In a message dated 3/21/02 7:16:14 PM Central Standard Time, kclayto@... ... I've never seen any hotels like that. That would be too good to be true! :) ...
Kathywilburn1@...
Apr 1, 2002 1:42 pm
4995
In a message dated 3/21/02 8:05:25 AM Central Standard Time, ... AMEN! You should never feel bad about staying home and caring for you children, handicapped...
Kathywilburn1@...
Apr 1, 2002 1:47 pm
4996
Contact the local MDA office in the state you are visiting. They might lend you a bed or they can tell you the names of local companies that will rent the bed...
JoyceGlass@...
Apr 1, 2002 1:52 pm
4997
We were told by the MDA clinic doctor that the time Austin would spend down and in bed would be so debilitating that it would make the surgery not worth it....
Kathywilburn1@...
Apr 1, 2002 1:55 pm
4998
... spend down ... not worth ... For the tendon lengthening surgery, yes the more time spent in bed will make the surgery worthless. The doctors want to see...
Our 24 year old had the foot surgery last summer because he feet were turning in so much he couldnt' wear shoes or keep his feet on his foot plates. He says...
I'm 24 w/ duchennes, I spend my days in my power chair. My ankles are bent in quite severe, and my right one has been getting real sore lately. What does...
Updates to www.DmdOptions.com since the last notice O – Hey kids, it's April Fool Day O – Should Patients With Neuromuscular Disease Be Denied the Choice ...
That's interesting. I wouldn't have thought of that but you know at least you know you have the equipment with you. So when you go to a hotel do you tell...
Kathy, another thought. Do you ever have any problems with securing your trailer when on trips to prevent theft? Do you have some way to secure it or have...
We are trying to avoid hauling a bed with us but hauling your own bed is a sure way to have one when you reach your destination. We did find out that our...
Thank-you so much. Your message is very encouraging. Terri ... From: Kathywilburn1@... To: MD-List@yahoogroups.com Sent: Monday, April 01, 2002 8:47 AM ...
mom
momdmd@...
Apr 2, 2002 2:09 am
5006
Truthfully that is what I think too. I have agreed to have my son see the back surgeon but I don't think there would be probable cause to make him go through...
In a message dated 4/1/02 6:32:44 PM Central Standard Time, kclayto@... ... I don't tell them anything usually. I'm always afraid they'll say "You can't ...
Kathywilburn1@...
Apr 2, 2002 4:34 am
5008
In a message dated 4/1/02 6:48:44 PM Central Standard Time, kclayto@... ... We pull it behind the van. It's enclosed to keep out rain and stuff. My ...
Kathywilburn1@...
Apr 2, 2002 4:36 am
5009
Cody, Jason had the heal-cord release surgery way back when he was 9. This has had the advantage of keeping his feet in a normal position. I not sure if...
Jason is coming along fine. There was a lot of complaining since the surgery. Jason doesn't remember the first 4 days after surgery. The biggest change in...
strength based IEPs info. In educational situations, it is essential that parents understand the nature of the weak areas, what skills need to be learned to ...
Can you tell us who that supplier is? Andrea Gapko, Director Academic Skills Center University of Wisconsin--Eau Claire Eau Claire, WI 54702-4004 715-836-3717...
Our son didn't have heel cord surgery done until he'd been using a power wheel chair for about 5 years. His feet were in pretty good shape when he was still...
He probably can't lean over forward and use the elbows as lever points the way he used to; successful spine surgery stops the spine from bending, and makes you...
Hello All, Last week Senators Susan Collins and Paul Wellstone began circulating a letter within the Senate seeking $10 million in additional funding for...
denger2@...
Apr 2, 2002 11:32 pm
5016
I'm sorry to hear about Jason having those problems. They are big changes and depression is a difficult situation as well as the feeding issue. Thanks for...
Those are all of the problems Jason is having. We ordered a "mobile arm supporter" to help him self feed. We also got a tray for the new wheelchair. It has...
Can you believe the local YMCA has denied my son attending Day camp? He is 9 with DMD and in the wheelchair. I told them he needed help transfering to go to...
Kmmx2@...
Apr 3, 2002 3:46 pm
5019
No, this does not surprise me. My sons went to both, the after school program and the summer day camp and I would say that with their child to staff ratio...
mom
momdmd@...
Apr 3, 2002 5:54 pm
5020
Where would I look to hire an aide? Initially, they assured me that it would not be a problem for a child with special needs. It's the reason they gave that...
Kmmx2@...
Apr 3, 2002 6:09 pm
5021
Write a letter to your Congressman and locate the web site for the Department of Justice to find out if they can do this. Adele ... From: Kmmx2@......
I will. Where would I look to find an aide to help him at the Y? kathy in FL...
Kmmx2@...
Apr 3, 2002 6:43 pm
5023
Howdy Folks, I ran across this disability Online Dating Service http://www.hfriends.com If anybody knows of any others please let me know, I making a list of ...
