Hi everyone. I have recently read that a study was done that has shown that Albuterol slows the progression of muscular dystrophy. Does anyone know about...
32
Donoso C., Luis (Casa...
LDonoso@...
Sep 7, 2000 12:26 pm
Hi Everyone, On line again, Luis Donoso & Maria Soledad parentes of Luis Alberto (10 y.o.) CMD (now we are not sure wich kind of MD is, but is in this ...
31
Martin Coates
MartinCoates@...
Sep 7, 2000 8:50 am
Hi all its nice to be back! I have a 7 year old son with DMD, jack he is ok for now but getting weaker are there any new developments since the old list died ?...
30
Jenny Smyth
smiles@...
Sep 7, 2000 1:06 am
Hi Maureen, How are you, you have DMD right. I go to dmdchat on mirc on talktaime it would be good to catch up with you there or by personal email. Jenny -- ...
29
Jenny Smyth
smiles@...
Sep 7, 2000 1:01 am
Darran Can I add this to my SMA club as a post, I'm sure there is interest there? Jenny <I would just like to send out a brief message letting everyone know ...
28
Kevin Orr
korr@...
Sep 7, 2000 12:22 am
I recently met a family who claims that their son has had 3 muscle biopsies and they are unable to determine what type of MD the child has. Has anyone ever...
27
Dragncove4@...
Sep 6, 2000 10:41 pm
Hi, all I am new to this list. I have two boys with DMD ages 9 and 11. Been married for 11 years. I look forward to reading everyones posts. Cassi...
26
maureen188@...
Sep 6, 2000 10:14 pm
MY NAME IS MAUREEN glad THIS LIST IS back on line...
25
Andrea M. Gapko
gapkoam@...
Sep 6, 2000 4:58 pm
Mary Ann, Do you know Vikki Stefans, a pediatric physiatrist at Arkansas Children's Hospital? She was on this list and has been a wonderful wealth of ...
24
Mary Ann Littlefield
mlittlef@...
Sep 6, 2000 3:10 pm
Dear Friends of the MD List, This is my first message, although I was a reader of the old list for three years. My grandson, William, age 10 1/2, was...
23
Win Phatak
vphatak@...
Sep 6, 2000 5:54 am
hi everyone, though i did not participate much in the discussions, i sure missed the list, its nice that the list is active once again. welcome every one Win...
21
Pamela Reeder
lebree@...
Sep 6, 2000 4:29 am
Hi all. This is the first time I have been to this list. My daughter is 2 years old and has a nueromuscular disese. Which one ?? Don't know. We are...
20
Darren
brayd@...
Sep 6, 2000 3:03 am
Hi everyone, I would just like to send out a brief message letting everyone know that a few of us across Canada have applied to Revenue Canada for Registered...
19
SherryLG@...
Sep 6, 2000 3:02 am
In a message dated 09/05/2000 9:25:55 PM Central Daylight Time, smiles@... writes: << Im so glad to be back on here. I have a neuromuscular...
18
Kevin Rudolph
turbokev@...
Sep 6, 2000 2:33 am
I have Duchenne *********** REPLY SEPARATOR *********** On 9/6/00 at 10:54 AM Jensen wrote: My Groups | md-list Main Page | Start a new group! Ray, Allow me to...
17
Jenny Smyth
smiles@...
Sep 6, 2000 2:23 am
Hi all, Im so glad to be back on here. I have a neuromuscular condition and live in New Zealand. Hi Sherry good to see you lol Suxess are you here yet?? Helen...
16
MaryAnn
maryan@...
Sep 6, 2000 2:12 am
I'm so glad to see this list. I wondered what happened to the old one and missed it. Mary Ann...
15
Pat Tudisco
tudisco@...
Sep 6, 2000 2:04 am
Hi everyone Glad to see the List up and running again. I'm looking forward to reading informative posts. Pat Tudisco ... ...
13
Jensen
jensen@...
Sep 5, 2000 11:56 pm
Ray, Allow me to introduce myself, my name is Adam Scott, I am from Canberra (the capital of Australia). I have been involved with MD for over ten years, I...
12
SherryLG@...
Sep 5, 2000 11:52 pm
In a message dated 09/05/2000 6:46:39 PM Central Daylight Time, shesterlee@... writes: << If anyone has any questions about MDA research, DNA testing,...
11
Sharon Hesterlee
shesterlee@...
Sep 5, 2000 11:29 pm
Hi Everyone, I too was on this list for a short time before it shut down. My name is Sharon and I'm a research program coordinator for the Muscular Dystrophy ...
10
SherryLG@...
Sep 5, 2000 11:02 pm
Hi everyone, I was not on this list long before it was shut down. I will look forward to meeting you all. I have a 10 month old son with Duchenne MD. I also...
9
Helen Bishop
HBishop3@...
Sep 5, 2000 10:56 pm
Hi all!! Long time no see.. I am so very happy that Ray was indeed able to get this up and running again.. I am Helen Bishop. I have a 7 year old grandson with...
8
SKumbera@...
Sep 5, 2000 10:19 pm
Hi, My name is Sue and I have a son with DMD age 15. Glad to be back on line with all of you. Sue...
7
rich@...
Sep 5, 2000 5:41 pm
According to AP News, they "raised a record $54.6 million"... dailynews.yahoo.com/h/ap/20000904/us/jerry_lewis_telethon_1.html Rich Clingman rich@......
6
SherryLG@...
Sep 5, 2000 5:33 pm
In a message dated 09/05/2000 11:57:09 AM Central Daylight Time, danielsson@... writes: << Question? I did not see the end of the MDA Telethon, does...
5
danielsson@...
Sep 5, 2000 4:54 pm
Guys~ I never posted a lot, but I enjoyed reading all the posts. I am glad it is back. Question? I did not see the end of the MDA Telethon, does anyone know...
4
Ray Harwood
RHarwood@...
Sep 5, 2000 3:38 pm
Wow... 1 hour after the "new improved MD-List" was announced there were 7 members, and only 12 hours later, a total of 41. Welcome back, folks! This next...
3
GA & DF Robins
garobin@...
Sep 5, 2000 8:12 am
Oh, I forgot to say, that I joined in 1996. When did you start md-list in the first place? regards Deborah Robins Outback Oz The Meaning of Life is a Life of...
2
GA & DF Robins
garobin@...
Sep 5, 2000 8:03 am
Welcome back Ray from being down, and that's a sentiment from the land downunder! I had an affection for md-list because that's where I first "met" anybody...
