My 9 year old has Duchennes MD (DMD). There aren't any real "stages". Everybody progresses at different rates. But our son fell down much in the early stages,...
Kmmx2@...
Jan 2, 2002 11:48 am
3301
Hi kathy, Did you get my email? zeek http://www.communityzero.com/vpadpa/index.cfm ... From: Kmmx2@... To: MD-List@yahoogroups.com Sent: Wednesday, January...
My sister in law has some form of MD but not sure what. She has a lot of back pain but has been relatively good till christmas week when she started falling a...
How do you know she has MD? Muscular Dystrophy? Are the doctors having a hard time diagnosing what kind? Go to mdausa to see the symptoms and what can...
Kmmx2@...
Jan 2, 2002 4:02 pm
3305
make that over 40 kinds. zeek http://www.communityzero.com/vpadpa/index.cfm ... From: Kmmx2@... To: MD-List@yahoogroups.com Sent: Wednesday, January 02,...
As Kathy has said, it depends on what kind of MD and what stage is she is. Everyone is different some progress while others don't. This is somthing that they...
Hi Cassie, I suspect that you would like advice from someone on the list who has the same type of Md. I know that most people do not know that there are so...
momdmd
momdmd@...
Jan 2, 2002 7:09 pm
3308
Hello to everyone. I hope you all had a safe and happy new year. I'm not too sure if this is possible as I am new at this computer stuff. Can anyone send me a...
tyson
tyson@...
Jan 2, 2002 9:40 pm
3309
Here are some links with photos of lifts... "Hoyer Lift" is most popular--or at least most common--here in the States: ...
Rich Clingman
rich@...
Jan 2, 2002 9:53 pm
3310
Rich Thankyou for your help. Cheers Donna ... From: Rich Clingman To: MD-List@yahoogroups.com Sent: Thursday, January 03, 2002 10:54 AM Subject: Re: [MD-List]...
tyson
tyson@...
Jan 3, 2002 12:07 am
3311
Donna, If John is thinking of making something to lift Tyson with, the hoists used to lift engines out of car is the closest to a Hoyer lift. We use a Hoyer....
Adele Abramowitz
jasona65@...
Jan 3, 2002 1:33 am
3312
All; I ran across the following article, which reports a statistical correlation between the incidence of DMD and a "disadvantaged" socioeconomic background....
She has told us of having MD and don't know what kind but my mother told me today to look for thyroid, legs, or frequent falling. Cassie ... -- A CHURCH ALIVE...
Brad, Very interesting! Thanks! ... of DMD and a "disadvantaged" socioeconomic background. < My immediate question would be: Is this research statistically...
Rich Clingman
rich@...
Jan 3, 2002 3:35 am
3315
Hi, Can you ask her if she knows which form she has?. In addition to the 40 forms recognized by MDA; there are some forms that are unknown. I have a good...
momdmd
momdmd@...
Jan 3, 2002 3:47 am
3316
Hi I didn't mean to go on about knowing which form but in order for you to know how it is going to affect her you really need to know what she has. With as...
momdmd
momdmd@...
Jan 3, 2002 3:52 am
3317
To address some of your questions, Rich... ... significant? In the data table: http://bmj.com/cgi/content/full/323/7320/1035/Fu1 the right hand column is the...
Brad, Thanks for the info about "Monte Carlo". From its name I figured it had something to do with gambling/randomness. ... That is a major flaw I see: The...
Rich Clingman
rich@...
Jan 3, 2002 7:48 am
3319
40 diseases MDA treats, but only a few are actually MD.Anyway, zeek there are 2 Kathys on this list. It was not me you were talking with. sorry....
Kmmx2@...
Jan 3, 2002 11:36 am
3320
I'm wondering if anyone is having digestion problems. Our 9 year old cannnot keep dinner down at night.I don't know if it's a muscle problem, or withdrawal...
Kmmx2@...
Jan 3, 2002 11:42 am
3321
Just my opinion, but does this really matter, is this what they should be focusing on?...
Miaq127@...
Jan 3, 2002 12:57 pm
3322
Have you by any chance taken him to a gastroenterolist?...
Miaq127@...
Jan 3, 2002 1:00 pm
3323
246 is not enough participants to have an accurate study. It sounds as if they are trying to find a reason for random genetics. Maybe a study should be done...
miknsony
sonya211@...
Jan 3, 2002 1:42 pm
3324
In a message dated 1/3/2002 7:44:04 AM Central Standard Time, ... I really have to agree. Even in the cases of new mutations. Look it how many things can be...
No, not sure if its physical or psychological. We are dealing with behavior issues too. He loves to stall at bedtime. Though vomiting seems kind of drastic to...
Kmmx2@...
Jan 3, 2002 2:12 pm
3326
I always wondered if age had anything to do with it. Seems like most parents I have met, who have children with DMD, are older in their 30's? I was 32 when...
Kmmx2@...
Jan 3, 2002 2:18 pm
3327
In a message dated 1/3/2002 8:13:36 AM Central Standard Time, Kmmx2@... ... You know, my neighbors son had the same thing going on. But his pattern of the...
In a message dated 1/3/2002 8:19:27 AM Central Standard Time, Kmmx2@... ... I really don't think that age has all that much to do with it. Although ...
I'm not sure it does. In my case, I have had genitic testing and know I am a carrier. I know I could have a child at a far earlier age that could have had...
