Brenda. I have read everything you have sent. I do not know that I could have been as patients as the two of you throughout all of this. First, I have two...
Brenda..I am still praying that you and MJ can get the proper help and care. It might be a good idea to transfer. I know you will make the right decision the...
*Did not see this get posted here, this is from her web site.* *Greg * *Tuesday, April 1, 2008 10:25 PM CDT * Today has been a pretty good day. MJ was able to...
Hello - My latest journal entry is about the MD-CARE Reauthorization Bill for 2008. Please have a look: GenMed Lab Mom <http://genmedlabmom.blogspot.com> -- ...
Hi there, I'm Adele and my son, Jason is almost 23 and has Duchenne Muscular Dystrophy. I know very little about Charcot-Marie Tooth or CMT. You can go to...
I became disabled last year with a very rare disease called Churg-Strauss vasculitis. For this reason, I asked my son's neurologist to compose a letter ...
... Medicaid is always referred to as "the payor of last resort" meaning that you must submit (and get payment or denial from) all other insurances before ...
Thanks David, I will be sure to keep a copy of the letter for Medicaid and my own personal reference. I know how things "get lost." Diana In a message dated...
Special thanks, Aloxi, and sleeping in late Hi everyone: Today went pretty good. There was some confusion with some orders but that was all fixed so today...
Even though your commercial will not pay for any aides, I would try them first. Then submit to your Medicaid. Contact you local NJ state department on the...
Greg, As you can see from the subject line, I am behind on my emails. I am curious about your candles. I have bought several types and have only found one ...
Friends & Family, This last week I was able to accomplish a major goal that I set for myself last year when I was elected the Disabilities Senator at Mesa...
Sleepiness, a screw loose, nausea Hi everyone Sorry for the lack of updates the past two days, things have been going good for the most part. MJ has been...
Looks like you did a great job, Lanae - congratulations! Our family has travelled to Mesa 3 times for power soccer tournaments. We found Mesa to be the most...
Me and my girlfriend are pondering the idea of having a child. She is not affected by Muscular Dystrophy but I have Spinal Muscular Atrophy type III. What is...
Hello Diana I am not sure where you got my name from regarding candles but i would prefer to use essential oils that are defused. They put off nice odors and ...
Greg Evans
gregevans01@...
Apr 5, 2008 10:39 pm
21046
Kevin, As I do not really know the genetics of SMA, I can tell you that because the defict for SMA is not on a sex chromosome, it makes it harder to predict....
What exactly are you talking about helping your son with candles and oils or perfect water????This is no different than the recent post from a woman just...
Hello There.. My 25 year old son has his own home, is married and just had a baby. He has SMA also, I think it's type 1 or 2 I have forgotten. He was diagnosed...
Hi...Be very carefull about the genetic counseling if you get it. My son too has a four year old that has the same dystrophy that he has..he and his wife went...
Reina, What type of MD does your son have? Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of stbrigid@... Sent:...
Hi Adele....the latest guess if Ullrich or Bethlem...they lean toward Bethem now but we have not had the blood test for either him or Jill at this point , we...
Hi Kevin, The only good advice that I can give and I think the best is to contact the local MDA and ask them about this. Good luck to u and ur girl friend. ...
Hey Kevin, I'm Jen, I'm 27, and I have SMA II. I don't have any children and are not currently planning on having any anytime soon, so I haven't really looked...
I looked both of the up on the MDA web site. Not being a genetics, and only knowing some basic genetics myself, There would have been no way for anyone to...
Exactly Adele...he didn't even say if it were recessive it could be 50/50..he was absolutley adamant that it was slim to none and no different than any other...
I have no idea either and figure this must be a mixed up communication. I know nothing about the candles but do ocassionally burn the essential oils. I am also...
Greg Evans
gregevans01@...
Apr 6, 2008 10:39 pm
21058
There is a new blood test out now that can tell you if a parent is a carrier of a MD and my nieces are getting tested for it, but my one niece had a son in...
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