My son uses Miralax and that works well. Older guys with Duchennes are in mostly uncharted waters when it comes to bowel issues but it is very important to...
From Medical News Today Chase Card Services, the credit card division of JPMorgan Chase & Co. (NYSE: JPM), and the Muscular Dystrophy Association (MDA) formed...
My brother's stepson is 16 and had heart issues as a baby (he almost needed a pacemaker) and now has Autism (or something along those lines). As a result of...
Have you considered doing a poll? Terri ... From: "Cody Namesnik" <codemann@...> I'm wondering what everybody's bowel routines are? By which I mean,...
Hi- I don't have md, just a very very defunct colon. I take miralax nightly and supplement with an herbal laxative every other day. My son is 16, with DMD...
My nephew took a turn for the worse, and while my brother was on his way back down to NC (he had to return to work on tuesday) my nephew passed away. As you...
I use to speak with a then young man by the name of Chad Gerlach. He was a true inspiration to our family when our son was diagnosed many years ago. I have...
Terri, I am so sorry for your losses. I worry about my son every single day. He is currently 18 years old. He only takes Digoxin and Enalapril for his...
I'm so sorry to hear of the loss of your nephew. Take care John Herrmann momdmd@... wrote: My nephew took a turn for the worse, and while my brother...
Terri, I am so sorry to hear about your nephew. How old was he, and how old was Alex. I have a son who just turned 22 and worry so much about him every day. ...
SKumbera@...
Aug 6, 2007 1:51 pm
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Terri, I'm so sorry about your boys. You and your families will be in my prayers and thoughts. Holly momdmd@... wrote: My nephew took a turn for the...
Dear Terri, I'm sorry to hear about ur nephew passing away as I'm sure that after already looseing one member this year it makes it even harder to deal with as...
They were both 16. Alex died 4 days after his birthday and Louis was a couple months older or younger than Alex. You probably know but I have 2 other sons,...
Hi all...Timothy is about ready to start UF this fall, his new doctors has him visiting all the new specialties to make sure everything is ok..but had a...
Dee. I’ll be keeping Tim in my prayers. Can you tell us a little more about the concern the doctor has with Tim’s hands and what type of surgery are they...
I will keep him in my prayers. The G-Tube surgery itself really isn't too big of a deal. Getting into a comfortable routine feeding schedule is the hardest...
Saw this post about g tube surgery and thought the following might be of interest. MitoAction recently launched a childrens illustrated book 'When Jeremy...
I know how helpful prayers are. I have a friend, He's 28 and has DMD. They aren't on any of these lists, though I have encouraged the family. He's the one...
I was wondering how you guys keep your balance while riding in a van? Do you sit facing forward or sideways? The other day we had to stop fast in heavy...
Donna, what I’ve seen some of the little kids use is a over the shoulder, 4 point harness. I have spoken to Jason about getting one for him because each...
Donna, That way I'm understanding it, it doesn't sound like a seatbelt issue. What about some sort of head band that you could wear that goes around the head...
We would like to thank everyone for their prayers for Timothy. His surgerywent fairly well and quickly. He is still in pain, he currently has a high fever...
Hi Everyone, Sorry for not updating sooner but we were just having “too much fun” in Massachusetts to write an update! We truly enjoyed our vacation in ...
Morning everyone (OK, if u live on the east coast, good morning, if you don't, good evening! <wink>)...wanted to give everyone an update on Timothy. He started...
Hi Dee I hope Tim is feeling much better very soon. Can I ask why Voc Rehab is not going to modify your van for him? I'm curious (and now concerned)...
