Diana, that is a great idea. I was wondering if it was a problem getting three batteries on the wheelchair. Where did you put the extra wheelchair battery? ...
23229
Diana
diana.howe@...
Mar 9, 2012 11:51 pm
My son used the lithium batteries the first year until they stopped holding the charge. If u talk to the company they are not meant as your everyday battery....
23228
stbrigid@...
reina_kelly
Mar 9, 2012 9:59 pm
Thanks Joyce....what type vent does your son use? Reina ... From: Joyce To: MD-List@yahoogroups.com Sent: Friday, March 09, 2012 3:49 PM Subject: Re:...
23227
Joyce
JoyceGlass@...
Mar 9, 2012 8:52 pm
My son's vent uses the Lithium Ion Battery, LTV series. He has a few of them. They are small batteries and measure around 6 inches by 8 inches. They are easy...
23226
stbrigid@...
reina_kelly
Mar 9, 2012 6:10 pm
Can anyone tell me what type of battery you use with your vent when you are in the wheelchair. We just got a new chair and Permobil says they don't know what...
23225
Kathy Clayton
irishrediowa
Feb 26, 2012 4:07 am
My son is now 27 and he had the heel cord surgery when he was 13 or 14.  He has worn his AFO's everyday since but he wears them when he's up and not when he...
23224
kaj48ar
Feb 18, 2012 2:47 am
My grandson was told to wear them day and night. I will always remember what the genetic dr. said , " I don't care what the dr. tells you about how this or...
23223
Michael Keen
devldude23
Feb 15, 2012 6:53 pm
Does anyone know how much glucose enzymes leak in DMD Michael Keen...
23222
hhjgreene@...
hhjgreene
Feb 15, 2012 7:00 am
Well, In my opinion they were to just be worn at night...And if I were the parents and the teacher, that is what I'd ask for...I've dealed with this for...
23221
hhjgreene@...
hhjgreene
Feb 15, 2012 6:49 am
I do not blaime you, My son didn't want to do this...My son Eric did at one point wear some sort of strainghts! He fell flat on his face... such a wast of...
23219
kaj48ar
Feb 4, 2012 1:07 am
My grandson was miserable the whole time he wore the AFOs. One PT said no matter how tight they were his foot was still trying to twist in them causing a lot...
23218
dragonflylili@...
lushuss_lili
Feb 3, 2012 12:02 pm
I wouldn't wear mine when I was her age.. they made my feet & legs hurt.... Same with my daughter, when she went in wheel chair permanently @ the age of 8 i...
23217
stbrigid@...
reina_kelly
Feb 2, 2012 8:48 pm
My experience was that they did no good..my son had them and then had his heel cord lengthened neither did any good..now my little grandaughter has them...
23216
gotoad10
Feb 2, 2012 8:08 pm
A 7th grade girl with MD that I work with does not want to wear her AFOs. Even now, during winter, when she can conceal them easily. I totally understand...
23215
gotoad10
Feb 2, 2012 8:07 pm
Hi everyone, I'm new to the group. I'm an OT working with a 6th grader who ambulates very well but won't wear her AFOs. I totally understand that the middle...
23214
Michael Keen
devldude23
Jan 30, 2012 9:44 pm
my latest post http://spiritroller.blogspot.com/ Michael Keen Licensed Pastor www.spiritrollers.com 665 N Delphine Ave Waynesboro, VA 22980 ...
23213
Michael Keen
devldude23
Jan 26, 2012 8:46 pm
my new blog http://spiritroller.blogspot.com/ Michael Keen Licensed Pastor www.spiritrollers.com 665 N Delphine Ave Waynesboro, VA 22980 ...
23212
Kathy Clayton
irishrediowa
Jan 15, 2012 3:11 am
My son has used the reusable circuits for several years. They are changed out monthly and he has not had any issues with them.  Kathy in...
23210
Terri
imblueangel
Jan 13, 2012 2:44 pm
We've never used reusable circuits. Have you checked to see if they carry circuits that work with your vent system? I only mention this because over the year...
23209
Michael Keen
devldude23
Jan 8, 2012 8:11 pm
no problems and more sanitary but never used reusable either From: John Herrmann Sent: Saturday, January 07, 2012 7:04 PM To: dmdpioneers@yahoogroups.com ;...
23208
stbrigid@...
reina_kelly
Jan 8, 2012 1:47 am
Hi John...we have used the disposables for Tracy for 20 yrs. and they work very well and are much easier..the only cleaning we have to do are some of the...
23207
John Herrmann
johnrancho
Jan 8, 2012 12:04 am
I have been using the reusable vent circuits for 17 years, but I am thinking about switching to the disposable circuits. Does anyone use the disposable...
23206
John Herrmann
johnrancho
Jan 5, 2012 9:52 pm
I just tried out a new vent called the Newport HT-70. It is so much smaller than my present vent, the PLV-100. The internal battery lasts 8 hours. This will...
23205
Pat Furlong
pat@...
Dec 31, 2011 12:04 pm
This is spam. ________________________________ From: MD-List@yahoogroups.com <MD-List@yahoogroups.com> To: MD-List@yahoogroups.com <MD-List@yahoogroups.com> ...
23204
hhjgreene@...
hhjgreene
Dec 31, 2011 8:42 am
I am so very sorry to hear this...Mureene          1  ________________________________ From: Msna1980 <Msna1980@...> To: Sent: Friday,...
23203
Charles D. Rhodes
jedimasterxp
Dec 24, 2011 1:09 am
Thanks Rich From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Rich Clingman Sent: 12/23/2011 11:00 AM To: MD-List@yahoogroups.com ...
23202
Rich Clingman
bachniv
Dec 23, 2011 6:59 pm
PLEASE DO NOT RESPOND TO THIS SCAM! Rich From: Msna1980 Sent: Friday, December 23, 2011 9:59 AM Subject: [MD-List] SAD NEWS!!!!!!!!!!! Am so sorry that i...
23200
Terri
imblueangel
Nov 15, 2011 9:01 pm
Nathan uses inline suction catheters. We get about 5 or 6 and they are each used for about a week unless there is a problem with it. They are completely ...
23199
John Herrmann
johnrancho
Nov 12, 2011 3:01 am
 Today when I called to order suction catheters from my medical supplier, they informed me that Medicare will only pay for 90 catheters a month. I used to get...
23198
Micheal Keen
devldude23
Nov 8, 2011 8:45 pm
Hello eveyone, It's me Michael Keen and I am wondering if you all could help us the 412 project and Charles knows that we are an new awarness DMD organization...
