We have a portable Hoyer lift. It is smaller and easier to transport than the large one. Insurance does not like to pay for it beacuse it is more expensive....
Terri and anyone interested, It can be a challenge to get equipment, yet it can be done. The first thing you need to do is become informed. Search through...
To Everyone!! Hello! Patrick and I wanted to say Thank you to everyone responding to my situation with my insurance. We appreicate it! These insurances need to...
there is a chance I may not be online after this month...so i'm trying to get my website update with full of goodies for this next few months...we are having...
yes...i'm still awake....can't sleep and this makes day 2 since no sleep. But been busy working on my website. I'm still waiting for the stories/articles by...
Hey everyone! I found this article in the newspaper this morning, and found it interesting. It is about miscarriages and a study done by Dr. Hoffman involving...
You can even do that as they get older. I do it to get my son's pants on. Have him sit up in the chair gather the pants up and push under him as far as they...
Hi All, I talk to a lot of parents who have kids with DMD and sometimes when their child is doing really well it is tempting to wonder if maybe they have BMD ...
I talk too much on the list so often I bite my tongue on things I should ask about but then I turn around and continue a discussion I should bite my tongue on....
The Hope4MD site is currently "under construction". I am currently updating all new infor. Actually I "deleted" the site and starting from scratch. I...
Hi, Didn't know there was so many lifts. Web address for EZ Pivot www.easypivot.com/ Search EZ Pivot and you will find several kinds of lifts. Search Trixie...
Kathy, in my experience it depended upon the insurance company. I had one that considered it a convenience item and another one (my current one) has it as an...
MDA used to pay for all equipment when my son was young. Now that he could use help they don't pay. Last time I called they will pay a certain amount toward...
Most MDA offices have a loan closet. I know because I donate all our equipment we don't need to it. I did donate a Hoyer lift to the Maryland office,...
I hope you realize that I am only trying to give my story on how bad it is when you experience respiratory failure so that everyone can see how important...
Holly, Unfortunately all life is finite, yet to say that one's life is less worthwhile or to claim that the choice of bringing a child into this world because...
... DeeDee, You might investigate an electronic drum set. Not just a rhythm box that runs on its own, but a set of pads that can be struck to run a drum...
Hi all, I was just wondering if anyone has gone through this experience yet? My son, Dylan, will be 3 in October. Since we found out so early and he had hip ...
I have no connection with this company. http://www.mypoolpal.com/store/aquaforce.cfm I just got my son with Duchenne Muscular Dystrophy and my son with...
... From: ~Rob To: MD-List@yahoogroups.com Sent: Saturday, January 05, 2002 11:53 AM Subject: [MD-List] Sadly This group is obviously for mothers of young DMD...
Adele, I am a carrier (36 yrs. old) and saw a dr. recently because I sometimes have irregular heart beats. It can beat extremely fast for a few mins., and ...
Hi, I rarely send things that I receive in the mail, and almost never to the list, but I really thought this was good. Please forgive me if you have already...
Hello To Everyone, My son Patrick has Myotubular Myopathy and one of the traits of the disease is being tall. He had hip tendon release surgery on Feb. 20th...
Because my son Nathan went into middle school, he is allowed to choose his electives(and then edit it if necessary a couple weeks or so into the semester. The...
Jeff and everyone else - please read my full message before placing judgement because you'll see that I am trying to help families and md patients to be...
I don't know about chronic, my kid's dr.s have told me it is common to get colds and flu. It just seems to bounce between them. I hate to say that I am not...
Rich - I agree in most part with Dr. Bach in regards to non invasive ventilation and know the respiratory failure situation all too well but there are some...
