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Messages 20096 - 20125 of 21527   Oldest  |  < Older  |  Newer >  |  Newest
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20096
Try this. QOL: Choosing to live on your own terms. Brian Denger Maine ... From: Brenda <BracinKnee@...> To: nivusers@yahoogroups.com;...
denger2@...
adenger
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Nov 1, 2007
1:01 pm
20097
MJ. Quality of Life to me means “living how you want, not how your are forced to”. Adele, Mom to Jason 22 w/DMD _____ From: MD-List@yahoogroups.com...
Adele
navymom2josh
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Nov 1, 2007
1:38 pm
20098
I’ve seen some of these “ARMS” before. In Sweden, that have a type of robotic arm the attaches to your wheelchair. They are working on making a ...
Adele
navymom2josh
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Nov 1, 2007
1:41 pm
20099
Logan and Darius from Darius Goes West were on the Today Show this morning. If you don't know the story, it's about a teenager with Duchenne Muscular Dystrophy...
Joanne Wechsler
jowechsler
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Nov 1, 2007
5:30 pm
20100
I may or may not have found it a while back... This is all I have so far, so if anyone knows of others, I'd love to hear about them. Mobility Arm, Mobility Arm...
Jeff
tracksterdude
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Nov 2, 2007
2:31 am
20101
The one I saw did not use the person's arm at all. It was a totally robotic arm. You controlled with a joy stick. I'll ask the person who went to the ...
Adele
navymom2josh
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Nov 2, 2007
2:19 pm
20102
A group for support and understanding The group Intimacy is looking for members that are open about talking about intimacy with out being to graphic and foul...
who let the dogs out?
chris1h23
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Nov 4, 2007
3:33 pm
20103
Hi Everyone: Week 9 is over and one more week of classes is done! Friday is my last day of classes and then I have finals the following week. I finished...
BracinKnee@...
bshanson68
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Nov 4, 2007
6:33 pm
20104
Hi.. I am new to the list and wondering if anyone is on a vent? Hoping to find some info on types etc...Reina...
stbrigid@...
reina_kelly
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Nov 4, 2007
10:15 pm
20105
Hi I am new to the group but was wondering if there is anyone on a ventilator.? thanks Reina...
reina_kelly
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Nov 4, 2007
10:15 pm
20106
I guess I missed this but how old is Darius? Joanne Wechsler <Joanne.Wechsler@...> wrote: Logan and Darius from Darius Goes West were...
hhjgreene@...
hhjgreene
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Nov 4, 2007
11:06 pm
20107
Hi Reina, Welcome to the list. I have been a vent user for 13 years. My vent is the PLV-100. If you have any questions, feel free to ask. Peace, John There is...
John Herrmann
johnrancho
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Nov 4, 2007
11:45 pm
20108
im on a vent Pastor Mike Communications Pastor Good Shepherd Church of the Nazarene...
Michael Keen
devldude23
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Nov 5, 2007
1:32 am
20109
Hi Pastor Mike.. My son is on a vent and has been for over 19 years, he has an unknown type of dystrophy and has been re diagnoised several times. He will be...
stbrigid@...
reina_kelly
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Nov 5, 2007
2:59 pm
20110
Hello Everyone, I am wondering if you might help me. I am looking for information/experiences about Social Security benefit. Do you know of any individuals...
Pat Furlong
pat@...
Send Email
Nov 5, 2007
4:25 pm
20111
I use a vent. I have the LTV 950 by Pulmonetics. I use a mouthpiece during the day and the Mirage Vista mask at night. You can see what I use at...
Brenda
bshanson68
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Nov 5, 2007
5:44 pm
20112
Hi Reina, I use an LTV 900 by Pulmonetics and am on in 24-7. This vent is very nice and is versatile. The machine is very adaptable to the user. It is small...
Michael Keen
devldude23
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Nov 5, 2007
5:56 pm
20113
Thank you so much...we are in Fredericksburg so not very far..I will be in touch..thanks again Reina ... From: Michael Keen To: MD-List@yahoogroups.com Sent:...
stbrigid@...
reina_kelly
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Nov 5, 2007
6:57 pm
20114
Darius was 15 in the movie. He is 17 now. You can check out his blog from the Darius Goes Website at www.dariusgoeswest.com. Joanne ...
Joanne Wechsler
jowechsler
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Nov 6, 2007
1:29 am
20115
Living a fulfilling life that gives you joy and satisfaction. ... From: "Adele" <jasona65@...> MJ. Quality of Life to me means living how you want,...
momdmd@...
imblueangel
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Nov 6, 2007
12:59 pm
20116
Hi everyone: Just had to send out a good update today, mostly all good news!!! It is only Wednesday so I had to send out my week so far. Monday, I had my...
BracinKnee@...
bshanson68
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Nov 8, 2007
2:49 am
20117
Greg, In what state do you live, and who pays for your live-in aids--if you don't mind my asking. My son is 18 with Duchenne Muscular Dystrophy. I have ...
mzmrize039@...
dspatola418
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Nov 9, 2007
5:43 pm
20118
Diana, Where do you live? Is your son on SSI? We live in Maryland. Jason, age 22 w/DMD gets 56 hours a week of care from his Medicaid (the one you get with...
Adele
navymom2josh
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Nov 9, 2007
7:30 pm
20119
I forgot to add, I'm Jason sole care giver during the day. I get him up in the mornings and put him to bed at night. I never pick him up, bad back. Do you...
Adele
navymom2josh
Online Now Send Email
Nov 9, 2007
7:33 pm
20120
I just got one of the new hoyer lifts and it's so much better and now i can get in the front seat of the van, something i never could before....and the lift...
Tigger Greg
tiggers2000us
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Nov 10, 2007
12:30 am
20121
Greg, Not sure what you are referring to. You use to transfer out of you power chair to get into your van? Adele ... From: MD-List@yahoogroups.com...
Adele
navymom2josh
Online Now Send Email
Nov 10, 2007
1:45 am
20122
Before all i could do was transfer from my non power wheel chair to the floor of the van. Now with the new lift i can go from my non power chair to the front...
Tigger Greg
tiggers2000us
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Nov 10, 2007
5:13 pm
20123
What type of van are you using? Full size or Mini? Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Tigger Greg Sent:...
Adele
navymom2josh
Online Now Send Email
Nov 10, 2007
5:42 pm
20124
use to have a 89 grand caravan and i could slide from my chair right to the floor just right. We have a old full big van now and it runs great and i had a...
Tigger Greg
tiggers2000us
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Nov 11, 2007
12:05 am
20125
I feel like I am missing something too. Why are you coming out of the chair when you travel instead of sitting in it? I am assuming maybe it isnt tall enough...
momdmd@...
imblueangel
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Nov 11, 2007
1:06 am
Messages 20096 - 20125 of 21527   Oldest  |  < Older  |  Newer >  |  Newest
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