Challenges of mitochondrial disorders focus of seminar HOUSTON -- (October 1, 2007) -- An update on challenges in the care of people with mitochondrial...
Hi everyone:  I was hoping for an easier week this week, but you know me, life is never dull or boring. What a week is all I have to say.  We did meet...
Marie meant www.mdausa.org, not .com. It's obvious mdausa.com is intended to take advantage of those who have made that mistake. www.mda.org is now MDA's main...
Hello, my name is Theresa my son, D'reign,2, was also recently diagnosed. Shock is the right word for it and my immediate response was that I just had to find...
... Is that site working properly for anyone? I just tried it, and wound up on a site that didn't look legit. This is what I found on the ownership... Has it...
Dear Implacey, Welcome, welcome. whatever kind of md your Sarah has, you're in the right place and among friends. It is a shock, isn't it? There is lots of ...
Hi implacey I am an adult with mitochondrial myopathy, a neuromuscular disorder supported by MDA and Muscular Dystrophy Canada. I am 66 years old now and I...
Hi and welcome. I’m Adele and my son, Jason has Duchenne Muscular Dystrophy. He was diagnosed at age 4. DO you know what type of MD Sarah has? There are...
Hi there, I understand as I was the same way when I got the news myself back in 1978. I've always found the MDA a good source of info or a place to found out...
Welcome to the group! I hope you find the answers you are looking for. What form of MD does Sarah have? Your daughter should not give up. It is shocking and...
Hello I am a 55 year old mother of two and Nana to Sam. My daughter, Sarah has just been diagnosed with MD. She is 25 and she and Sam live with us here in...
Hi Teen Angel, My son is 9 1/2 & also has a form of congenital muscular dystrophy (type Ullrich). Welcome to the group! Susan ... From: teenangel992003 To:...
Welcome Teen Angel! You'll find others congenital muscular dystrophy here. My soon to be 25 year old son, Petey, has duchenne muscular dystrophy. We're pretty...
Muscular Dystrophy and Neuromuscular Diseases Day on the Internet Manifesto http://www.distrofia-mexico.org/diadm Among the many diseases with known genetic...
Hi Everyone! I just joined the group and just wanted to say hello and introduce myself. I am a 16 year old sophmore and have had congenital muscular dystrophy...
Hi everyone, Thank u Joannne for the news and I've been trying to find that movie and I haven't had any luck so if I could get some ideas it would be very much...
Hi everyone:  Another week gone by and it sure was a long one. Had way too much stuff going on and not enough free time. Sorry this update is really long...
Hey everyone, There is a documentary, which has been really well received in many film festivals, winning many, many awards. To make a run for an Oscar ...
Hi Marie: Thanks!? I am majoring in rehabilition services.? This quarter, I am taking Medical Terminology, Drugs and Alcohol, Biodiversity, and Decision...
Hello MJ - I really appreciate your posts - you have pazazz. What classes are you taking? Marie ... -- Marie Lab Mom NEW ENTRY - September 5, 2007: GenMed Lab...
Hello Terri, One day at a time, sometimes one step at a time, gets us there. Take care, Marie ... -- Marie Lab Mom NEW ENTRY - September 5, 2007: GenMed Lab...
Good point Brad, How many of us get tangled up in trying to be what people want us to be yet being somebody else entirely? Marie ... -- Marie Lab Mom NEW ENTRY...
Thanks Terri. I’ve always been very bad when it comes to matching names to faces. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]...
I can check into it but I don't believe we've ever had a Senator Craig from Indiana. Terri ... From: "Adele" <jasona65@...> Oh, my gosh Bard, you saved...
Hi Adele, Well, I didn't save the e-mail (I go to the web page to follow things rather than subscribing to the e-mail). But I do remember the hearing, and...
Oh, my gosh Bard, you saved this? When I re-read what I wrote, I said that Senator Craig was from Indiana. The Senator Craig, who all the recent hub-bub is all...
Hi everyone, I just wanted to bump up this "ancient" thread in view of the recent resignation of Senator Craig. I also attended the senate hearing, and was...
Hi everyone: Sorry for the delay in writing and updating but have been busy getting back into the swing of things and getting organized. I start classes...
I know, I can't believe he's 19!!!!! I remember when I was one of the Mom's of a younger child with DMD. Seems like yesterday. Here is a link if anyone wants...
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