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Messages 19805 - 19834 of 21168   Oldest  |  < Older  |  Newer >  |  Newest
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19805
Some of you may remember a link I sent about a man from Holland who has been using midi wind controllers to teach people with DMD and other disabilities with...
George
gibsona40
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Jun 1, 2007
5:54 pm
19806
Please forward this email to any muscular dystrophy list serv - or send me their information and I'll email them myself - thanks - Marie Dear All, There are...
Pichaske, Marie
mpichaske
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Jun 1, 2007
6:15 pm
19807
Marie, So, you're saying the Inslee bill is better for DMD? Andrea "Pichaske, Marie" <mpichaske@...> wrote:...
Andrea Gapko
gapko17
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Jun 1, 2007
10:35 pm
19808
Andrea - Yes ­ because biotechs will not put money, time and energy into developing biologics without some guarantee that they can recoup their losses. Good...
Pichaske, Marie
mpichaske
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Jun 1, 2007
11:48 pm
19809
G&L DJ SERVICE OF MILWAUKEE IS PROUD TO DONATE SERVICES TO ANT PERSON AFFECTED WITH MUSCULAR DYSTROPHY. THIS SRVICE IS LIMITED TO THOSE IN S.E. WISCONSIN ...
Bobby Gerambio
gerambio
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Jun 4, 2007
8:06 pm
19810
I am glad to say that Losartan Potassium 50mg/day seems to be working in my case of LGMD .I had started the same on February 18th 2007.Though the dosage works...
Sam April
sam_prl
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Jun 6, 2007
1:54 pm
19811
Wow - that sounds great Sam. How has it affected your strength thanks Marie Marie Pichaske Administrative Coordinator ... From: MD-List@yahoogroups.com on...
Pichaske, Marie
mpichaske
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Jun 6, 2007
2:17 pm
19812
Marie Pichaske Administrative Coordinator Center for Genetic Medicine Children's National Medical Center 111 Michigan Ave, NW Washington, DC 20010 202.884.6029...
Pichaske, Marie
mpichaske
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Jun 6, 2007
2:22 pm
19813
The PT from Holland who works with kids with disabilities on adapted musical instruments has put up a new link for the video I mentioned recently because the...
George
gibsona40
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Jun 8, 2007
5:28 am
19814
my messages have been bouncing, wondering if mime were the only ones...
kaj48ar
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Jun 16, 2007
12:11 am
19815
Nope, I'm not, but you seem to be working ok now. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of kaj48ar Sent: Friday,...
Adele
navymom2josh
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Jun 16, 2007
2:02 pm
19816
We went to an expo a couple of weeks ago and saw the pinball machine that has been adapted so that anyone, with any disability, can play it.  It is a regular...
JoyceGlass@...
Send Email
Jun 16, 2007
2:39 pm
19817
Joyce, That is so cool! I don't blame your son for not wanting to stop playing. I wouldn't be able to pull Gage away either lol. Too bad these aren't in more...
Candice Johnson
cjohnsonx5
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Jun 16, 2007
4:47 pm
19818
They sell them to anyone.  They cost about $6500.  Joyce ... From: Candice Johnson <johnsons-x-5@...> To: MD-List@yahoogroups.com Sent: Sat, 16...
JoyceGlass@...
Send Email
Jun 16, 2007
9:11 pm
19819
Yes mine has been bouncing too. Does anyone know why this happens ? Traceyanne...
traceyanne
artytrace
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Jun 18, 2007
7:31 pm
19820
LoL...no #1, your dealing with Yahoo....lol he is related to Uncle Murphy (murphy's law)....lol and you been tagged by Uncle Murphy through cousin...
newspirit41
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Jun 20, 2007
11:54 pm
19821
I saw this at another site and really wanted to share it with this group just in case there are parents from India here.... Dear parents and guardians of...
newspirit41
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Jun 21, 2007
12:03 am
19822
Yahoo use to be so much better. Then they started with upgrading and adding all these new features. And then they went the same way as AOL. Adele _____ From:...
Adele
navymom2josh
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Jun 21, 2007
12:19 am
19823
It is a very good idea to have an India specific group to exchange information on current treatments, progress in treatment methodologies, emotional support...
sridhar ramachandra
smramachandra
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Jun 21, 2007
4:52 pm
19824
Dear Folks from India, I work in MD research in Washington DC. Right now, Lakshmi, from Channai, India is here working on some techniques to take back to...
Pichaske, Marie
mpichaske
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Jun 21, 2007
4:59 pm
19825
... From: "michaelbryanpope" <michaelbryanpope@...> To: <MD-List-owner@yahoogroups.com> Sent: Wednesday, June 20, 2007 5:04 PM Subject: another question ...
Charles D. Rhodes
jedimasterxp
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Jun 21, 2007
8:04 pm
19826
Yes, There is a Mobil arm supporter that my son has been using since spinal fusion. Here is a link and picture of what we are using. Here is a link....
Adele
navymom2josh
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Jun 21, 2007
8:20 pm
19827
Have any of you had luck with sleep study's? Its going to be a nightmare what with lifts, bed problems, positioning, toileting. Is it worth all the hassle?...
Doug
ddhh40
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Jun 22, 2007
2:56 pm
19828
Not sure if I can answer the question, Is it all worth it? Where we go for the sleep studies, they have a lift that we can use. Jason uses a urinal for pee...
Adele
navymom2josh
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Jun 22, 2007
3:40 pm
19829
Hello Doug, I'm sure most doctors realize the "hassle" we face, yet in order to make better decisions concerning patient care they put families through certain...
denger2@...
adenger
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Jun 23, 2007
12:35 am
19830
I think they are worth it. yes it is a hassle, making sure to have all the extras (I take the sling, urinal, mattress pad and pillows)...
knuckles 145
knuckles145us
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Jun 24, 2007
1:10 am
19831
I have been told I am a carrier my brother had duchene muscular distrophy and I need to know if my baby will definitely have this they have done the tests and...
query121
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Jun 24, 2007
7:25 pm
19832
Hi, DMD is caused by a flaw in the X chromosome of our DNA. A female has 2 X chromosomes and a male has an X and a Y chromosome. You will pass on one of your...
Charles D. Rhodes
jedimasterxp
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Jun 24, 2007
8:23 pm
19833
have your baby and love him no matter what... ************************************** See what's free at http://www.aol.com....
dragonflylili@...
lushuss_lili
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Jun 24, 2007
8:52 pm
19834
He there. If you are a confirmed carrier of Duchenne, then each one of your sons has a 50% chance of having DMD. Each one of your girls has an 50% chance of...
Adele
navymom2josh
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Jun 24, 2007
8:52 pm
Messages 19805 - 19834 of 21168   Oldest  |  < Older  |  Newer >  |  Newest
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