Hi Margaret, Sounds like a great idea. I hope we can all help each other through all of this. Looking forward to hearing from everyone. Have a great holiday....
Hi All, It is Denis' birthday today, and he turns 6. This is a major milestone for him and us. He is going very well at the moment, and is enjoying his time...
... school. ... and ... to ... Happy Birthday Denis! So glad to hear he's doing so well! Rylie is now a year and two months - she recently had a G-tube ...
Hello everyone! Just thought that I would let you all know how things went in Ohio. We were admitted on Tuesday the 10th of July. Micah was having a tremendous...
Micah is a year and one month. He has had seizures since birth and nothing has gotten them under control. Out of all the testing done the MRI and EEG are the...
Hi Rachel, I have only just joined this group, although I know several of the parents on here. I'd love to hear more about Micah & tell you more about my...
Hiya, I don't want to put a big long post on here, as I know some of you already know Maddie's story. I'll just put a quick update. Maddie is just over 1 year...
Nikkie! I keep trying to get a message through to you but it keeps getting sent back as undeliverable.... As per treatments, Rylie is on Levitracetam and...
Hi Laura, Same thing keeps happening to me - did you get my last email in the end? Wow, never thought phenobarb would help - we had Maddie on that at the start...
Nikkie, I finally did get your last message. I don't know if hotmail and yahoo are mortal enemies, but it seemed to be pretty hard to get my message ...
Laura - I am so sorry to hear what was happening with Rylie. What an awful, awful decision you were asked to make, & I am so glad that things didn't have to...
Yesterday (24th July 2007) Bianca gave us a big scare. When her mother went to check on her early morning she found that she was blue in the face and scarcely...
Hi Margie, How scary for Liezel and you!!! Denis is on a formula called Pediasure. I mix it up and put it in a container which I hang up on an IV pole, and the...
Hi Margaret Bianca is almost 29 months old. She has spent most of the time in hospital.
Like Liezel said yesterday. Thanks for visiting home for 2 weeks....
Hi All Margie is Bianca okay? These kids are sent to keep us on our toes. How does Liezel manage both of the kids when Bianca is hospital? I used to Bronwyn...
Hey Marg, Yes, I know, but that seems to be the protocol here in my neck of the woods. I suppose the surgeon, in conjunction with the neuro (they both had the...
What gives this week? We have watched Micah seize quite a bit this week. We have had to give him rescue meds almost every day. It makes me crazy to hear that...
Hi Rachel, What has the tempreture been this week in your area, Denis always fits more when it is hot, There is nothing more frustrating than watching your...
Hi Rach, I hope you're feeling much better. Hang on tight. It is very frustrating, but this damn MPEI is relentless. We've been in the hospital many, many...
Good mornining Glad to advise that Bianca was released from hospital on Saturday and is
doing better. Her chest however is just not clearing up. She is smiling...
Very glad to hear that Bianca has been released and smiling again. I hope that things will continue to go well for her. It sounds like she's been through so...
Hi everyone, I feel so sad & sorry that everyone seems to be going through so much. Maddie has not needed many hospital visits, only 1 when she first started...
Hi Laura I agree with you that this is to me the worst thing any parent could go
through. That is to watch one's child suffer as these children do and in the...
Hi everyone, I just have a quick question about car seats. Maddie has outgrown hers, & we need a forward facing one. However, none of the ones we have seen...
Hi Margie, Thank you for your kind words. I am truly sorry that you have lost a child as well and now you have to go through this with your grandchild. I...
Hi Niks, Can you recline your seat at all? We have a Cosco carseat (don't know if you have those in the UK) and it seems to suit Rylie alright, as long as we ...
BEFORE you read this you will need A comfortable chair A drink of your choice a period of time NOT to be interrupted - possibly after everyone is in bed. or...
Sarah and Aaron, Thanks for your post. I think it's helped me to read about your experiences as you have had several years to gain some perspective on Isaak's...
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