I am a 31 years old brazilian w/ duchenne muscular dystrophy. anyone know about a stem cell company from india - http://www.cryostemcell.org/ - that have...
Dear Group,, My name its Jacki and i have a 13 year old boy,,,with Duchennes muscular dystrophy,,,i am having a hard time getting help to put a ramp in my...
Support and discussion of Muscular DystrophyWe bought an older, full-size van for a few thousand dollars. Not as nice as a newer model, but it came all set up...
Nathan is 26 with DMD. The work he does involves making schedules using Microsoft Word 2007 Professional edition. He has been using a dwell clicker by Smart...
 Hello My friends  I am happy that announce you an Iranian scientist in USA is working on stem cells for treating MD. His name is Dr. Radbod Darabi. He...
We have been using Devilbiss suction machines for 10 years but lately we have had issues with the batteries not holding a charge like they should and one has...
I see no one has posted anything since April 23. I have a question if some of you can help.   My son has been using the briefs with tapes that are like a...
Hi everyone, I haven't contacted the list for quite some time and I'm not even sure how active it is anymore, but I'm hoping someone out there might have some...
As long as was are talking about wheelchair vans. I'm selling my 1999 Ford E150 van. We are buying a new Dodge mini van. Any one interested? I live in ...
Hi everyone For the past 6 days my son has been battling a chest infection. Don't know where he caught it. Anyway I think he is getting worse not better. We...
Hi everyone, My dad had an idea for a support group for fathers and MDA Tacoma has decided to host the meetings. The new group is for fathers and male...
I'm forwarding this to the groups. I'm near Baltimore, so kept that in mind. Adele _____ From: Laurel Gaffney [mailto:lgaffney@...] Sent: Wednesday,...
Hi everybody my son Alex (21, DMD) hasn't been able to pee on his own for about 3 days. Is this part of the normal progression or should we look for other...
Hi everyone, I'm new to the group. I'm an OT working with a 6th grader who ambulates very well but won't wear her AFOs. I totally understand that the middle...
A 7th grade girl with MD that I work with does not want to wear her AFOs. Even now, during winter, when she can conceal them easily. I totally understand...
I have been using the reusable vent circuits for 17 years, but I am thinking about switching to the disposable circuits. Does anyone use the disposable...
I just tried out a new vent called the Newport HT-70. It is so much smaller than my present vent, the PLV-100. The internal battery lasts 8 hours. This will...
Am so sorry that i didn't inform you about my trip,I'm writing this with tears in my eyes,I came down here to London UK for a short vacation unfortunately i...
 Today when I called to order suction catheters from my medical supplier, they informed me that Medicare will only pay for 90 catheters a month. I used to get...
Hello eveyone, It's me Michael Keen and I am wondering if you all could help us the 412 project and Charles knows that we are an new awarness DMD organization...
Hello everyone, I just bought an IPAD for my son. I am wondering if anyone can recommend some apps that your boys use at home and at school. There are just...
Hello folks it's me Michael Keen, I wanted to take a few seconds before I need to get some rest. You know I have been the founder and CEO of Spirit Roller...
Hi every one Did any one of you have taken treatment from Dr. Alok Sharma in Mumbai ?Kindly provide me your experiences See attachment for the details  ...
Hi guys :) Having a mild strand of congenital MD, my brother and I have recently found it hard to come to terms with the changing nature of our condition....
Happy New Year's Eve everyone. Wishing you all a wonderful 2009.  http://irishsea-mark.blogspot.com/  Cheers,  Mark H Happy New Year's Eve everyone....
My son recently broke his tibial plateau (bone behind the knee cap). This has caused a problem with his sleeping in bed without having someone turn him every...
