Good morning all and welcome to February :) Hope you all had a good nights sleep and doing good today. It's very
windy out now and I bet it's very cold. I got...
I think I feel a lot better sending in updates like this and it keeps me
going. I never really get all that down and just so thankful to have a good
day with...
You must give up something to get whatever you want in life. The greater the value, the greater the sacrifice that will be required. Everything you want has a...
thanks! Marie ... -- GenMed Lab Mom Blog Nine - January 30, 2008 http://genmedlabmom.blogspot.com thanks! Marie On Feb 1, 2008 10:12 AM, Darth Tigger <...
Good Morning to you all out the from the nice and cold desert of southern
California :) Hope you all had a good night and having a great weekend. I
got my...
You can learn from other people to make up for your lack of experience in any area of life. Be open and receptive to the people around you. They have things to...
Hi everyone: Two steps forward and one back is the theme of the day. Last night was an interesting night. MJ had a productive cough so we were taking use...
I just joined the chat group. Do you talk about MD. I have LGMD and was diagnosed in 1999 when I was 52 years old. I finally had to quit work last year and...
Hi Pat, Welcome. We talk about all sorts of things here, but mostly about MD. Most of the people on this list have a don with Duchenne, but there are a few...
Thank you for your reply. I am near Lynchburg which is south of Charlottesville. ... From: Adele <jasona65@...> To: MD-List@yahoogroups.com Sent: Sat,...
Hi Pat welcome to the list..I haven't seen anyone posting on Limb Girdle but I haven't been on the list long either. I have a son who has Ullrich or Bethlem...
Hi Reina, thanks! They say they type of MD I have is heredity, but we don't know anyone who has had it. It is adult onset and slow progressive, but I have...
In a message dated 2/2/2008 8:17:38 P.M. Eastern Standard Time, stbrigid@... writes: haven't seen anyone posting on Limb Girdle but I haven't been on the...
Hi Brenda - it is another tough spot you and MJ are in ... again. I pray that her spirits stay healthy and you get enough rest. all my best to you and MJ, ...
Please take a look at my latest blog: http://genmedlabmom.blogspot.com/ on the reception and dinner at Children's National Medical Center celebrating the 20th...
Hi everyone, Another late update, but you know how things go in a hospital. Never a dull moment. For part of the day, it just seems to drag and then you...
Good Morning all, It's 6:53am and 45f out right now. Not sure if got any rain over night,
but think Brian was talking about it when I got out of the bath room....
Hi Greg - thanks again for sharing the start of your day with us. You remind me that you don't have to be old and cranky just because my body is! Marie ... --...
Sent: Sunday, February 03, 2008 9:43 AM Subject: Re: Ullrich or Bethlem Hi Jennifer. Thank you so much for your thorough reply..heres Tracys.. 1. He was a...
Pat would you mind telling me how they tested you to determine the Limb Girdle? My daughter was diagnoised with CFIDs but her symptoms are so similiar..She...
Hello Pat: I'm a 49 year old female with LGMD. I was diagnosed in 1992 but had symptoms much ealrlier. I would be happy to discuss anything of concern with...
First I had a blood test, then EMG and then finally a muscle biopsy which determined it. It affects my arms and legs. How is your daughter doing? ... From:...
I stay in a good mood and just learning to deal with what lives brings me.
Just in fear at times when I have to have help with every thing. Going to
come up...
I am really dissappointed today. My new nurse didn't show up today. The agency called his home phone and cell phone and couldn't get a hold of him. They told...
Hi John...its the story of our lives too...Tracy says he is going to write a book someday on Nurses! He had one years ago that claimed to be the illegitimate...
One of the greatest surprises you'll experience, is when you discover that you can do what you were afraid you couldn't do. Your obstacles will melt away, if...
John, No it isn't just you. Finding and keeping reliable help is all across the country. For the mst part, these people that take these PCA jobs and even...
The nursing agency I have is very reliable. Some of the nurses aren't but we get rid of them and the agency is very good about keeping a core team that we can...
