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Messages 21607 - 21636 of 22455   Oldest  |  < Older  |  Newer >  |  Newest
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21607
I see that no one has responded to your question. My son had DMD, but I know a few people with SMA. They have never complained of that problem to my...
Adele
navymom2josh
Offline Send Email
Dec 1, 2008
10:15 pm
21608
There are, of course, many things this may turn out to be...It could be Bell's Palsey which is a virus of one of the cranial nerves. Sorry, I forget which one....
JSavant99@...
Send Email
Dec 1, 2008
10:55 pm
21609
Sorry, missed the original post, having trouble with email lately. Anyway, MJ, age 20, SMA 1+ has had a couple times where her smile is gone...especially...
Brenda
bshanson68
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Dec 2, 2008
2:54 am
21610
Thanks for the replies to my post. I ended up deleting it because after talking to him more in depth about it, I found out that it is a "twitching" and not a...
nini333
Online Now Send Email
Dec 7, 2008
1:55 am
21611
Hi everyone: No, not a rambling update or deep thoughts of mine for today, just a regular update.  First of all, thanks everyone for visiting and signing my...
Brenda
bshanson68
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Dec 8, 2008
12:29 am
21612
Hi all:  Just thought I would update again, since I kept forgetting to this past week.  After calling the hospital to see if my culture was done and...
Brenda
bshanson68
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Dec 15, 2008
2:52 am
21613
I would like to wish a Merry Christmas to all who are in this group because they are affected by some form of neuromuscular disease. I pray that God's hands...
Tod
wepushwa
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Dec 15, 2008
4:03 am
21614
Thank you Tod and ditto to you, may God continue to bless your spirit and help you keep the faith, he is going to give the wisdom to the doctors for the...
stbrigid@...
reina_kelly
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Dec 15, 2008
4:29 pm
21615
hello, it's just after 9am and snowing a lot here in Barstow, Ca. in the high desert, very cool and wish i had my cam now lol. Sticking good on the road now in...
Tigger Greg
tiggers2000us
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Dec 15, 2008
8:06 pm
21616
hello, it's just after 9am and snowing a lot here in Barstow, Ca. in the high desert, very cool and wish i had my cam now lol. Sticking good on the road now in...
Tigger Greg
tiggers2000us
Offline Send Email
Dec 15, 2008
8:07 pm
21617
Snowing in the desert! I bet it is very pretty. I never responded to you before, but I enjoy your stories of how your days go. Rosa seems like a jewel,...
Pastor Michael Keen
devldude23
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Dec 15, 2008
8:16 pm
21618
Thank you Pastor Mike, I think we all enjoy hearing about Greggs days in the desert, I always miss it when he doesn't post...hope everyone is doing...
stbrigid@...
reina_kelly
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Dec 15, 2008
10:24 pm
21619
I need to get better with posting and back to every day and will next year for sure. Been doing so so here and getting by the best i can. But i do stay upbeat...
Tigger Greg
tiggers2000us
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Dec 16, 2008
3:55 pm
21620
That's great my friend. Staying upbeat is truly the best policy, even though I do have my days and I'm sure you know how that goes. I'm glad to hear you are...
Pastor Michael Keen
devldude23
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Dec 16, 2008
4:20 pm
21621
Greg, I didn't think California got snow! We got 15 cms, my 15-year-old spent most of the weekend building his first ever outdoor ice rink in the back yard,...
The Wrights
scrabbler55
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Dec 16, 2008
7:55 pm
21622
Greetings from the lovely little city of Waynesboro. Not much happening around here today. We went Christmas shopping yesterday at the big bad Wal-Mart. It...
Pastor Michael Keen
devldude23
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Dec 17, 2008
4:15 pm
21623
Check out my new blog post. www.johnrsf.blogspot.com Peace, John   There is no cure for birth and death save to enjoy the interval. --George...
John Herrmann
johnrancho
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Dec 18, 2008
6:15 pm
21624
Greetings to all! My primary purpose for writing is to ask if anyone has any information on SMA and strokes. Angie Wright (SMA 2) suffered a stroke in April...
jeffreytb2003
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Dec 18, 2008
6:41 pm
21625
Did you see the article where a family in Minnesota sued the drug company making PTC 124 because they would not allow the 17 year old to participate in the...
Kmmx2@...
Send Email
Dec 18, 2008
6:46 pm
21626
Hello all, Hope you are all doing good and staying warm. We had a lot of snow on Wed. , 7 inches on out part of town and my mom and sisters got a lot more and...
Tigger Greg
tiggers2000us
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Dec 22, 2008
1:52 am
21627
Many hugs and much love back to you Gregg...thanks for the post...you really motivate..and God has you here for that purpose, its a gift!.. Reina ... From:...
stbrigid@...
reina_kelly
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Dec 22, 2008
5:34 pm
21628
Gregg..my daughter always ask how you are doing..and said she sent you a Christmas card...so if you got one from Natalie..thats my daughter....blessings Reina ...
stbrigid@...
reina_kelly
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Dec 23, 2008
1:03 am
21629
MERRY CHRISTMAS AND HAPPY HANNUKAH!   May you and your families have a peaceful, and happy holidays.   Peace to all, John   There is no cure for birth and...
John Herrmann
johnrancho
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Dec 23, 2008
4:03 am
21630
Hello Everyone: Well another week has come and gone. I can’t beli eve Christmas is Thursday! I’ll be heading to GJ’s for 2 weeks tomorrow and you know...
Brenda
bshanson68
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Dec 23, 2008
9:29 pm
21631
here's today's blog entry, Mark you may have created a monster lol. http://spritroller.blogspot.com/ Pastor Mike, Spirit Roller Ministries ...
Pastor Michael Keen
devldude23
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Dec 29, 2008
4:58 pm
21632
Hi, You can see a list of my groups on Grouply at the link below. Maybe you'll find some you want to join. Tod Here's the link: ...
Tod Riebow
wepushwa
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Dec 30, 2008
6:44 am
21633
Here's today's blog entry enjoy. http://spritroller.blogspot.com/ Pastor Mike, Spirit Roller Ministries www.spiritrollerministries.org Office: 540-337-1540 ...
Pastor Michael Keen
devldude23
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Dec 30, 2008
4:39 pm
21634
Hello all, hope you all had a great holiday long weekend and doing the best you can now and staying warm. I got Rosa bad cold the other day after looking like...
Pirate Tigger
tiggers2000us
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Dec 30, 2008
5:42 pm
21635
Greg... i hope you're feeling better very soon. I love how upbeat and positive you always are. You're an inspiration. Today is my son, Kevin's (CMD) 21st...
MzBet@...
Send Email
Dec 30, 2008
6:06 pm
21636
I always try and stay up beat and happy, a bad mood does not help anyone here. I am very sick now and trying about every thing i can i have here and mom is...
Pirate Tigger
tiggers2000us
Offline Send Email
Dec 31, 2008
1:19 am
Messages 21607 - 21636 of 22455   Oldest  |  < Older  |  Newer >  |  Newest
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