Hi, I just joined this group and am glad to find there is one out there for this condition. My eleven month old son was just diagnoses with this on Thursday...

Rebecca, Welcome! I am so glad you have joined us and that you were able to find us so early in your diagnosis. I hope that you will find comfort and help...

Hi Rebecca, Welcome to the group - I am so glad you have found us - this group is a great source of information & comfort. My daughter, Maddie is 2 & was...

Hi Nikkie.  I have visited Hi Nikkie, I have visited harrys journey.    THanks for the welcome.  My Justin will be one in two weeks.  He was just...

Hi Jennifer. Thanks for the welcome.  My son will be one year on 8/16.  He started having seizures on 12/20/07, and ended up in the ICU at Connecticut...

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Hi Welcome to the group my daughter is molly and sadley passed asay aged 3 1/2 i stayin touch with the site because the love and support is fantastic, and...

Welcome to our group, I hope that you feel comfortable and please let us know if we can help you in any way. Where are you from? Love to you and your family. ...

Welcome to the group!  You will soon find this to be a place where you can come and know you are not alone.  Through reading and getting to know about all...

thanks.  How is your Alexander doing?  Can you tell me a bit about him?  My Justin turns one in two weeks.  He was just diagnosed with this on Thursday,...

Hi Rebecca, Welcome to the group, its so good that you found us. Sometimes we all get busy and caught up in our own lives, but if we can help I'm sure that...

Hi Rebecca, Welcome. It must seem like you are living a nightmare at the moment. I remember the first few weeks after Niamh's diagnosis and I just wandered...