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MPEIparentsupportgroup · Migrating Partial Epilepsy of Infancy
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Potassium Bromide   Message List  
Reply | Forward Message #1245 of 1627 |
Kayne up date

Hi,

Molly spent 3-4wks on potassium bromide she was very sedated on it and had awful skin problems.

 

Debbie

--- On Sat, 6/6/09, whitley.denise <whitley.denise@yahoo.com> wrote:


From: whitley.denise <whitley.denise@yahoo.com>
Subject: [MPEIparentsupportgroup] Re: Potassium Bromide
To: MPEIparentsupportgroup@yahoogroups.com
Date: Saturday, 6 June, 2009, 11:14 PM

Harry was on pottasium bromide when he was about 2.5yrs, maybe 3yrs. His breathing deteriorated on it and his sats were very very low. We came off the drug after 3 weeks and sats went back to 98-100. Drs said it wasnt the drug but we think it sedated him that much that he didnt breathe enough

Denise

--- In MPEIparentsupportgr oup@yahoogroups. com, Mary Roach <maryroach1515@ ...> wrote:
>
> Hi everyone,
>
> Tanya, I talked to Dawn on the weekend and she told me that Rebecca was on potassium bromide when she was under 6 months old, but with no noticeable difference.  When Rebecca saw her neurologist last week, it was a drug he mentioned that he may like to try again.  Dawn was very disappointed that the Ketogenic diet did not work, as she had heard many good things about it.  It was given a good try when Rebecca was in hospital between 2-6 months of age.
>
> Margaret, I hope Den is continuing to heal and has been able to stay off the pain medication.  It has been a long recovery for him.  Please know that he is in my thoughts.
>
> Hugs,
> Rebecca & Mary
>
>  
>
>
>
> ____________ _________ _________ __
> From: tdeiulio <tdeiulio@.. .>
> To: MPEIparentsupportgr oup@yahoogroups. com
> Sent: Sunday, May 31, 2009 6:20:44 PM
> Subject: [MPEIparentsupportg roup] Re: Potassium Bromide
>
>
>
>
>
> Thanks for that info everyone :)
> Since Joce is having 0-1 or 2 seizures a day at the moment I dont know wether to start the drug or leave it to see if she gets worse again?
> She has started screaming again- the docs think that maybe the potassium might help?
> Not sure what to do really.
> Glad to hear that it has helped Den Margaret. That is great to know :)
>
> Hope you are all doing well xo
>
>
>
>
>
> ____________ _________ _________ _________ _________ _________ _
> Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now
> http://ca.toolbar. yahoo.com.
>

 
Wed Jun 17, 2009 10:36 am

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husky_pickering
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Forward 		Message #1245 of 1627 |
Expand Messages Author Sort by Date

HI Everyone, Joce doc has prescribed her Potasium Bromide. Just wondering if any of your children have been on this med before? It is off label use here in... 		tdeiulio
Offline Send Email 		May 28, 2009
3:07 am

Hi Tan Firstly congrats about new baby! and really glad Joc has given you a bit of a break from screaming Niamh was also precribed this very early on and her...
Alison Maguire
niamhmaguire...
Offline Send Email 		May 28, 2009
7:56 am

Hi Tan, So happy to hear your good news.  Nikkie's comment about being busy, but more sane, says a lot.  All the best during your pregnancy. I am not sure...
Mary Roach
maryroach1515
Offline Send Email 		May 28, 2009
4:12 pm

Hi Everyone, Joce is currently on the ketogenic diet and it does help her. At the moment she is having anywhere from 0 seizures a day to 12. That is a...
tdeiulio
Offline Send Email 		May 28, 2009
10:25 pm

Hi Tan, congratulations on the new baby on the way! Kristan did try potassium bromide in the beginning when she was still a baby and we tried it for a few...
kristansmommy
Offline Send Email 		May 28, 2009
10:27 pm

Hi Tan:), Den has been on Potassium Bromide for years. It has been an amazing drug for him. Even though he has never had sz control and never had a day...
Margaret Wright
margaret1963pw
Offline Send Email 		May 28, 2009
10:51 pm

Thanks for that info everyone :) Since Joce is having 0-1 or 2 seizures a day at the moment I dont know wether to start the drug or leave it to see if she gets...
tdeiulio
Offline Send Email 		May 31, 2009
10:21 pm

Hi everyone, Tanya, I talked to Dawn on the weekend and she told me that Rebecca was on potassium bromide when she was under 6 months old, but with no...
Mary Roach
maryroach1515
Offline Send Email 		Jun 2, 2009
4:31 pm

Harry was on pottasium bromide when he was about 2.5yrs, maybe 3yrs. His breathing deteriorated on it and his sats were very very low. We came off the drug...
whitley.denise
Offline Send Email 		Jun 6, 2009
11:15 pm

Hi, Molly spent 3-4wks on potassium bromide she was very sedated on it and had awful skin problems.   Debbie ... From: whitley.denise...
Debbie Simon
debbie_simon...
Offline Send Email 		Jun 10, 2009
7:52 pm

It looks like Kayne will be coming home from hosp in a couple of days – just sorting out what we need to support us at home. Since I last wrote his MRI came...
Pickering Family
husky_pickering
Offline Send Email 		Jun 17, 2009
10:40 am
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