Jackie, you didn't say what state you live in. Most states have agencies that might help but they all make it very difficult and they make it a big secret. I...
23362
Adele
navymom2josh
Apr 6, 2013 1:39 pm
Jackie. I'm sure I have told you about Developmental Disabilities Administration (DDA) Some states call it DDS. You can get home modifications, help in the...
23363
Jean
dmdmomof1
Apr 6, 2013 3:38 pm
Jackie were do you live. I am starting to advocate and help people find what they need as I know what it is like. You can email me personally or on here. Soon...
23364
JoyceGlass@...
Apr 6, 2013 4:22 pm
Will you please post an announcement when you have your web site and facebook page. ... From: Jean <dmdmomof1@...> To: MD-List <MD-List@yahoogroups.com> ...
23365
Jean
dmdmomof1
Apr 6, 2013 5:00 pm
Yes Joyce I will. Also any and all input some one may have that I do not will be greatly appreciated. I will also answer questions for IEP's as I have done...
23366
Terri
imblueangel
Apr 18, 2013 8:29 pm
Are you authorized to speak for him? I would just tell them that he didn't report all his expenses including the fact that his food is purchased separately. It...
23367
tinysunshine
Apr 19, 2013 8:16 pm
We are Danny & Joanna Lopez, and are parents to a 14-year-old with DMD. We have been having much difficulty lately making him comfortable in his bed at night....
23368
DIANA HOWE
diana.howe@...
Apr 19, 2013 8:29 pm
Hey my son at that age found tempur pedic very uncomfortable. We got a KCI bed and put it on a hospital frame. Works wonderful. As he has gotten older and...
23369
Joanna
tinysunshine
Apr 19, 2013 9:01 pm
Thank you for the info, Diana! ... Thank you for the info, Diana! From: DIANA HOWE <diana.howe@...> To: "MD-List@yahoogroups.com"...
23370
Adele
navymom2josh
Apr 20, 2013 12:02 am
My son, Jason, now almost 28, sleeps on a Silk Air Low Air loss mattress which is an overlay. It is on top of a normal hospital bed frame and mattress. This...
23371
Joanna
tinysunshine
Apr 20, 2013 12:09 am
Thank you, Adele! ... Air Low Air loss mattress which is an overlay. It is on top of a normal hospital bed frame and mattress. ... corp. They supply most...
23372
Rich Clingman
bachniv
Apr 20, 2013 12:31 am
There was discussion long ago in this list about an alternative. Google Alternating Pressure Air Mattress The mattress changes pressure in different sections,...
23373
Joanna Lopez
tinysunshine
Apr 20, 2013 2:52 am
Thanks, Rich! He actually had two different mattress toppers of this kind (one from the hospital & one from the medical supply company) and very much disliked...
23374
JoyceGlass@...
Apr 20, 2013 3:20 am
My son has the Silk Air overlay from Hill-Rom. It is an air bed run by a motor so the firmness can be adjusted. It is very comfortable. He's had his for...
23375
Terri
imblueangel
Apr 21, 2013 2:00 am
Nathan has an airflow mattress on a hospital bed. He got it after he had a severe bedsore (he got it while in ICU). His weight had been down to 69 pounds, he...
23376
Terri
imblueangel
Apr 21, 2013 2:15 am
I forgot to add that Nathan is 25 and Christian is 16 now. Terri From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Terri Sent:...
23377
fullers85
Apr 24, 2013 10:33 pm
Thanks for the response Terri! Ugh! Our appeal was denied. (for now) We talked to a lady from SS on the phone last week. She said that we can only charge...
23378
Rich Clingman
bachniv
Apr 24, 2013 10:42 pm
Your problem doesn't make sense to me if they say you can charge for "Room and Board." Definition: Room and board describes a situation where, in exchange for...
23379
Adele
navymom2josh
Apr 24, 2013 11:47 pm
My son, Jason, is now.. 28 tomorrow!!!! He has been getting the max amount since he first applied for SSI. We only told SS that I was charging him $350 a...
23380
Stephen Curtin
stephencurtin
Apr 25, 2013 4:29 am
Make sure you know how to calculate "share of cost". The 2013 SSI guidelines are described here. http://www.socialsecurity.gov/ssi/text-living-ussi.htm I hope...
23382
Adele
navymom2josh
Apr 30, 2013 3:18 pm
Because of the high cost of medical care and the government efforts to lower the costs that they have to pay, Obama was enacted. One part was to turn complex...
23383
dspatola418
May 8, 2013 10:28 pm
Hello group, I'm hoping you can help me. My 24-year-old son is having difficulty with urination. He has trouble getting his penis out of his pants. He has a...
23384
Adele
navymom2josh
May 8, 2013 10:33 pm
We have always just used hand held urinals. Most times, he is wearing pants with elastic waist, so I just pull the waist down in front and position the urinal...
23385
knuckles 145
knuckles145us
May 8, 2013 10:36 pm
we have been having to straight Cath my 22 year old son with DMD for over a year now. How I wish we could go back to using urinals good luck...
23386
ANGELIA HAYNES
haynesra
May 9, 2013 2:43 am
http://www.homeandmedical.co.uk/images/products/jtsyx_G70467_800x531.jpgMy son 23 uses a uribag. We have to position it for him but he can hold it and have...
23387
DIANA HOWE
diana.howe@...
May 9, 2013 3:55 am
Wow I've never seen a urinal like that! Who knew! My son has a small bladder and is extremely fragile. Cannot even sit on a toilet. Or move to the front of his...
23388
reina_kelly
May 9, 2013 6:22 pm
What type of lift do you have that will let him down in the tub?? Thanks for sharing all your info really helps us all to find solutions...Reina ... From:...
23389
DIANA HOWE
diana.howe@...
May 9, 2013 6:37 pm
I will take a picture and show you. I know the company is no longer in business. Our sling is very old. Unfortunely we can't find another one that lifts with...
23390
Adele
navymom2josh
May 9, 2013 7:27 pm
This is the lift we use for getting Jason into the tube http://www.discovermymobility.com/store/patient-lifts/summit/wall-mount-lift/index.html. Adele _____ ...
23391
Susan Kumbera
SKumbera@...
May 14, 2013 5:27 pm
http://ibpp.com.br/likeit.php?obenhft821qwbu ======================= Metaphor, n.: Is kind of like a simile... also the mysterious whole number between four...
