There's a lot of important M.E. information on the internet that people without computers simply don't get to hear about (e.g. positive research, negative mass-distributed psychiatric publications, independent petitions etc.). To get this internet info. to a wider audience, it needs to be printed out and sent by royal mail to non-computer using M.E. people.
That's where you come in. Even if you can only print out 2 or 3 emails/letters a month, that is a meaningful amount, and DOES help. This list is intended for the organisation of such mailings - i.e. working out WHAT needs to be mailed, WHO sends what, and to WHOM. Given that some people have more energy/time than others, it would make sense it each list member gives an indication of their level of health, so that the more well people do the *urgent* stuff, while the really ill people are only called on when a *lot* of stuff has to be mailed.
For confidentiality reasons, all information from this list (e.g. list members, postal addresses of info. recipients etc.) must *not* be discussed on other email lists. For the same reason, this is a closed list (i.e. the list owner has to approve potential members before they can join).
Thanks for your help - it's invaluable :-)
People need to know what is *really* going on!