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Potassium Bromide   Message List  
Reply | Forward Message #1226 of 1621 |
Re: Potassium Bromide

Hi Everyone,

Joce is currently on the ketogenic diet and it does help her. At the moment she
is having anywhere from 0 seizures a day to 12.
That is a "typical" pattern on MPEI? I just dont know whether we should bother
with this new med. Maybe try it if she gets worse again?

Joce has woken up screaming and arching again today. I feel so upset. We have
only had 5 good days and 5 horrible months. I hope it is just an off day.

Thanks for all the support on the new bub- we are very excited. We have lost 2
babies in the past and are very relieved that so far things are looking good.

Take care,

Tan xo








Thu May 28, 2009 10:24 pm

tdeiulio
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Message #1226 of 1621 |
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HI Everyone, Joce doc has prescribed her Potasium Bromide. Just wondering if any of your children have been on this med before? It is off label use here in...
tdeiulio
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May 28, 2009
3:07 am

Hi Tan Firstly congrats about new baby! and really glad Joc has given you a bit of a break from screaming Niamh was also precribed this very early on and her...
Alison Maguire
niamhmaguire...
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May 28, 2009
7:56 am

Hi Tan, So happy to hear your good news.  Nikkie's comment about being busy, but more sane, says a lot.  All the best during your pregnancy. I am not sure...
Mary Roach
maryroach1515
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May 28, 2009
4:12 pm

Hi Everyone, Joce is currently on the ketogenic diet and it does help her. At the moment she is having anywhere from 0 seizures a day to 12. That is a...
tdeiulio
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May 28, 2009
10:25 pm

Hi Tan, congratulations on the new baby on the way! Kristan did try potassium bromide in the beginning when she was still a baby and we tried it for a few...
kristansmommy
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May 28, 2009
10:27 pm

Hi Tan:), Den has been on Potassium Bromide for years. It has been an amazing drug for him. Even though he has never had sz control and never had a day...
Margaret Wright
margaret1963pw
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May 28, 2009
10:51 pm

Thanks for that info everyone :) Since Joce is having 0-1 or 2 seizures a day at the moment I dont know wether to start the drug or leave it to see if she gets...
tdeiulio
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May 31, 2009
10:21 pm

Hi everyone, Tanya, I talked to Dawn on the weekend and she told me that Rebecca was on potassium bromide when she was under 6 months old, but with no...
Mary Roach
maryroach1515
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Jun 2, 2009
4:31 pm

Harry was on pottasium bromide when he was about 2.5yrs, maybe 3yrs. His breathing deteriorated on it and his sats were very very low. We came off the drug...
whitley.denise
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Jun 6, 2009
11:15 pm

Hi, Molly spent 3-4wks on potassium bromide she was very sedated on it and had awful skin problems.   Debbie ... From: whitley.denise...
Debbie Simon
debbie_simon...
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Jun 10, 2009
7:52 pm

It looks like Kayne will be coming home from hosp in a couple of days – just sorting out what we need to support us at home. Since I last wrote his MRI came...
Pickering Family
husky_pickering
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Jun 17, 2009
10:40 am
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