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ME-CFS-FMS_infections · ME/CFS, FMS, Lyme and hidden infection
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Group Information

  • Members: 473
  • Category: Support
  • Founded: Apr 10, 2004
  • Language: English
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Activity within 7 days:

2 New Members - 1 New Message - New Questions

Description

The purpose of this group is to highlight the need for patients with ME/CFS and/or FMS to make sure they are adequately tested for hidden infections; in particular Borreliosis (Lyme Disease).

In 2003 after 30 years of ill health Vix' ME Specialist told her "something has to be keeping you ill". Kezzi was told the same thing by a chronobiologist in the same year after around 27 years of illness.

Many people previously diagnosed with ME/CFS/FMS (over 80% of respondents in a 2004 poll of Lyme Disease patients) are now finding out, thanks to better testing, that they do in fact have a previously undetected infection. For those of you in the UK we are sorry to tell you that this testing is not currently available on the NHS.

Join us on this support group if you want to find out more about this slowly emerging picture of what may be keeping you ill. We can't promise all the answers here, but we may be able to point you in the right direction by sharing our experiences and providing links and files with the information you need to make an informed decision.

We hope that we are now on the road to recovery and would like to meet and chat with others helped in the same way.

Owner Vix (Group Owner)

Moderator Kezzi (Moderator)

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 8 16 2 10 3
2007 30 17 6 9 51 22 14 20 59 31 14 23
2006 83 85 101 40 72 31 75 58 46 76 53 14
2005 175 122 227 230 225 271 241 280 170 149 107 48
2004 819 1609 805 586 232 338 610 352 152
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Group Email Addresses

Related Link: http://www.drmyhill.co.uk/article.cfm?id=361
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