Hi Angela, The X-linked form of myotubular myopathy is X-linked recessive, like Duchenne (Carriers can have mild facial muscle weakness). This means that any...
Dear Mr. Ray Harwood Please send emails of your memebers. Regards, Sanae Hayashi MSN Photos is the easiest way to share and print your photos: Click Here...
The company that makes the inexuffilator, came out with a new version called the "Caugh Assist." They presented at the Parent Project MD conference last ...
... Now manufactured as CoughAssist by JH Emerson Co. www.CoughAssist.com Rich Clingman rich@... www.DoctorBach.com www.LivingForToday.org ...
Rich Clingman
rich@...
Jul 3, 2002 8:41 pm
5820
greetings from what I have heard this particular device is not recommended for people with a trach have a terrific fourth of July Best regards, Jim Gassen ...
Hi, I recently tried it...However, it takes up a lot of time without much benefit, although I would consider using it during high-frequency suction periods...
Hi all: The InExsufflator CAN be used with a trach safely. To many, it is easier to use with a trach because you don't have to coordinate the cough with the...
He in Appleton ~~My Company~~ http://www.pictures-on-cd.com/ ~~My Personal Page ~~ www.purple-pansy.com Please write soon Always remember I care Love in...
I do not live in Wi but would be happy to contribute gas money or finances towards helping out to anyone who can april Sometimes Courage does not speak in a...
To Everyone, Hello How are everyone doing? I am doing well, I did go to a Genetist on Wedsday. I found out that either way the baby will have it. What makes...
Hi, I am hoping that some of you, especially those who have been writing the excellent letters supporting the bills for our children, can send me sample ...
mom
momdmd@...
Jul 7, 2002 6:22 pm
5829
Hi, I just wanted to let you all know some good news I received. I have written many many emails/letters and made a lot of phone calls recently about housing....
mom
momdmd@...
Jul 7, 2002 9:49 pm
5830
In a message dated 7/7/02 5:51:11 PM Eastern Daylight Time, ... where do you live? I just recently seen a wheelchair accessible van for sale ¶·:*:·:*:· ¶ ...
Hi Heather, Ty so much for the info, but I probably couldn't afford to buy it. I also think what I need would be way too much because I have to have a full...
mom
momdmd@...
Jul 7, 2002 11:58 pm
5832
Well its open my New company Please check it http://www.pictures-on-cd.com/ and enjoy your stay and if your are interested please let me Know and...
Congratulations Terri. Sooner or later things just had to start turning the other way. Are they talking about building a house or finding you an apt. or...
HI Terri-- its an Astro--- not a full size-- sorry I couldn't be of more help-- where do you live.. I volunteer with a group-- for adults over 21-- but have ...
Terri, As my mother always said, "The squeaky wheel gets the grease." I'm glad you were heard. Carol...
ILuvMere@...
Jul 8, 2002 2:13 pm
5837
Terri....maybe I missed it somewhere, but I take it you were not able to get the van....thought someone was gonna give you a van w/ a w/c lift already on it....
Terri: that is good news...perservance paid off...hopefully. I hope you contacted her and allow them to help you in any way they can...and the sound of it I...
A cruise??!! A Cruise!!! and you forgot to invite me?! gish!! i love cruises!! Tim and I went on the Disney cruise in 2000 by the Make a Wish foundation and...
I guess the request for the PHOTO LINK is being ignored...AGAIN your welcome to join us at HOPE FOR MD community and welcome to post pictures, chats, etc......
Hi everyone...sorry i have not been around...been so busy with other things that now I'm taking a break from it and resting. Tim is doing ok...he is adjusting...
Hi all--- the MDA ( Vad )camp I attend every year is coming up in 3 weeks--------Now We are building a mini golf course again-- and the theme this year is...
