New genetic test developed at Emory advances detection and diagnosis of muscular dystrophy Wednesday, 27 June 2007 By Emory University A new genetic test...
This was on another site and I thought this might be of interest to some . I bought a new Toshiba laptop this weekend and I stumbled across something that ...
Hi everyone:  It is hard to believe it is already July. Where has the time gone. I have 10 days left of class and then I am done until September 4th. I...
Hi George, How is Alex doing? I bet he is real disappointed that he could not go to the Euro cup. Do you know how the team did? Is there is web site to...
Hi Everyone: MJ has a favor for you all and anyone else you know.?MJ has been asked to compile a?list of complaints?against Apria about?your negative...
Soon after I came home from the hospital after my respiratory failure in 1991 I had Apria but it has been so long since I had them that I don't remember what...
Haven't been on any for a while, one has a lot of spam, one doesn't have much going on. Hope people join and start talking about their info and problems. A...
life is going on for me. summer is alway busy. and then we are always trying to get all of Jason's annual doctors appointment and evaluations done. Good...
Hi everyone:  Happy Friday the 13th to you, hope it was a good day and not bad or unlucky!  I am officially done with summer school (shouting hooray) and...
From Medical News Today Researchers at the University of Pennsylvania School of Medicine report how the gene for utrophin, which codes for a protein very...
It’s so funny that this was released today. I just got back from the PPMD conference where I meet Kay Davies, who has been working on Utrophin for the...
Hi Arlene, People are also chatting at the Parent Project Muscular Dystrophy Messageboard. www.parentprojectmd.org Hope this helps. DMD Support is pretty...
From Medical News Today The Muscular Dystrophy Association Art Collection is celebrating its 15th year of showcasing the work of artists affected by...
Is it safe to take calcium or meds for osteoporosis if one cannot stand?? My son is 15 with DMD and has just broken a bone.? He is not taking anything for bone...
Jiggyj0@...
Jul 20, 2007 4:28 pm
19877
My son is 32 and has DMD and he takes Fosamax once a week to make his bones stronger and he gets calcium in milk and orange juice and his vitamin supplements....
JoyceGlass@...
Jul 20, 2007 4:39 pm
19878
Hi there, The very first thing before he takes anything is to talk to his Dr. and ask what is the best thing to do. I'm a nurse aid and I've learned this over...
I agree to check with your doctor however I am a 48 year old female with LGMD. I have osteoporosis and I take Fosamax once per day plus calcium and VD. I...
Yes, you can take Calcium if one can't stand. But remember that you also have to have sufficient Vitamin D so the body can absorb the calcium. Jason takes a...
Hi Joy, My son, also 15, has been taking a 1,000mg Tum twice a day since his diagnosis 7 years ago. This didn't change when he broke his leg 4 1/2 years ago,...
Hi Adele, I'm wondering why Jason takes the huge dose of vitamin D twice a week, rather than a smaller daily dose. Hope you are both well! Johanna ... From:...
Johanna, has he also increased the amount of vitamin D. the body can’t use the calcium without the D. It can be a lot more than you might think is needed....
Adele, Ian takes 1,000 IU daily. We can ask next clinic whether it should be higher. My question to you was why Jason takes his intermittently, and not...
You should also talk to the doctor. When we found out my son Alex's bones were so bad (prior to his Scoliosis surgery) and planned an agressive campain against...
Johanna, thanks for saying that about Fosamax. I didn't realize it had such bad side effects. My son has been taking it for years now but he just started...
JoyceGlass@...
Jul 21, 2007 12:58 pm
19887
It’s the dose that his doctor wrote it for. How is Ian doing? Last week, the guy that runs the disabled sports programs was out in Indianapolis. There was...
That's great news, Adele. It's not hockey, but I'm sure Jason would enjoy it. Johanna ... From: Adele To: MD-List@yahoogroups.com Sent: Saturday, July 21,...
All the biphosphonates (Fosamax, etc.) can cause reflux, but the sitting up and using a full glass of water will work for many people to prevent that; some you...
Is there any side effects from the nasal spray involving the eyes ? ... sitting ... symptomatic ... over ... underrported/underrecognzed ... much ... drugs is ...
I just got results back for my three year old son. His aldolase was high at 16.1. His CK? I believe was very mildly elevated(203 and normal was 200 or...
