MD-List : Messages : 21820-21849 of 22641

Pastor Mike,
Spirit Roller Ministries
www.spiritrollerministries.org
Office: 540-337-1540
Home: 540-941-8696
Cell:      540-448-3824
Fax:       540-932-8933
Communications Director,
Good Shepherd Church of the Nazarene
www.goodshepherdnaz.org
Office: 540-337-1540
Cell:     540-448-3824
pastormike@...

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21848

From: "Pirate Tigger" <greg1960@...>
Date: Fri Jan 30, 2009 7:47 pm
Subject: hello

tiggers2000us

Offline

hello, just a fast note to say i am off to the hospital and will be back with luck very soon in a few hours as i get vip care there when my sister is there and the lab works very fast most times. Mom is taking Brian to meet me there as Rosa is not feeling up to going and need someone with me there. Doctors office called to tell me i have to come in Monday after noon and to get all my testing and stuff done today and the way i feel and no my body they will not keep me today , just a end and out testing and treatment again, fun fun lol

take care all and have a good after noon and weekend :)

*Hugs*

Greg

Reply | Forward | Messages in this Topic (114)

#21847

From: "momdmd" <momdmd@...>
Date: Fri Jan 30, 2009 1:09 pm
Subject: Re: Hello all,

imblueangel

Offline

I will try lol. Christian is using a loaner chair, it's the seat I have been wanting for them for a long time and he is having a complete fit about it. He only tolerated it for about an hour last night before he asked to be put in bed and said he wasn't going to school today. I tried putting his roho seat on it but of course that was out because the type of chair just isn't right. I mean, it's more of a schooter then a wheelchair and the seat is leather like a car seat so that would have slipped right off. It nearly did when I was trying to make him sit in it to go to school before I decided just to let him stay home. After the fact I realized I had a sheepskin car seat cover that I bought for Nathan's chair but no one puts it back on when they wash it that we could have used but like I said it was after the fact. Part of it is that the seat is too low but I can't figure out how to change it higher. It still doesn't make me happier that he refused to go but that he tried so hard not to be picked up and not to be put in the chair (he has never done this before) reinforced that the seat is genuinely hurting him and he can't tilt the chair in order to releave the pressure, all he can do is recline the back. In fact Nathan warned me that he was having issues and had to put his feet off the foot rest in an effort to stretch out a bit and releave the discomfort and that was within an hour of using it. Still, if there is an emergancy I can still get him out of the house. There was of course the added issue of them being able to safely secure it on the bus.

I was just thinking that my son's SSI is federal but it is easy to forget and think it comes from the state. I even had to correct that in my own email. Christian gets most of his through his dads SSD now but their Medicaid and food stamps are applied for seperately. We have a card now instead of paper foodstamps (states probably do) but never cash as they are trying to make sure it is only used for food.

Hope today is not the bad bad friday you feared. :)

(((((((GREG)))))))

Terri

----- Original Message -----

From: Pirate Tigger

To: MD-List@yahoogroups.com

Sent: Thursday, January 29, 2009 2:03 PM

Subject: Re: [MD-List] Hello all,

The state is short of money, but not out of money without a budget and just have to make cuts where they can. The state pays the feds 233.00 a month of my ssi and this counts as food stamp also, so we get our food stamps as cash in my monthy SSI payment. But i fould out that the state is not going to pay the feds the monthly payment, but the feds will pay out of the next 2 months and the state has to pay them back later. So will not be as bad as i was thinking and Rosa will give me more money when she gets her extra pay next month.

Hope you having a good day hun :)

*Hugs*

Greg

http://groups.yahoo.com/group/TiggersPirateBootyPlayhouse/

----- Original Message -----

From: momdmd

To: MD-List@yahoogroups.com

Sent: Wednesday, January 28, 2009 9:36 PM

Subject: Re: [MD-List] Hello all,

My son's aid said they are having a lot of problems but are you thinking the state is just going to shut down and not have any services? How can they cut off SSI? SSI is a federal program right? I mean, I know that the different states and probably cities have different amounts but it is still a Federal program right?

Terri

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Wednesday, January 28, 2009 11:03 PM

Subject: [MD-List] Hello all,

Hello all,

     Hope you are doing good and had a good day. Doing ok here and hanging in there and staying happy and upbeat. I have to go to the hospital for testing in the next day or two and most likely Friday as i have to be here for my new bed and get the new controler for this power chair. Had a good day over all and getting ready to watch Lost. My mom messed her leg up again at Wal Mart and not getting around much and stayed home tonight and is taking off from work and hope she is coming in the morning to take Rosa to work and Rosa to get my meds and somethings from town when Rosa gets off work.

   My mom did call and after testing my niece's baby she is carrying has water on the brian and other things wrong and no Inc. at all right now so not good she luck with this upcoming baby and she is going to put in for Medi-cal now and see what happens. So having MD with this baby is not the big worry for us this time.

     Getting ready for bad bad Friday and waiting to see howe much the state cuts off my SSI and how short i am. Going to have to get out there this weekend to raise money for us MD people here in town just for us to make it.

   Hope you have a great rest of your week. :)    not going to worry about stuff and enjoy what we have here and be thankful for what help i get and that i have a warm, dry house food and more or less good health. lol   I am breathing a lot better today :)

*Hugs*

Greg

#21846

From: "Pirate Tigger" <greg1960@...>
Date: Thu Jan 29, 2009 7:03 pm
Subject: Re: Hello all,

tiggers2000us

Offline

http://groups.yahoo.com/group/TiggersPirateBootyPlayhouse/

The state is short of money, but not out of money without a budget and just have to make cuts where they can. The state pays the feds 233.00 a month of my ssi and this counts as food stamp also, so we get our food stamps as cash in my monthy SSI payment. But i fould out that the state is not going to pay the feds the monthly payment, but the feds will pay out of the next 2 months and the state has to pay them back later. So will not be as bad as i was thinking and Rosa will give me more money when she gets her extra pay next month.

Hope you having a good day hun :)

*Hugs*

Greg

----- Original Message -----

From: momdmd

To: MD-List@yahoogroups.com

Sent: Wednesday, January 28, 2009 9:36 PM

Subject: Re: [MD-List] Hello all,

My son's aid said they are having a lot of problems but are you thinking the state is just going to shut down and not have any services? How can they cut off SSI? SSI is a federal program right? I mean, I know that the different states and probably cities have different amounts but it is still a Federal program right?

Terri

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Wednesday, January 28, 2009 11:03 PM

Subject: [MD-List] Hello all,

Hello all,

     Hope you are doing good and had a good day. Doing ok here and hanging in there and staying happy and upbeat. I have to go to the hospital for testing in the next day or two and most likely Friday as i have to be here for my new bed and get the new controler for this power chair. Had a good day over all and getting ready to watch Lost. My mom messed her leg up again at Wal Mart and not getting around much and stayed home tonight and is taking off from work and hope she is coming in the morning to take Rosa to work and Rosa to get my meds and somethings from town when Rosa gets off work.

   My mom did call and after testing my niece's baby she is carrying has water on the brian and other things wrong and no Inc. at all right now so not good she luck with this upcoming baby and she is going to put in for Medi-cal now and see what happens. So having MD with this baby is not the big worry for us this time.

     Getting ready for bad bad Friday and waiting to see howe much the state cuts off my SSI and how short i am. Going to have to get out there this weekend to raise money for us MD people here in town just for us to make it.

   Hope you have a great rest of your week. :)    not going to worry about stuff and enjoy what we have here and be thankful for what help i get and that i have a warm, dry house food and more or less good health. lol   I am breathing a lot better today :)

*Hugs*

Greg

#21845

From: "Michael Keen" <mkeen@...>
Date: Thu Jan 29, 2009 4:55 pm
Subject: jan 29 blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21844

From: "momdmd" <momdmd@...>
Date: Thu Jan 29, 2009 5:54 am
Subject: Re: Hello all,

imblueangel

Offline

I'm not sure if this helps any, but there is information about the upcoming budget proposal and details on the California site ( http://www.ebudget.ca.gov/BudgetSummary/BSS/BSS.html ) It may give you an iea what they are proposing and also a Governors message (which you have probably seen)

I hope all goes well.

Terri

----- Original Message -----

From: momdmd

To: MD-List@yahoogroups.com

Sent: Thursday, January 29, 2009 12:36 AM

Subject: Re: [MD-List] Hello all,

My son's aid said they are having a lot of problems but are you thinking the state is just going to shut down and not have any services? How can they cut off SSI? SSI is a federal program right? I mean, I know that the different states and probably cities have different amounts but it is still a Federal program right?

Terri

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Wednesday, January 28, 2009 11:03 PM

Subject: [MD-List] Hello all,

Hello all,

     Hope you are doing good and had a good day. Doing ok here and hanging in there and staying happy and upbeat. I have to go to the hospital for testing in the next day or two and most likely Friday as i have to be here for my new bed and get the new controler for this power chair. Had a good day over all and getting ready to watch Lost. My mom messed her leg up again at Wal Mart and not getting around much and stayed home tonight and is taking off from work and hope she is coming in the morning to take Rosa to work and Rosa to get my meds and somethings from town when Rosa gets off work.

   My mom did call and after testing my niece's baby she is carrying has water on the brian and other things wrong and no Inc. at all right now so not good she luck with this upcoming baby and she is going to put in for Medi-cal now and see what happens. So having MD with this baby is not the big worry for us this time.

     Getting ready for bad bad Friday and waiting to see howe much the state cuts off my SSI and how short i am. Going to have to get out there this weekend to raise money for us MD people here in town just for us to make it.

   Hope you have a great rest of your week. :)    not going to worry about stuff and enjoy what we have here and be thankful for what help i get and that i have a warm, dry house food and more or less good health. lol   I am breathing a lot better today :)

*Hugs*

Greg

#21843

From: "momdmd" <momdmd@...>
Date: Thu Jan 29, 2009 5:36 am
Subject: Re: Hello all,

imblueangel

Offline

My son's aid said they are having a lot of problems but are you thinking the state is just going to shut down and not have any services? How can they cut off SSI? SSI is a federal program right? I mean, I know that the different states and probably cities have different amounts but it is still a Federal program right?

Terri

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Wednesday, January 28, 2009 11:03 PM

Subject: [MD-List] Hello all,

Hello all,

     Hope you are doing good and had a good day. Doing ok here and hanging in there and staying happy and upbeat. I have to go to the hospital for testing in the next day or two and most likely Friday as i have to be here for my new bed and get the new controler for this power chair. Had a good day over all and getting ready to watch Lost. My mom messed her leg up again at Wal Mart and not getting around much and stayed home tonight and is taking off from work and hope she is coming in the morning to take Rosa to work and Rosa to get my meds and somethings from town when Rosa gets off work.

   My mom did call and after testing my niece's baby she is carrying has water on the brian and other things wrong and no Inc. at all right now so not good she luck with this upcoming baby and she is going to put in for Medi-cal now and see what happens. So having MD with this baby is not the big worry for us this time.

     Getting ready for bad bad Friday and waiting to see howe much the state cuts off my SSI and how short i am. Going to have to get out there this weekend to raise money for us MD people here in town just for us to make it.

   Hope you have a great rest of your week. :)    not going to worry about stuff and enjoy what we have here and be thankful for what help i get and that i have a warm, dry house food and more or less good health. lol   I am breathing a lot better today :)

*Hugs*

Greg

#21842

From: "Pirate Tigger" <greg1960@...>
Date: Thu Jan 29, 2009 4:03 am
Subject: Hello all,

tiggers2000us

Offline

Hello all,

Hope you are doing good and had a good day. Doing ok here and hanging in there and staying happy and upbeat. I have to go to the hospital for testing in the next day or two and most likely Friday as i have to be here for my new bed and get the new controler for this power chair. Had a good day over all and getting ready to watch Lost. My mom messed her leg up again at Wal Mart and not getting around much and stayed home tonight and is taking off from work and hope she is coming in the morning to take Rosa to work and Rosa to get my meds and somethings from town when Rosa gets off work.

My mom did call and after testing my niece's baby she is carrying has water on the brian and other things wrong and no Inc. at all right now so not good she luck with this upcoming baby and she is going to put in for Medi-cal now and see what happens. So having MD with this baby is not the big worry for us this time.

Getting ready for bad bad Friday and waiting to see howe much the state cuts off my SSI and how short i am. Going to have to get out there this weekend to raise money for us MD people here in town just for us to make it.

Hope you have a great rest of your week. :) not going to worry about stuff and enjoy what we have here and be thankful for what help i get and that i have a warm, dry house food and more or less good health. lol I am breathing a lot better today :)

*Hugs*

Greg

#21841

From: Brenda <BracinKnee@...>
Date: Thu Jan 29, 2009 12:52 am
Subject: MJ Updates - Snow days, Slick Spots & Stupid People

bshanson68

Offline

Well, it is only Wednesday so you are getting an early update this week, but what a week it has already been. I did go up to Grandma’s last weekend to celebrate my birthday. We got takeout from the airport and had cheesecake for dessert. You can watch a montage here http://www.onetruemedia.com/otm_site/view_shared?p=7ebdfa1570d6288d5ab70f&skin_id=1605&pid=624&utm_source=otm&utm_medium=email I got my presents from everyone – great gifts everyone – and got my phone book to do my resource notebook for my Rehab notebook. Strange, I know, but you know me, a little bent but strange but essentially normal.

I am starting to feel a little better thankfully. Knocking on wood, I survived the flu with no hospital. It was a year ago that I was admitted to the hospital for my LONG, LONG stay. Something I do not ever want to do again. It just really leaves a =E 2bad taste” in my mouth and many many bad, bad memories. Thank God it is over and I learned a lot and it will never happen again.

To read more, Please visit http://www.caringbridge.org/visit/mjpurk

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#21840

From: "Michael Keen" <mkeen@...>
Date: Wed Jan 28, 2009 5:06 pm
Subject: jan 28 blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21839

From: "The Wrights" <mjib@...>
Date: Tue Jan 27, 2009 9:02 pm
Subject: Re: jan 27 blog sorry guys

scrabbler55

Offline

Thanks for your entertaining, and informative, blog, Michael. It is good to remind people of the dangers of carbon monoxide. We have a CO detector in our home, and it went off for the first time on New Year's Eve. Why? Because we had a long fondue dinner and I guess even that little flame, over a few hours, made a significant change in our breathing environment. Who would have expected that?

Take care and enjoy your hot chocolate and gorgeous winter scenery!

~ Johanna

#21838

From: "Michael Keen" <mkeen@...>
Date: Tue Jan 27, 2009 7:46 pm
Subject: jan 27 blog sorry guys

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21837

From: "Michael Keen" <mkeen@...>
Date: Tue Jan 27, 2009 7:43 pm
Subject: Jan 27 blog

devldude23

Offline

www.spritroller,blogspot.com

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21836

From: "Pirate Tigger" <greg1960@...>
Date: Tue Jan 27, 2009 3:18 pm
Subject: Re: Monday :) High Noon

tiggers2000us

Offline

Hello Johanna,

I am doing better today so far and trying hard to stay warm and

not run the main heat much to save on gas. So hoping i do not have

to go to the ER. I do need to go by Friday for blood work and testing

before i go to the doctor Monday. Not sure i can make it now with the

cold air and we can't use dial a ride until i get all the paper work done

and get my ID for the dial a ride vans.

We are stocking up as things are getting bad and just going to get worse

and with out a lot of money we need to start now and build up as we can

and with the state going to cut my SSI until we get a budget we are going

to be short of stuff soon. Good news is Rosa's pay can't be cut off or paid

with a IOU like they want to do for a lot of people here. Too many druggies

and mexicans around here so need to stock up on a few weapons again.

Wish we could have got some of the ones my mom's bf had when he died.

In California now days you have to be stocked up and be ready for what you

can be.

Hope you have a good week hun :)

*Hugs*

Greg

----- Original Message -----

From: The Wrights

To: MD-List@yahoogroups.com

Sent: Monday, January 26, 2009 2:22 PM

Subject: Re: [MD-List] Monday :) High Noon

Hi Greg,

Good luck with your hospital visit. You might want to call the bed/wheelchair guys before you go in, so as not to miss them.

I have a couple of questions: what are you stockpiling up for, and what is with the weapons???

~ Johanna

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Monday, January 26, 2009 12:35 PM

Subject: [MD-List] Monday :) High Noon

Hello all,

    Hope you had a great weekend and having a good day today. We had a good weekend here and got out on Saturday to Wal Mart and the weather was cold and windy on Sunday so had to stay in and i am not doing good with my breathing at all and my left lung is hurting real bad and just about sure i am filling up with fluid and only bad when i am up out of bed and breathing harder or talking so very odd this time as i am not coughing (sp?) at night in bed and was feeling good when i got up, so not sure what is going on this time, but other then the cough and lungs hurting and some drainage not have other signs of being real sick. Last time i had real bad pain that would not stop at the end of my rib cage on the right lower lobe side and went to the ER in the middle of the night as always go when i have chest pains not stopping. I should try and got to the doctor soon or wait until my sister is back to work in a day or so and go to the ER. Will try and get her to stop by and see what she thinks i should do. I just got a call today and getting the rest of the parts for my bed and the new joy stick/ controler for the new power chair and lucky for us we know to hit the controp just right to get it to work when it stops now, now i have to hope the new guy can put the new one in right and rewrap the wires right, if not we have back up parts and wire wrap. So hope i am not in the hospital when they come on Thursday to do the work. Most likely we will call 911 for the run to the ER like always lol, i should have a fast pass or something as much as we use the ER now lol, but is better now that my sister works the ER all the time and last time i got my own room in the ER with TV and the good doctor was working that day. I think i will ask my sister what doctor is working and go then and get my heart test done also when i go as could be fluid around the heart and lungs. I hate feeling like this as i think i went out too soon before i was all the way over my cold as the cold/cool air gets to me real bad and has me coughing real bad.

   Well today is going good and Rosa is working a long day today, first time in a long time and then going to make the store trip Brian and i could not make Sunday and she was not in the mood to do. My mom and sisters family had a good time this weekend going to Knotts Berry Farm and the Pirate Dinner Show and i got a cool train from Knotts and cool stuff from the Pirate show. Still have to download and look at mom's pictures of the trip. Mom got out of one of the train cars wrong and hurt her leg and foot and took today off work and came by to give me my gifts and was doing good and not much pain i guess. She has to be more careful being almost 72 and still working.

   Been watching my news as much as i can this weekend and today and talking over what is going on with friends and not seeing much of a way out for us now and just sitting in to enjoy what time we have left and we are stocking up with water, food, warming stuff and outside/indoor heat and if the state is not cutting off all SSI state part of the payments on Friday i will stock up more and we are working on a saving fund and will be getting our weapons soon, found some good 22's that fold up in there own case and fit in the one of the back packs here. I also have a full first aid/ medical kit to get us by and have a good stock on my meds in case Medi-cal cut off buying them until we get a budget here in California. So doing what we can now and coming up with plans and where or who to get help from , for bills, food and what not. My on line work is done now as no one is buying new stuff and even hard times for writers now and even my stocks took a good hit, but some have come back up nice and still worth something lol. I do not ask for a lot and we live as cheap of a place as you can and still be close to food and shopping as we can be here in town. Rosa is going to get more hours for me as my needs have gone up on this last review, just Brian messed up a bit and did know how much time i needed for help with grooming at night and brushing my teeth so that part had gone down some , but ended up i think with like 30 point something more hours for 200 hours a month and did the math and i have 6.66666 hours of paid care a day lol, bad number. They do a lot more but only so much they are going to pay for and wish i was back in 82-86 or 94-95 when i was making tons of money and would pay them more for help. But the good days are over and so wish pogs had stayed big with the kids as i could make 30,000 on a good month. Wal Mart even had me run games there and let me sell my stuff, did like almost 7,000 in 4 hours there and ran out of stock on would have sold more.

Well this is a book and i was just planning a update lol. Thanks to all my real on line friends who sent real cards, post cards and gift for my birthday this month, was a nice shock and made what was looking like a bad birthday one of the best i have had :)

   If my sends and emails stop i will be in the hospital and hope i can take a lap top and get the good wireless hook up room in the ER or hospital room. :)    take care and have a great week my friends. :)

Greg

Reply | Forward | Messages in this Topic (3)

#21835

From: "The Wrights" <mjib@...>
Date: Mon Jan 26, 2009 10:22 pm
Subject: Re: Monday :) High Noon

scrabbler55

Offline

Hi Greg,

Good luck with your hospital visit. You might want to call the bed/wheelchair guys before you go in, so as not to miss them.

I have a couple of questions: what are you stockpiling up for, and what is with the weapons???

~ Johanna

----- Original Message -----

From: Pirate Tigger

To: Undisclosed-Recipient:;

Sent: Monday, January 26, 2009 12:35 PM

Subject: [MD-List] Monday :) High Noon

Hello all,

    Hope you had a great weekend and having a good day today. We had a good weekend here and got out on Saturday to Wal Mart and the weather was cold and windy on Sunday so had to stay in and i am not doing good with my breathing at all and my left lung is hurting real bad and just about sure i am filling up with fluid and only bad when i am up out of bed and breathing harder or talking so very odd this time as i am not coughing (sp?) at night in bed and was feeling good when i got up, so not sure what is going on this time, but other then the cough and lungs hurting and some drainage not have other signs of being real sick. Last time i had real bad pain that would not stop at the end of my rib cage on the right lower lobe side and went to the ER in the middle of the night as always go when i have chest pains not stopping. I should try and got to the doctor soon or wait until my sister is back to work in a day or so and go to the ER. Will try and get her to stop by and see what she thinks i should do. I just got a call today and getting the rest of the parts for my bed and the new joy stick/ controler for the new power chair and lucky for us we know to hit the controp just right to get it to work when it stops now, now i have to hope the new guy can put the new one in right and rewrap the wires right, if not we have back up parts and wire wrap. So hope i am not in the hospital when they come on Thursday to do the work. Most likely we will call 911 for the run to the ER like always lol, i should have a fast pass or something as much as we use the ER now lol, but is better now that my sister works the ER all the time and last time i got my own room in the ER with TV and the good doctor was working that day. I think i will ask my sister what doctor is working and go then and get my heart test done also when i go as could be fluid around the heart and lungs. I hate feeling like this as i think i went out too soon before i was all the way over my cold as the cold/cool air gets to me real bad and has me coughing real bad.

   Well today is going good and Rosa is working a long day today, first time in a long time and then going to make the store trip Brian and i could not make Sunday and she was not in the mood to do. My mom and sisters family had a good time this weekend going to Knotts Berry Farm and the Pirate Dinner Show and i got a cool train from Knotts and cool stuff from the Pirate show. Still have to download and look at mom's pictures of the trip. Mom got out of one of the train cars wrong and hurt her leg and foot and took today off work and came by to give me my gifts and was doing good and not much pain i guess. She has to be more careful being almost 72 and still working.

   Been watching my news as much as i can this weekend and today and talking over what is going on with friends and not seeing much of a way out for us now and just sitting in to enjoy what time we have left and we are stocking up with water, food, warming stuff and outside/indoor heat and if the state is not cutting off all SSI state part of the payments on Friday i will stock up more and we are working on a saving fund and will be getting our weapons soon, found some good 22's that fold up in there own case and fit in the one of the back packs here. I also have a full first aid/ medical kit to get us by and have a good stock on my meds in case Medi-cal cut off buying them until we get a budget here in California. So doing what we can now and coming up with plans and where or who to get help from , for bills, food and what not. My on line work is done now as no one is buying new stuff and even hard times for writers now and even my stocks took a good hit, but some have come back up nice and still worth something lol. I do not ask for a lot and we live as cheap of a place as you can and still be close to food and shopping as we can be here in town. Rosa is going to get more hours for me as my needs have gone up on this last review, just Brian messed up a bit and did know how much time i needed for help with grooming at night and brushing my teeth so that part had gone down some , but ended up i think with like 30 point something more hours for 200 hours a month and did the math and i have 6.66666 hours of paid care a day lol, bad number. They do a lot more but only so much they are going to pay for and wish i was back in 82-86 or 94-95 when i was making tons of money and would pay them more for help. But the good days are over and so wish pogs had stayed big with the kids as i could make 30,000 on a good month. Wal Mart even had me run games there and let me sell my stuff, did like almost 7,000 in 4 hours there and ran out of stock on would have sold more.

Well this is a book and i was just planning a update lol. Thanks to all my real on line friends who sent real cards, post cards and gift for my birthday this month, was a nice shock and made what was looking like a bad birthday one of the best i have had :)

   If my sends and emails stop i will be in the hospital and hope i can take a lap top and get the good wireless hook up room in the ER or hospital room. :)    take care and have a great week my friends. :)

Greg

Reply | Forward | Messages in this Topic (3)

#21834

From: "Michael Keen" <mkeen@...>
Date: Mon Jan 26, 2009 9:50 pm
Subject: jan 26 blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21833

From: "Pirate Tigger" <greg1960@...>
Date: Mon Jan 26, 2009 8:35 pm
Subject: Monday :) High Noon

tiggers2000us

Offline

Hello all,

Hope you had a great weekend and having a good day today. We had a good weekend here and got out on Saturday to Wal Mart and the weather was cold and windy on Sunday so had to stay in and i am not doing good with my breathing at all and my left lung is hurting real bad and just about sure i am filling up with fluid and only bad when i am up out of bed and breathing harder or talking so very odd this time as i am not coughing (sp?) at night in bed and was feeling good when i got up, so not sure what is going on this time, but other then the cough and lungs hurting and some drainage not have other signs of being real sick. Last time i had real bad pain that would not stop at the end of my rib cage on the right lower lobe side and went to the ER in the middle of the night as always go when i have chest pains not stopping. I should try and got to the doctor soon or wait until my sister is back to work in a day or so and go to the ER. Will try and get her to stop by and see what she thinks i should do. I just got a call today and getting the rest of the parts for my bed and the new joy stick/ controler for the new power chair and lucky for us we know to hit the controp just right to get it to work when it stops now, now i have to hope the new guy can put the new one in right and rewrap the wires right, if not we have back up parts and wire wrap. So hope i am not in the hospital when they come on Thursday to do the work. Most likely we will call 911 for the run to the ER like always lol, i should have a fast pass or something as much as we use the ER now lol, but is better now that my sister works the ER all the time and last time i got my own room in the ER with TV and the good doctor was working that day. I think i will ask my sister what doctor is working and go then and get my heart test done also when i go as could be fluid around the heart and lungs. I hate feeling like this as i think i went out too soon before i was all the way over my cold as the cold/cool air gets to me real bad and has me coughing real bad.

Well today is going good and Rosa is working a long day today, first time in a long time and then going to make the store trip Brian and i could not make Sunday and she was not in the mood to do. My mom and sisters family had a good time this weekend going to Knotts Berry Farm and the Pirate Dinner Show and i got a cool train from Knotts and cool stuff from the Pirate show. Still have to download and look at mom's pictures of the trip. Mom got out of one of the train cars wrong and hurt her leg and foot and took today off work and came by to give me my gifts and was doing good and not much pain i guess. She has to be more careful being almost 72 and still working.

Been watching my news as much as i can this weekend and today and talking over what is going on with friends and not seeing much of a way out for us now and just sitting in to enjoy what time we have left and we are stocking up with water, food, warming stuff and outside/indoor heat and if the state is not cutting off all SSI state part of the payments on Friday i will stock up more and we are working on a saving fund and will be getting our weapons soon, found some good 22's that fold up in there own case and fit in the one of the back packs here. I also have a full first aid/ medical kit to get us by and have a good stock on my meds in case Medi-cal cut off buying them until we get a budget here in California. So doing what we can now and coming up with plans and where or who to get help from , for bills, food and what not. My on line work is done now as no one is buying new stuff and even hard times for writers now and even my stocks took a good hit, but some have come back up nice and still worth something lol. I do not ask for a lot and we live as cheap of a place as you can and still be close to food and shopping as we can be here in town. Rosa is going to get more hours for me as my needs have gone up on this last review, just Brian messed up a bit and did know how much time i needed for help with grooming at night and brushing my teeth so that part had gone down some , but ended up i think with like 30 point something more hours for 200 hours a month and did the math and i have 6.66666 hours of paid care a day lol, bad number. They do a lot more but only so much they are going to pay for and wish i was back in 82-86 or 94-95 when i was making tons of money and would pay them more for help. But the good days are over and so wish pogs had stayed big with the kids as i could make 30,000 on a good month. Wal Mart even had me run games there and let me sell my stuff, did like almost 7,000 in 4 hours there and ran out of stock on would have sold more.

Well this is a book and i was just planning a update lol. Thanks to all my real on line friends who sent real cards, post cards and gift for my birthday this month, was a nice shock and made what was looking like a bad birthday one of the best i have had :)

If my sends and emails stop i will be in the hospital and hope i can take a lap top and get the good wireless hook up room in the ER or hospital room. :) take care and have a great week my friends. :)

Greg

Reply | Forward | Messages in this Topic (3)

#21832

From: <stbrigid@...>
Date: Sun Jan 25, 2009 11:02 pm
Subject: Re: jan 25th blog

reina_kelly

Offline

Michael...I enjoyed your blog today..was your Mom from WV? I grew up not too far from Bradshaw and My husbands uncle was a minister there ,he died some yrs. ago but his name was Carl Kelly..small world eh? coulda been his church..of course there is more than one in Bradshaw..I still have some relatives there...Reina

----- Original Message -----

From: Michael Keen

To: Ssisson78@... ; Violet4u0324@... ; Scott F. Sands ; sawyersbuses@... ; Pastor Charles Perkins ; npventsupport@yahoogroups.com ; niki shumate ; MD-List@yahoogroups.com ; Mary Ellen VanBelkum ; kroberson@... ; dmdpioneers@yahoogroups.com ; Diane.Gilbert@... ; Clifton, William ; captcurttt@... ; Beverly Robinson

Sent: Sunday, January 25, 2009 2:56 PM

Subject: [MD-List] jan 25th blog

www.spritroller.blogspot.com

Pastor Mike,
Spirit Roller Ministries
www.spiritrollerministries.org
Office: 540-337-1540
Home: 540-941-8696
Cell:      540-448-3824
Fax:       540-932-8933
Communications Director,
Good Shepherd Church of the Nazarene
www.goodshepherdnaz.org
Office: 540-337-1540
Cell:     540-448-3824
pastormike@goodshepherdnaz.org

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21831

From: "Michael Keen" <mkeen@...>
Date: Sun Jan 25, 2009 7:56 pm
Subject: jan 25th blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21830

From: "Pirate Tigger" <greg1960@...>
Date: Sat Jan 24, 2009 10:32 pm
Subject: Re: jan 24th blog

tiggers2000us

Offline

Enjoy reading your blog. Kepp up the good work :)

Greg

----- Original Message -----

From: Michael Keen

To: Violet4u0324@... ; toman2be@... ; Ssisson78@... ; sawyersbuses@... ; npventsupport@yahoogroups.com ; niki shumate ; MD-List@yahoogroups.com ; Leigh Ladd ; kroberson@... ; Donna Watson ; dmdpioneers@yahoogroups.com ; Diane.Gilbert@... ; Clifton, William ; Cassie Ewald ; captcurttt@... ; Bower, Paige {PBG} ; Beverly Robinson ; Andrew VanBelkum

Sent: Saturday, January 24, 2009 10:47 AM

Subject: [MD-List] jan 24th blog

www.spritroller.blogspot.com

Pastor Mike,
Spirit Roller Ministries
www.spiritrollerministries.org
Office: 540-337-1540
Home: 540-941-8696
Cell:      540-448-3824
Fax:       540-932-8933
Communications Director,
Good Shepherd Church of the Nazarene
www.goodshepherdnaz.org
Office: 540-337-1540
Cell:     540-448-3824
pastormike@goodshepherdnaz.org

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21829

From: "Michael Keen" <mkeen@...>
Date: Sat Jan 24, 2009 6:47 pm
Subject: jan 24th blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21828

From: hhjgreene@...
Date: Sat Jan 24, 2009 6:24 am
Subject: Re: Mikes Rant

hhjgreene

Offline

Mike,

I agree with Reina!

--- On Fri, 1/16/09, stbrigid@... <stbrigid@...> wrote:

From: stbrigid@... <stbrigid@...>
Subject: [MD-List] Mikes Rant
To: MD-List@yahoogroups.com
Date: Friday, January 16, 2009, 7:21 PM

Sorry Mike...couldn' t disagree with you more..

Believe it or not most parents do know who has the disease.

I know as a mother i could almost literally feel everything my children were hurting from and I can tell the mothers on this list are the same ..

Having spent over half my life in hospitals and rehab centers I have encountered many different parents and the majority were sacrificing their own lives to try to help their children.

Most of them were prayer warriors too.

My son is 41 now and has been on a vent for almost 20 yrs. and he would tell you the same.

Reina

----- Original Message -----

From: Michael Keen

To: MD-List@yahoogroups .com

Sent: Friday, January 16, 2009 6:06 PM

Subject: [SPAM]Re: [MD-List] ode to the ignored pointers

I think parents forget who really has this disease.   It's a heck of a thing to be so ignored sometimes. I don't mean to be ill mannered about it but how do they think we have lived so long with this despicable monster? Parents please listen, you think medicine is going to save your children. Hate to break to you guys, only God can save us.

Regards

Pastor Mike,
Spirit Roller Ministries
www.spiritrollermin istries.org
Office: 540-337-1540
Home: 540-941-8696
Cell:      540-448-3824
Fax:       540-932-8933
Communications Director
Good Shepherd Church of the Nazarene
www.goodshepherdnaz .org
Office: 540-337-1540
Cell:     540-448-3824
pastormike@goodshep herdnaz.org

"I can do all things through Christ which strengtheneth me."Philippians 4:13

Reply | Forward | Messages in this Topic (59)

#21827

From: Brenda <BracinKnee@...>
Date: Sat Jan 24, 2009 4:37 am
Subject: MJ Update - Giggles, Grants, & Guts

bshanson68

Offline

Hi everyone:

So, my week has been okay, enjoyed sleeping in and enjoying my rest, so that has been good. Monday, I slept in and enjoyed relaxing, reading homework for school and just doing nothing spectacular. Tuesday’s classes were okay. We discussed the Civil War and First Amendment, totally thrilling, can ’t you tell!! My afternoon class was okay, had to practice doing opening counseling sessions on others. It was okay, but hard to be serious and to try to get into the mood when you are asking your friend why they started in counseling or what was their favorite vacation…why was that your favorite vacation? Tell me about your favorite part? Just weird.

to see the rest of the update, please visit http://www.caringbridge.org/visit/mjpurk

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

#21826

From: mzmrize039@...
Date: Sat Jan 24, 2009 3:20 am
Subject: Re: Colonoscopy

dspatola418

Offline

I had a colonoscopy a few years ago. I was totally sedated for mine and had no adverse reactions. I would do this again without question if it meant finding something early enough to save my life and spend more time with my family. Good luck Julia. I hope all goes well.

Diana, CSS, diagnosed March 2007

-----Original Message-----
From: Julia Williams Kodak <jkodak@...>
To: MD-List: yahoogroups.com <MD-List@yahoogroups.com>
Sent: Wed, 21 Jan 2009 10:24 am
Subject: [MD-List] Colonoscopy

I have LGMD with some restricted lung disease and heart involvement. I also have Rheumatoid Arthritis, among a few other things.
I just turned 50 and my primary physician scheduled me for a colonoscopy. I have no symptoms, just a 50th birthday present, I guess. I can't seem to get a peace about having this. The sedation is not aggressive I know, but it's still sedation. I'm picked and prodded on so much I just really hate to have it done if I don't have to. I'm usually not a wimp about these things but I just go through so much I hate to add to it if I don't have to. Any thoughts?

Thanks,
Julia

Which stars will make the biggest headlines in 2009? Get Hollywood news, celebrity photos and more with the PopEater Toolbar.

Reply | Forward | Messages in this Topic (10)

#21825

From: "swpea503" <swpea503@...>
Date: Fri Jan 23, 2009 6:40 pm
Subject: MY SON JUST HAD A CAST REMOVE!!!!!

swpea503

Offline

HELLO;


TO ALL,ADELE IM GLAD JASON IS DOING GOOD,AND TO ALL THE PARENTS WITH
CHILDREN WHO HAVE DMD,LET ME SAY WELCOME TO HOLLAND.WELL THE REASON FOR
MY E-MAIL IS TO ASK DO ANY ONE KNOW WHY AN ORTHOPEDEC DR. WILL INSIST
TO OPERATE A FOOT ON A DMD BOY IF WE ALL KNOW IS NOT GOING TO MAKE A
BIG DIFFERENT ON THEIR FEET,CAN UNDERSTAND WHY, WE SHOULD STRESS THEM
MORE THAN WHAT THEY ARE.MY SON HAD A CAST ON FOR 2WEEKS TO TRY AND
STRAIGHTEN HIS FOOT OUT,AND TODAY HE HAD IT REMOVE,THE DR.SAY TO ME
NOTHING CHANGE THAT I SHOULD THINK ABOUT SURGERY.



HELP!!!!ME YOUR OPINION IS GOOD TO HEAR
JACKIE MOTHER TO JOHNELL-9YEAR OLD(DMD)

#21824

From: "Michael Keen" <mkeen@...>
Date: Fri Jan 23, 2009 5:04 pm
Subject: jan 23 blog

devldude23

Offline

"I can do all things through Christ which strengtheneth me."Philippians 4:13

#21823

From: Julia Williams Kodak <jkodak@...>
Date: Fri Jan 23, 2009 2:22 am
Subject: Re: Colonoscopy (possible alternatives)

corneliascorner

Offline

Thank you!  Certanly something to discuss with the doctor.
Julia


---- JLMcNair1@... wrote:

=============

New Tests, New Future for  Doctors
_http://www.nytimes.com/2006/11/14/health/14pros.html?_r=1&ex=1173416400&en=1a
d85d58ec0ad8e7&ei=5070_
(http://www.nytimes.com/2006/11/14/health/14pros.html?_r=1&ex=1173416400&en=1ad8\
5d58ec0ad8e7&ei=5070)

Virtual Colonoscopy An Effective Screening  Alternative for Colorectal Cancer
_http://www.cancer.gov/clinicaltrials/results/virtual-colonoscopy1203_
(http://www.cancer.gov/clinicaltrials/results/virtual-colonoscopy1203)


Colonoscopy alternatives advance as advisories  change

_http://blog.cleveland.com/health/2008/10/colonoscopy_alternatives_advan.html_

(http://blog.cleveland.com/health/2008/10/colonoscopy_alternatives_advan.html)


In a message dated 1/21/2009 1:24:47 P.M. Eastern Standard Time,
jkodak@... writes:

I have LGMD  with some restricted lung disease and heart involvement. I also
have  Rheumatoid Arthritis, among a few other things.
I just turned 50 and my  primary physician scheduled me for a colonoscopy. I
have no symptoms, just a  50th birthday present, I guess. I can't seem to get
a peace about having this.  The sedation is not aggressive I know, but it's
still sedation. I'm picked and  prodded on so much I just really hate to have it
done if I don't have to. I'm  usually not a wimp about these things but I
just go through so much I hate to  add to it if I don't have to. Any thoughts?




**************From Wall Street to Main Street and everywhere in between, stay
up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023)

#21822

From: JLMcNair1@...
Date: Thu Jan 22, 2009 8:48 pm
Subject: Colonoscopy (possible alternatives)

jlmcnair1

Offline

http://www.nytimes.com/2006/11/14/health/14pros.html?_r=1&ex=1173416400&en=1ad85d58ec0ad8e7&ei=5070

New Tests, New Future for Doctors

Virtual Colonoscopy An Effective Screening Alternative for Colorectal Cancer
http://www.cancer.gov/clinicaltrials/results/virtual-colonoscopy1203

Colonoscopy alternatives advance as advisories change

http://blog.cleveland.com/health/2008/10/colonoscopy_alternatives_advan.html

In a message dated 1/21/2009 1:24:47 P.M. Eastern Standard Time, jkodak@... writes:

I have LGMD with some restricted lung disease and heart involvement. I also have Rheumatoid Arthritis, among a few other things.
I just turned 50 and my primary physician scheduled me for a colonoscopy. I have no symptoms, just a 50th birthday present, I guess. I can't seem to get a peace about having this. The sedation is not aggressive I know, but it's still sedation. I'm picked and prodded on so much I just really hate to have it done if I don't have to. I'm usually not a wimp about these things but I just go through so much I hate to add to it if I don't have to. Any thoughts?

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

#21821

From: "Michael Keen" <mkeen@...>
Date: Thu Jan 22, 2009 5:15 pm
Subject: Jan 22 blog entry

devldude23

Offline

"I can do all things through Christ which strengthened me."Philippians 4:13

#21820

From: "Pirate Tigger" <greg1960@...>
Date: Thu Jan 22, 2009 4:59 am
Subject: Re: Colonoscopy

tiggers2000us

Offline