Logan and Darius from Darius Goes West were on the Today Show this morning. If you don't know the story, it's about a teenager with Duchenne Muscular Dystrophy...
I may or may not have found it a while back... This is all I have so far, so if anyone knows of others, I'd love to hear about them. Mobility Arm, Mobility Arm...
The one I saw did not use the person's arm at all. It was a totally robotic arm. You controlled with a joy stick. I'll ask the person who went to the ...
A group for support and understanding The group Intimacy is looking for members that are open about talking about intimacy with out being to graphic and foul...
Hi Everyone: Week 9 is over and one more week of classes is done! Friday is my last day of classes and then I have finals the following week. I finished...
Hi Reina, Welcome to the list. I have been a vent user for 13 years. My vent is the PLV-100. If you have any questions, feel free to ask. Peace, John There is...
Hi Pastor Mike.. My son is on a vent and has been for over 19 years, he has an unknown type of dystrophy and has been re diagnoised several times. He will be...
Hello Everyone, I am wondering if you might help me. I am looking for information/experiences about Social Security benefit. Do you know of any individuals...
Pat Furlong
pat@...
Nov 5, 2007 4:25 pm
20111
I use a vent. I have the LTV 950 by Pulmonetics. I use a mouthpiece during the day and the Mirage Vista mask at night. You can see what I use at...
Hi Reina, I use an LTV 900 by Pulmonetics and am on in 24-7. This vent is very nice and is versatile. The machine is very adaptable to the user. It is small...
Thank you so much...we are in Fredericksburg so not very far..I will be in touch..thanks again Reina ... From: Michael Keen To: MD-List@yahoogroups.com Sent:...
Hi everyone: Just had to send out a good update today, mostly all good news!!! It is only Wednesday so I had to send out my week so far. Monday, I had my...
Greg, In what state do you live, and who pays for your live-in aids--if you don't mind my asking. My son is 18 with Duchenne Muscular Dystrophy. I have ...
Diana, Where do you live? Is your son on SSI? We live in Maryland. Jason, age 22 w/DMD gets 56 hours a week of care from his Medicaid (the one you get with...
I forgot to add, I'm Jason sole care giver during the day. I get him up in the mornings and put him to bed at night. I never pick him up, bad back. Do you...
I just got one of the new hoyer lifts and it's so much better and now i can get in the front seat of the van, something i never could before....and the lift...
Before all i could do was transfer from my non power wheel chair to the floor of the van. Now with the new lift i can go from my non power chair to the front...
What type of van are you using? Full size or Mini? Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Tigger Greg Sent:...
use to have a 89 grand caravan and i could slide from my chair right to the floor just right. We have a old full big van now and it runs great and i had a...
I feel like I am missing something too. Why are you coming out of the chair when you travel instead of sitting in it? I am assuming maybe it isnt tall enough...
