New content on www.DmdOptions.com Cell therapy shows promise for heart "Bone marrow not only can differentiate into heart cells, but also smooth muscle cells,...
Hi, my name is Eileen, I'm 34, and I have LGMD. I'm new at this group thing, but I thought it would be a nice way to talk to other people who are going through...
Eileen. Welcome to the group. My name is Adele and my son Jason has Duchenne's. I know there are people on this list who have LGMD. We are a very dedicated...
Hi George On Wensday we took the Tahoe to a welder to have some ramps made for Davey's power chair. So far, it looks like they will be a total of about 6 feet...
Greg Evans
gregevans01@...
Jan 2, 2003 4:43 pm
8074
Hello, My name is Jean and I have a 7 year old son Jimmy with DMD. The last few nights he has really given us problems about sleeping in his bed. He has told...
Hi Jean. My name is Adele and my son, Jason is 17 w/DMD. We never had this problem with Jason. Though I will tell you that in speaking with many parents of...
Adele, That is funny you mention touch. I to have to cut all the tags out of Jimmy's shirts as well becuase he said they hurt. I have also now that you mention...
Yes, my son seems sensitive when I touch him he screems, however when anyone else does he doesn't say a word. At the hospital a couple weeks getting x-rays, I...
I don't have any advice about the mattress, but wanted to share that my son is also very sensitive to touch. I never thought that it was related to MD., but...
Seth & DeeDee Fuller
sethfuller@...
Jan 2, 2003 10:30 pm
8079
I am so sad I miss Joe every day the pain never goes away I have a question has anyone on the list lost any one to dmd I need someone to talk too Please...
Ang; I haven't lost anyone to DMD. Not as an adult anyways-the first child I
ever babysat had it and he died at the age of 12. But, my daughter Kayda
died 2...
Jean and Adele, I discovered the same thing about touch when I interviewed parents last year. My son used to literally scream when he walked in the grass or ...
ILuvMere@...
Jan 2, 2003 11:49 pm
8083
Hello Dee Dee and Jean, My son also is very sensitive to touch. Maybe it is because they dont move around that much, no muscle activity. Eric, 18 Holly Seth...
I have aol im. It's often not on as it takes up too much memory when I'm
working with graphics. If you want to talk at a certain time let me know and
I can...
... Hi Jean, My name is George, my son is 9 and also has DMD. ... As a number of other parents have already remarked, my son has also been sensitive about...
George Smith
smithg@...
Jan 3, 2003 12:25 am
8086
You might Consider to place on of those "egg-crate" foam pads over the mattress first. I had two of them on Jason bed before we got a hospital bed and a air...
Jason is the same way. With me, every thing hurts. With other people, not a peep out of him. It is more so because Jason feels uncomfortable with others and...
Adele, Did Jason have one of those air matresses (overlay) over the foam mattress at the hospital? They were real deep and confortable. Mike also had a bed...
We have an overlay air mattress by Hillrom. It was a continuous low air lost. It was very comfortable for Jason up until after his surgery last year. We are...
Hi Greg, Thanks for the information. Coincidentally, we're getting telescoping ramps that expand to the same length. Out of curiosity, which of the two ...
George Smith
smithg@...
Jan 3, 2003 9:22 am
8092
George We scrapped the custom ramps and just today opted for a set we seen in a catolog, they look like just what the doctor ordered.7.8 feet long and fold in...
Greg Evans
gregevans01@...
Jan 3, 2003 9:49 am
8093
Greg, The telescopic ramps are from a local supplier here in Germany, a bit far away for you ;-) They are aluminum, so relatively light. Ours haven't arrived...
George Smith
smithg@...
Jan 3, 2003 3:28 pm
8094
Foe a local supplier of folding ramps, try http://www.rehabdesigns.com/ramps/default.htm I purchased one of these about 2 years ago, I got a 5 foot ramp that I...
Hello all MD-friends Wishing you all a good, supportive, positive new year. Have seen in several postings that some of the children with DMD is sensitive of...
My son Jason (12yo with dmd) is very sensative to touch and to light. The optomitrist has a very hard time looking in his eyes with the lights. We recently...
I don't know about DMD but I have LGMD and am very easily "hurt." If I just barely bump my arm or leg on something it really hurts worse than I know it ...
