Hi Gregg..sure hope things are on the upswing, we have all been there done that and know how you feel...take care and let us know some good news!LOL Reina...
Here is our official flyer we've made up to go to our local MDA office for distribution to all of the local DMD/BMD families here. Care Givers Co-op Sharing...
Was a hard Monday and week for sure, all testing and doctors all week and going today again to come up with my plan to get my levels to stay the same. The bad...
Check out my new blog post www.johnrsf.blogspot.com Peace, John There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) ...
Hi, In the Dallas area which companies do people go to for help with wheelchair issues? We have been working with Majors Medical but they don't seem to have a ...
HI Rick, YOU should consult an occupational therepist. A therapist would be able to suggest modifications for better support in the wheelchair or a new...
Hi J.P., ... Yes, that is what we are trying to do. The MDA office is Dallas has said they are lining up an OT to evaluate our son's positioning. Thanks, Rick...
You might call Scottish Rite Hospital and ask the PT dept who they would suggest. My son Allen has been there many times and they are very helpful. Here is...
Jiggyj0@...
May 8, 2008 3:49 am
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Joy, ... That's an excellent suggestion, just what I was looking for. We also went to Scottish Rite Hospital a number of years ago and they were very helpful....
We have been using United Rehab Specialist to get all of our sons equipment. We usually work with a man named Will Jiron. --Samantha "Strong At The Broken...
Had anyone heard from Gregg...he hasn't posted in over a week and the last time he did he had been in ER..I am a bit worried, if anyone knows please...
I'm here hun, just been busy and had so many testing and doctor visit and should only have one more trip to the hospital for lab work and the doctor visit on...
OK ...thats good news...just was getting concerned about ya... take good care....Reina ... From: Pirate Tigger :) To: MD-List@yahoogroups.com Sent: Thursday,...
Hi, We are replacing out old Convaid Cruiser size 14 and are not sure whether to go with the next size Cruiser or a different model, like the ez-rider. I know...
Dear Greg: I was wondering what types of things your caregivers do for you. We were finally approved for 3 hours 7 days a week of nursing care for our son....
Two Choices What would you do?....you make the choice. Don't look for a punchline, there isn't one. Read it anyway. My question is: Would you havemade the same...
Mine works out to about 6 hours paid. 7 days a week, but they live in and
give me around the clock care. Mostly bath room help, cleaning me , and
getting me...
Greg you have really gotten some mileage out of your birthday..way to go! Mine was Jan. 5th wonder if I can have another late dinner LOL...Reina ... From:...
Are there members of this list who have ALS? I wanted to refer another mom to the list but wanted to make sure first. Terri mom of Nathan 20, DMD, ADD...
I am so far behind, I wonder if I will ever get caught up. I was wondering where you copy your DVDs from. I have used uTorrent before but cannot remember...
Hi Everyone, Attached is a survey for my Bioethics class term paper. My term paper is about the ethics of treating, what many would consider, impaired babies...
In a message dated 05/11/08 02:29:05 Eastern Daylight Time, bracinknee writes: Hi Everyone, Attached is a survey for my Bioethics class term paper. My term...
MzBET
MzBet@...
May 11, 2008 5:06 pm
21169
... paper is about the ethics of treating, what many would consider, impaired babies and children. I know in the survey it says children and babies but adults...
Hi everyone: Sorry for the lack of updates. I do realize it has been two weeks since I last updated, but between nursing issues and homework and allergies. ...
Hi Everyone: I am mom of a 16-year-old son who has DMD. I am also one of the founding parents of an amazing local non-profit organization called The...
