Christian Institute on Disability Responds to New Health Care Bill (news release) Michael Keen, Spirit Roller Ministries-Director Commissioned Minister Joni...
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Msna1980@...
Nov 3, 2009 3:18 pm
Hi Estevao, Could you please tell us the settings on your ventilator that you use when using the ComfortLite 2 CPAP with direct interface mask? Day or Night??...
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Estevão Augusto
estevaosa
Nov 3, 2009 4:24 pm
hi. I use BIBap day and night with 28 of ipap, 4 of epap and 19 of RR. But you should ask your PT 1st. 2009/11/3 <Msna1980@...> ... -- Estevão Augusto ...
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Msna1980@...
Nov 3, 2009 10:03 pm
Thank you. Matt uses volumme ventilation not BIBAP,so will check with the pulmonaligist. ... From: Estevão Augusto <esaugusto@...> To:...
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Estevão Augusto
estevaosa
Nov 4, 2009 12:05 am
you're welcome. ok. 2009/11/3 <Msna1980@...> ... -- Estevão Augusto http://filmescopio.blogspot.com/ http://livro-esoterico.blogspot.com/ ...
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Lilieth Martinez
lilieth70
Nov 5, 2009 7:52 pm
Hi Charles,  I have a question for you. We were debating a lot about the operation but we have jointly decided not to move forward with it.  Lately, our...
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Adele
navymom2josh
Nov 5, 2009 8:11 pm
I have heard of some people using a body brace to try and slow down the scoliosis, but no one that I am aware of, have had much success with them. A young man...
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lilieth70@...
lilieth70
Nov 5, 2009 8:58 pm
Thank you Adele. I will talk to his orthopedic and see what he suggest. Sent on the Sprint® Now Network from my BlackBerry® ... From: "Adele"...
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Charles Rhodes
jedimasterxp
Nov 5, 2009 9:51 pm
I’ve never used a brace so I don’t know if it would help. I actually have the opposite problem in bed, my back hurts when I lay flat so I sleep at about a...
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kaj48ar
Nov 6, 2009 1:38 am
Hi All, I just want to say thanks for all I have learned from this group and others. My grandson 13, DMD, has been sick with H1N1, type A flu and pneumonia ....
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Faye Sears
daughteroffa...
Nov 6, 2009 1:45 am
Praise God your grandson is home and alot better. What does it mean to incubate him? All I can think of is when little eggs are in an incubator waiting to be...
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Charles Rhodes
jedimasterxp
Nov 6, 2009 2:27 am
Perhaps "intubate";? From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Faye Sears Sent: Thursday, November 05, 2009 5:45 PM To:...
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Adele
navymom2josh
Nov 6, 2009 4:17 am
I'm so glad that the doctors took you seriously and read the material you provided them. I am also so glad that your son is doing much better. Adele _____ ...
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hhjgreene@...
hhjgreene
Nov 6, 2009 4:56 am
My grandson had it, it wasn't a bad case but the Eric got a low grade fever and conjested, I called the doctor asap and he put him right on tama flu, mucinex...
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kaj48ar
Nov 7, 2009 2:02 am
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kaj48ar
Nov 7, 2009 2:04 am
What is a "little pearl "...
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Faye Sears
daughteroffa...
Nov 7, 2009 10:37 pm
Someone else wrote in and told me too. I had to ask as I just could not figure out what it could be. How is your son today? Faye ... From: kaj48ar To:...
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Estevão Augusto
estevaosa
Nov 10, 2009 4:58 pm
http://www.kake.com/home/headlines/69538137.html MD Breakthrough A local man who has suffered with muscular dystrophy for his entire life says he has found a...
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Estevão Augusto
estevaosa
Nov 10, 2009 7:05 pm
the boy's site / página do rapaz: http://www.myspace.com/ryanbenton ... -- Estevão Augusto http://filmescopio.blogspot.com/ ...
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Kmmx2@...
Nov 10, 2009 7:21 pm
2 good 2b true. ... From: Estevão Augusto <esaugusto@...> To: md-list@yahoogroups.com; dmdpioneers@yahoogroups.com; distrofia_muscular...
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Charles Rhodes
jedimasterxp
Nov 11, 2009 1:49 am
I think this is irresponsible journalism at best. From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Kmmx2@... Sent: Tuesday,...
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stbrigid@...
reina_kelly
Nov 11, 2009 2:05 am
Thats what I am thinking wouldn't it be front page news here if it were working??? I know we all grasp at straws..and try to keep hope alive...Reina ... From:...
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sridhar ramachandra
smramachandra
Nov 11, 2009 8:24 pm
I agree. I have seen this several times. If really true, the MDA or Parent Project people must give an opinion on this. Only then can we believe. Ramachandra ...
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Michel Beaudet
macmike_1998
Nov 11, 2009 10:28 pm
2009/11/11 - Nr. 1 # 1 - ENG: Amsterdam Molecular Therapeutics (AMT) Successful in Preclinical Treatment of DMD AMSTERDAM, November 11 /PRNewswire-FirstCall/...
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Brian Denger
adenger
Nov 11, 2009 11:55 pm
Dear all, I am running again on behalf of my sons Matthew and Patrick and all boys affected by DMD. I will run the Disney Marathon (26.2 miles) on January...
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greg evans
gregevans01@...
Nov 12, 2009 1:03 am
Great news. When can I bring our son to get healed? thank you Greg _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Michel...
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Kmmx2@...
Nov 12, 2009 12:43 pm
2 good 2b true, again........ ... From: greg evans <gregevans01@...> To: MD-List@yahoogroups.com Sent: Wed, Nov 11, 2009 8:02 pm Subject: RE: [MD-List]...
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Kmmx2@...
Nov 12, 2009 12:45 pm
Sounds like that dr in Memphis.......doing trials that he and only he believes in..... ... From: stbrigid@... To: MD-List@yahoogroups.com Sent: Tue, Nov...
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JoyceGlass@...
Nov 12, 2009 2:41 pm
In a message dated 11/12/2009 7:44:23 A.M. Eastern Standard Time, Kmmx2@... writes: 2 good 2b true, again.......2 ... From: greg evans...
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Estevão Augusto
estevaosa
Nov 12, 2009 5:07 pm
MD Breakthrough - What to Make of It * Posted by Pat Furlong on November 10, 2009 at 4:28pm Whenever I hear the words "MD Breakthrough', my heart skips a beat....
