Dear Everyone - I just posted a news release concerning exon-skipping clinical trials for dmd on my blog. www.genmedlabmom.blogspot.com or see below thanks! ...
21901
Brenda
bshanson68
Mar 2, 2009 2:08 am
Hi everyone, I will start out with a quote I have been focusing on all week. It has been an okay week but one that I need to focus on my health.”I am ...
21902
Pirate Tigger
tiggers2000us
Mar 2, 2009 3:44 pm
Good Monday morning all. :) Hope yuo had a good nights sleep and staying warm and had a good weekend. :) Very nice weekend here and temp up to 80 on the...
21903
Lanae Squires
freckeledscr...
Mar 2, 2009 6:50 pm
Hi, I am considering going to a sleep specialist to discuss my sleeping habbits. I have noticed a large increase in my sleeping at least 10 hours, usually 12...
21904
Adele
navymom2josh
Mar 2, 2009 8:07 pm
Lanae; Sound like a little CO2 retention. That makes you feel tired in the am. Once you are up and about, your fine. This is what it sound like to me. ...
21905
Charles Rhodes
jedimasterxp
Mar 2, 2009 10:10 pm
I think I finally found the right BiPAP mask for me. I thought that mask was the ResMed Mirage Liberty however even it caused me skin breakdown. Previously,...
Hi all, My son is 7 and still mobile. He uses a chair or stroller only for longer distances. He has trouble getting into our car which is a small wagon We are...
21908
Susan
sleemiller1
Mar 4, 2009 2:01 pm
We have a son who is 11, uses a power wheelchair, & still relatively small so we adapted 2 vehicles w/ a lift that comes out the back & brings the chair...
21909
Adele
navymom2josh
Mar 4, 2009 2:22 pm
First. Are you the Art in DC? The average age that a boy stops walking, and is in the chair full time is around 11. Any type of van would work. Many of the...
21910
Brenda
bshanson68
Mar 4, 2009 4:34 pm
Hi all I’m back from the doctor and have almost 3 hours before my next class. So I have time to update you on what is going on. The truth is, I have no...
Susan, Thank you for your detailed note. This is exactly the kind of equipment I have been thinking of. I saw one of the swing out seats and thought that it...
21913
Susan
sleemiller1
Mar 5, 2009 9:41 pm
Hi Art, We will be in DC for a few days in April just to visit museums & such so if you wanted to see our van & lift in person, we could probably arrange...
21914
Adele
navymom2josh
Mar 5, 2009 9:52 pm
Art. Any question about vans, I would be happy to help you out. I've brought 2 vans so far. One was already equipment for a wheelchair and the second. I...
If i had to do it all over again i would have brought a rear entry mini van. You can park them any place. I have a 29 yo son with DMD and he hates riding in...
21917
Angelia Haynes
haynesra
Mar 8, 2009 2:22 pm
I completely agree, I love the rear entry vans, you never have to worry about where you going to park! We just purchased a Toyota Sienna from Freedom Motors...
21918
momdmd
imblueangel
Mar 8, 2009 10:44 pm
I keep bringing up this problem with rear entry, and really do need a solution because we have in the past had transportation services who used it. How do you...
21919
Angelia Haynes
haynesra
Mar 8, 2009 11:06 pm
Maybe it is the difference in the area we live. We are in South Carolina and have never had a problem. There is not a lot of parallel parking around here...
21920
momdmd
imblueangel
Mar 8, 2009 11:29 pm
Ty for trying. Every place we go it is not an issue but for our home. We don't have a garage or a drive way. It wouldn't really be worth buying a ramp since we...
21921
Brenda
bshanson68
Mar 9, 2009 1:03 am
Hi everyone: Another day, a lot more suction catheters used. At least I am using the full amount that I finally got approval to use a day. I get so happy...
21922
The Wrights
scrabbler55
Mar 9, 2009 1:28 am
Hi Terri, You're correct that, with a rear-entry van, our guys have to drive to a cut in the curb. This van would not be the best choice for people who park...
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Jeff Marsh
jcmarsh_usa
Mar 9, 2009 2:04 am
Hi Everyone, I need to replace my son's power chair and looking for suggestions. My son is 16 years old, slight spine curve, 240 LBS. Looking for raise , tilt,...
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Julia Williams Kodak
corneliascorner
Mar 9, 2009 2:10 am
I recently obtained a new chair and my insurance company sent me for a seating assessment with a physical therapist experienced in this area. She was...
21925
George Smith
gibsona40
Mar 9, 2009 7:50 am
We have rear entry, as do the transport services Alex uses. To get onto the curb, we and the transport services do one of the following: 1. Drive into a...
21926
George
gibsona40
Mar 9, 2009 7:58 am
My son has the Permobil Chairman 2k, a predecessor of the Permobil c500, with raise, tilt, recline and power leg rests, and my son loves it. The seating is...
21927
Susan
sleemiller1
Mar 9, 2009 12:19 pm
Where does your son play hockey? My son is on the Philadelphia PowerPlay. ... From: George To: MD-List@yahoogroups.com Sent: Monday, March 09, 2009 3:58 AM ...
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George
gibsona40
Mar 9, 2009 12:56 pm
He plays in a team in Berlin, Germany. He did play once in a very small tournament in Baltimore and there was a Philadelphia team there. I wonder if that was...
21929
Susan
sleemiller1
Mar 9, 2009 1:08 pm
Yes, our team was there. Liam only joined last year (he is turning 11 this month) so he was not there. They are going to a tournament in NC this summer....
