Challenges of mitochondrial disorders focus of seminar HOUSTON -- (October 1, 2007) -- An update on challenges in the care of people with mitochondrial...
I ts time to get Davey a new wheelchair. He currently had a 5 year old Permobil . I am wondering if anyone has good/bad expierences latley with what ever chair...
Greg Evans
gregevans01@...
Oct 2, 2007 4:03 pm
20012
Greg, With all the new changes made to Medicaid and their procedure codes for mobility devices, it’s going to be really hard to get anything other than a ...
I'm not sure about the rules here but I'll just introduce myself. I am Evan, I am 23 years old and have Duschenne (sp?) Muscular Dystrophy. I have recently...
Hello, group. My name is Alyssa Quintero, and I'm a writer for MDA's Quest magazine. I'm working on an article about programs that offer reuse and recycling...
I'm not sure about the rules here but I'll just introduce myself. I am Evan, I am 23 years old and have Duschenne (sp?) Muscular Dystrophy. I have recently...
Try at www.parentprojectmd.org. They have nice lime green bracelets available. ... From: implacey To: MD-List@yahoogroups.com Sent: Tuesday, October 02, 2007...
If I’m thinking correctly what you are asking for, I know of one place. Go to the PPMD web site. I know they had them once before. Adele _____ From:...
Howdy Evan! Welcome to the group. I'm mostly a lurker nowadays (don't usually say much on the list), but would like to suggest you check out information by Dr....
I'm not sure if there are any rules to follow, other than respect one another. Well, you've done a great job in getting started here. I'm Adele and my son,...
Alyssa, I live in the Baltimore/Washington area. I have not heard of any Assistive tech recycling here. We use to have someplace where old computers were...
Here in Maryland we usually give some of the old wheelchairs and other medical equipment to the Muscular Dystrophy Association loan closet which lends out this...
JoyceGlass@...
Oct 2, 2007 10:30 pm
20024
Hi Alyssa, In Vermont and the rest of New England is a site called Get AT. You can find it here http://www.getatstuff.com/home.php. Also, at the Vermont...
Hello, The childrens' hospital near me (Boston, Ma.) has always had a program like that. It's been in the physical theropy department; they loan out...
Ashley Bernard
nisa764@...
Oct 2, 2007 11:49 pm
20026
Adele, what chair did Jason Just get. We are just starting process of new chair for our 15 year old. Had an Invacare Pronto and had nothing but major problems...
Kmmx2@...
Oct 3, 2007 12:33 am
20027
Hey Greg, I have an Invacare Storm TDX5 which I am very happy with. It tilts which is really great. Also it has a tight turn radius which makes it easier to...
We got another Invacare Ranger X. the chair itself is fine, it's the electronics that were changed, the joystick. They changed the location of the on/off...
Hi, I use an Invacare TDX 5 with tilt/recline and it's a great chair. I have the Heavy Duty True Track Gearless Brushless (HDTTGB) motors that have a max...
Hi Evan, About the breathing stuff: Have you looked into mouthpiece ventilation with a volume-cycled vent? There is a bit of information about that here: ...
The two pervious chairs had been gearless/brushless, but because of the changes, at Jason current, documented condition, he no longer qualifies for the GB...
Welcome to the group.... i'm Greg, age 47, Backers MD and live in southern California and been in a wheel chair since Jan. 2000. Thats great to hear you...
Check out this website www.4wheelcity.com I'ts not about off-roading, but it's about disability awareness,etc. There is no cure for birth and death save to...
My 11 year old who was previously diagnosed with cerebral palsy has now had a change in her diagnoses, the Drs are saying she does not have cp but they are...
Heather there was no one in my family that we know of that had it. They called Jimmy's a spontanios Mutation. hmnichols343 <hmnichols343@...> wrote:...
Heather, Hi, I'm Adele and my expertise are in Duchenne Muscular Dystrophy. This type of MD generally effects only boys. But to answer your question about ...
