hi everyone,just letting you know we are off to syd kids hospital tomorrow. we are getting luke to get re assesed for his back operation ...
Hi All, Firstly thank you for all your kind messages, they mean a lot to us all. It has actually taken me a while to read the messages from everyone as...
Hi Alison, I'm so sorry about Niamh, my heart goes out to you and your DH, and Connor. Niamh was a very special little girl. It doesn't matter that you know it...
Hi Alison, I wanted to extend our love to you again. You wrote at the end of your letter about the other children and I just lost it, again. I had a dream...
Hi Alison, I was crying as I read this message from you. It was just beautiful and I am so very sorry for your pain and feelings of loss. It is truly...
Hi Alison, Please know you continue to be in our thoughts. Although sad, it was very good to hear from you. Thanks for offering to send a copy of Niamh's...
Hi Alison, My heart aches for you and your family. I wish I could write something that could take some of your pain away. Take care, Lots of hugs for you and...
Hi everyone, We had another grim meeting yesterday with one of Joce docs. Can anyone tell me if it gets any easier to hear that your child has the most severe...
Hi again, Just wondering how long your little ones seizures last for? Joce has been having seizures since birth and they have only ever lasted up to 20 seconds...
Dear Tanya, I never thought that we would get used to Micah's disorder.... We still have hard days, alot. I have been told over and over again that we should...
Hi Alison, Thank you for sharing this with us, and thank you for the order of Service which arrived today - it was so beautiful, I am still crying now. I...
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