Harry was on pottasium bromide when he was about 2.5yrs, maybe 3yrs. His
breathing deteriorated on it and his sats were very very low. We came off the
drug after 3 weeks and sats went back to 98-100. Drs said it wasnt the drug but
we think it sedated him that much that he didnt breathe enough

Denise






--- In MPEIparentsupportgroup@yahoogroups.com, Mary Roach <maryroach1515@...>
wrote:
>
> Hi everyone,
>
> Tanya, I talked to Dawn on the weekend and she told me that Rebecca was on
potassium bromide when she was under 6 months old, but with no noticeable
difference.  When Rebecca saw her neurologist last week, it was a drug he
mentioned that he may like to try again.  Dawn was very disappointed that the
Ketogenic diet did not work, as she had heard many good things about it.  It was
given a good try when Rebecca was in hospital between 2-6 months of age.
>
> Margaret, I hope Den is continuing to heal and has been able to stay off the
pain medication.  It has been a long recovery for him.  Please know that he is
in my thoughts.
>
> Hugs,
> Rebecca & Mary
>
>  
>
>
>
> ________________________________
> From: tdeiulio <tdeiulio@...>
> To: MPEIparentsupportgroup@yahoogroups.com
> Sent: Sunday, May 31, 2009 6:20:44 PM
> Subject: [MPEIparentsupportgroup] Re: Potassium Bromide
>
>
>
>
>
> Thanks for that info everyone :)
> Since Joce is having 0-1 or 2 seizures a day at the moment I dont know wether
to start the drug or leave it to see if she gets worse again?
> She has started screaming again- the docs think that maybe the potassium might
help?
> Not sure what to do really.
> Glad to hear that it has helped Den Margaret. That is great to know :)
>
> Hope you are all doing well xo
>
>
>
>
>
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