Stacey..we are doing pretty good considering.. Tracy has been able to come off the vent for up to 4 hrs. sometimes and that is a blessing. He used to just be...
Adele..we are in VA and tho Jills father was seen at the MDA clinics for many yrs..we did have to apply for Jill she is 4..we had to wait for an appt. too....
Reina, I have never heard of anything like this before. I have always been told that all you needed was a Dx of one of the 40 MD covered, and you were a...
Hi Adele...That is still partly true but there is a process and some other forms to fill out etc..in order to get an appt. at the clinics...Reina ... From:...
Hi! Thanks for e-mailing back.. I'm my own gurdian! What kind of, Muscular Dystrophy do your kids have????? Sorry you had to leave the wedding.... As long you,...
Hi I have SMA 2... When I saw that bed, no way medicaid won't pay for it...... I'm still waiting for, several repairs on my power chair... I live in an apt.....
Hi! I have SMA 2. It really sucks, I have rods in my back... Medicaid does'nt cover crap.. I've been waiting, 1 year for w/c repairs for my power chair...... I...
Hi Audrey, I live near Burlington Vermont and would be happy to talk with you about that. Vermont is serviced through the Albany New York MDA office. I also...
I know what you mean, Alex had a decent mattress in the hospital and they even moved one to rehab for him but once he was home that was over. We all tried for...
Yea, I forgot to mention that Alex in the last year before he died had a rod, ostomy and was on a vent. Terri mom of Nathan 20, DMD, ADD Christian 11, DMD,...
Sorry to hear about your son.. You must have your hands full, w/ 2 kids.... I don't know how u do it...... Do you guys have a website for the boys???? If you...
does anyone know who manufactures the pneumobelt and where to get one? apparently they are hard to find. **************Get trade secrets for amazing burgers....
JoyceGlass@...
Jun 3, 2008 2:05 pm
21251
What are you trying to find??? Maybe I can help u... Stacey SMA2 ... From: "JoyceGlass@..." <JoyceGlass@...> To: MD-List@yahoogroups.com Sent: Tuesday,...
According to http://www.ventusers.org/edu/valnews/val18-4c.html and some other sites, it's manufactured by Respironics, but their site has no reference to the...
Hello, My son uses the pneumobelt and it is manufactured by Respironics however we have been told that they discontinued making them. There are people who...
Msna1980@...
Jun 3, 2008 4:31 pm
21254
HI Stacey Where in northern michigan are you? My son and I live in Holly, and he has SMA. Just wondered if you may know him. Have you ever been to camp? Janeen...
Is the name BRANDON??? Yeah I know you! How are you??? I like making new friends, w/ the same diabilty. I have a spelling problem.... Don't mind me..... Please...
It is my understanding that Respironics does not make the pneumobelt anymore. Does anyone know where I can purchase one? Thanks. **************Get trade...
JoyceGlass@...
Jun 4, 2008 4:15 pm
21258
Hi, I looked for you on Reunion.com, but you weren't there. Please connect with me so we can keep in touch. -David Robert Do You Know David Robert? YES -...
I use the pneumobelt and I still get replacements. I called my respiratory company and they told me they no longer have it on the website but they still order...
Another member from Michigan! I really do love northern Michigan, especially, near Lake Michigan. I live in Lowell, just east of Grand Rapids. Small World! GOD...
donna, I guess we could call respironics and ask them if they have them. Thank you for telling me that. Joyce **************Get trade secrets for amazing...
JoyceGlass@...
Jun 5, 2008 12:42 am
21263
Can anyone tell me where to find the law that states who quilifies for medicaid wavier ? I know there is a law that you do not have to be mentally handicpped...
Terri, Mda is helping us get Eric a low air loss mattress, have you contacted them too? Holly ... From: Terri <momdmd@...> Subject:...
It depends what state you live in...in florida there are a lot of waivers that don't cover muscular dystrophy at all. But they do cover other diseases. its...
I wonder if everyone just assumes there is the MDA so we don't need help... the mda will cover it. I've had teachers and school administrators say to me "if...
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