Thanks so much Adele, for your concern, Apparently there is a Dopamine response type dystoia which is trearable with dopamine. we have not yet determined...
I'm so sorry to hear the news. I do hope that Dystonia has a better outlook than any of the muscular dystrophies. Your family is in my prayers. Adele _____ ...
Terri, Dr. Stefan is at Children's Hospital in Little Rock , Arkansas. Kathy ... correct about it being dystonia He explained that it is rare in such a young...
Hi Vicki, We took my grand daughter to see Dr.Gold yesterday, and you were correct about it being dystonia He explained that it is rare in such a young age,...
Thanks I will have to check into that. We have received a tentative diagnosis yesterday of Dystonia. We are so upset. My grandaughter is now waiting to be...
Hi, Is that Dr. Arnold Gold affiliated with Columbia-Presbyterian? If so, he is good. I saw him back in 1983, and he is thorough (which is a good thing in ...
Thanks for your response. That test is extr,mely painful for a child. I've been told that a nerve biopsy shoud be done. We ahve an appointment with a...
Thanks so much for gettig back. Dystonia was a consideration of the pediatric neurlogist, but she just didn't think so. She felt that symptoms should be...
Hey there, good for you for not just ignoring the problem or being too scared to look into it. But honestly, it sounds a little more like a dystonia, and it...
Hi Terri, It sounds like to me that it very possiably could be MD and the best way that I know of is for the dr's to do what is called a nerve conduction and...
So, your granddaughter has not previously been diagnosed with any type of Muscular Dystrophy? Has any one done a blood test to see if her CPK enzyme are...
My grand daughter is 2 months short of being 3 years old. About 6 months ago, she began "toeing in" with her right foot. The pediatrician and pediatric...
Hi everyone: Sorry for the lack of updates this summer. Lack of internet sure is a bummer. I can’t get on dial-up and can’t even get a wireless...
I couldn't agree more, Corey. I think we need to focus our attention more on real life issues and less on issues in Movieland! This is just a movie! In HIM...
Here is an article you might find interesting. A Life Less Ordinary http://www.ventusers.org/edu/valnews/VAL_22-2su08p6-7.pdf Peace, John  There is no...
Why does this country have to protest every little thing? We are a nation of CRY BABIES!!! Like I always say, It's just a movie. This is not the first movie...
I have read a lot about this and did read this article..my complaint is that in the last 10 yrs. there have been at least 10 movies that protrayed people in a...
and why are we protesting this movie? just curious. kathy in fl ... From: Lanae Squires <lmssquires@...> To: amy <spottedfrog2001@...>; Annie Heider...
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Family and friends, I have forwarded this message. I know you may not have the opportunity to protest in mass, but please do not go see this movie and...
RIT - University News <http://www.rit.edu/news/?r=46252> Release Date: Aug. 7, 2008 Contact: Will Dube (585) 475-2816 or wjduns@... Robotics Research:...
Thank you Joyce. That sure helps. kathy in FL ... From: JoyceGlass@... To: MD-List@yahoogroups.com Sent: Fri, 8 Aug 2008 8:53 am Subject: Re: [MD-List] Re:...
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How I got ours was to get a letter of medical necessary from Jason's pulmin and the RX for the cough assist. Our insurance approved it based on the letter. ...
Here's some good news! ________________________________ Action Duchenne Provides £150k For Gene Therapy Research For New Treatment For Duchenne Muscular...
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