************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Dear Friends, We would like to share...
JoyceGlass@...
Sep 1, 2007 3:00 pm
19978
ty for the explanation. I wish my sons apreciated what they have more. Their biggest issue I think is that they don't want a "scedule" they just want to do...
The nursing supervisor was here Friday and she said she thinks she has detected a heart murmur on Nathan. I know this might mean nothing but it is new and...
Terri, I would not wait to get both boys a complete cardiac work up. Because of Alex's history, and that Nathan might be showing signs of heart problems, it's...
I know, I can't believe he's 19!!!!! I remember when I was one of the Mom's of a younger child with DMD. Seems like yesterday. Here is a link if anyone wants...
Hi everyone: Sorry for the delay in writing and updating but have been busy getting back into the swing of things and getting organized. I start classes...
Hi everyone, I just wanted to bump up this "ancient" thread in view of the recent resignation of Senator Craig. I also attended the senate hearing, and was...
Oh, my gosh Bard, you saved this? When I re-read what I wrote, I said that Senator Craig was from Indiana. The Senator Craig, who all the recent hub-bub is all...
Hi Adele, Well, I didn't save the e-mail (I go to the web page to follow things rather than subscribing to the e-mail). But I do remember the hearing, and...
I can check into it but I don't believe we've ever had a Senator Craig from Indiana. Terri ... From: "Adele" <jasona65@...> Oh, my gosh Bard, you saved...
Thanks Terri. I’ve always been very bad when it comes to matching names to faces. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]...
Good point Brad, How many of us get tangled up in trying to be what people want us to be yet being somebody else entirely? Marie ... -- Marie Lab Mom NEW ENTRY...
Hello Terri, One day at a time, sometimes one step at a time, gets us there. Take care, Marie ... -- Marie Lab Mom NEW ENTRY - September 5, 2007: GenMed Lab...
Hello MJ - I really appreciate your posts - you have pazazz. What classes are you taking? Marie ... -- Marie Lab Mom NEW ENTRY - September 5, 2007: GenMed Lab...
Hi Marie: Thanks!? I am majoring in rehabilition services.? This quarter, I am taking Medical Terminology, Drugs and Alcohol, Biodiversity, and Decision...
Hey everyone, There is a documentary, which has been really well received in many film festivals, winning many, many awards. To make a run for an Oscar ...
Hi everyone:  Another week gone by and it sure was a long one. Had way too much stuff going on and not enough free time. Sorry this update is really long...
Hi everyone, Thank u Joannne for the news and I've been trying to find that movie and I haven't had any luck so if I could get some ideas it would be very much...
Hi Everyone! I just joined the group and just wanted to say hello and introduce myself. I am a 16 year old sophmore and have had congenital muscular dystrophy...
Muscular Dystrophy and Neuromuscular Diseases Day on the Internet Manifesto http://www.distrofia-mexico.org/diadm Among the many diseases with known genetic...
Welcome Teen Angel! You'll find others congenital muscular dystrophy here. My soon to be 25 year old son, Petey, has duchenne muscular dystrophy. We're pretty...
Hi Teen Angel, My son is 9 1/2 & also has a form of congenital muscular dystrophy (type Ullrich). Welcome to the group! Susan ... From: teenangel992003 To:...
Hello I am a 55 year old mother of two and Nana to Sam. My daughter, Sarah has just been diagnosed with MD. She is 25 and she and Sam live with us here in...
Welcome to the group! I hope you find the answers you are looking for. What form of MD does Sarah have? Your daughter should not give up. It is shocking and...
Hi there, I understand as I was the same way when I got the news myself back in 1978. I've always found the MDA a good source of info or a place to found out...
Hi and welcome. I’m Adele and my son, Jason has Duchenne Muscular Dystrophy. He was diagnosed at age 4. DO you know what type of MD Sarah has? There are...
Hi implacey I am an adult with mitochondrial myopathy, a neuromuscular disorder supported by MDA and Muscular Dystrophy Canada. I am 66 years old now and I...
Dear Implacey, Welcome, welcome. whatever kind of md your Sarah has, you're in the right place and among friends. It is a shock, isn't it? There is lots of ...
... Is that site working properly for anyone? I just tried it, and wound up on a site that didn't look legit. This is what I found on the ownership... Has it...
