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MPEIparentsupportgroup · Migrating Partial Epilepsy of Infancy
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Reply | Forward Message #10 of 1614 |
Nikkie!

I keep trying to get a message through to you but it keeps getting
sent back as undeliverable....

As per treatments, Rylie is on Levitracetam and topiramate and it
was an excellent mix for her. It's reduced her seizures by a LOT.
She's also back on 4 mgs of Phenobarb twice a day and that's helped
even more.

Glad to hear about Miss Maddie's new tricks. She's a doll.

If anyone is interested in the UK, I also have a page on Facebook -
very good page - like Myspace, but better, I think. I'm not sure if
it's available in other countries other than Canada, US, and UK.

Niks, I'll try writing again....

Many hugs to everyone,

Laura




Fri Jul 20, 2007 3:45 pm

rybozemom
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Message #10 of 1614 |
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Nikkie! I keep trying to get a message through to you but it keeps getting sent back as undeliverable.... As per treatments, Rylie is on Levitracetam and...
rybozemom
Offline Send Email
Jul 20, 2007
3:46 pm

Hi Laura, Same thing keeps happening to me - did you get my last email in the end? Wow, never thought phenobarb would help - we had Maddie on that at the start...
nikkie tatton
nikkietat
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Jul 23, 2007
7:09 am

Nikkie, I finally did get your last message. I don't know if hotmail and yahoo are mortal enemies, but it seemed to be pretty hard to get my message ...
rybozemom
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Jul 23, 2007
11:01 pm

Laura - I am so sorry to hear what was happening with Rylie. What an awful, awful decision you were asked to make, & I am so glad that things didn't have to...
nikkie tatton
nikkietat
Offline Send Email
Jul 24, 2007
3:34 pm
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