Some of you may remember a link I sent about a man from Holland who has been using midi wind controllers to teach people with DMD and other disabilities with...
Please forward this email to any muscular dystrophy list serv - or send me their information and I'll email them myself - thanks - Marie Dear All, There are...
Andrea - Yes  because biotechs will not put money, time and energy into developing biologics without some guarantee that they can recoup their losses. Good...
G&L DJ SERVICE OF MILWAUKEE IS PROUD TO DONATE SERVICES TO ANT PERSON AFFECTED WITH MUSCULAR DYSTROPHY. THIS SRVICE IS LIMITED TO THOSE IN S.E. WISCONSIN ...
I am glad to say that Losartan Potassium 50mg/day seems to be working in my case of LGMD .I had started the same on February 18th 2007.Though the dosage works...
Wow - that sounds great Sam. How has it affected your strength thanks Marie Marie Pichaske Administrative Coordinator ... From: MD-List@yahoogroups.com on...
Marie Pichaske Administrative Coordinator Center for Genetic Medicine Children's National Medical Center 111 Michigan Ave, NW Washington, DC 20010 202.884.6029...
The PT from Holland who works with kids with disabilities on adapted musical instruments has put up a new link for the video I mentioned recently because the...
Nope, I'm not, but you seem to be working ok now. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of kaj48ar Sent: Friday,...
We went to an expo a couple of weeks ago and saw the pinball machine that has been adapted so that anyone, with any disability, can play it. It is a regular...
JoyceGlass@...
Jun 16, 2007 2:39 pm
19817
Joyce, That is so cool! I don't blame your son for not wanting to stop playing. I wouldn't be able to pull Gage away either lol. Too bad these aren't in more...
I saw this at another site and really wanted to share it with this group just in case there are parents from India here.... Dear parents and guardians of...
Yahoo use to be so much better. Then they started with upgrading and adding all these new features. And then they went the same way as AOL. Adele _____ From:...
It is a very good idea to have an India specific group to exchange information on current treatments, progress in treatment methodologies, emotional support...
Dear Folks from India, I work in MD research in Washington DC. Right now, Lakshmi, from Channai, India is here working on some techniques to take back to...
Yes, There is a Mobil arm supporter that my son has been using since spinal fusion. Here is a link and picture of what we are using. Here is a link....
Have any of you had luck with sleep study's? Its going to be a nightmare what with lifts, bed problems, positioning, toileting. Is it worth all the hassle?...
Not sure if I can answer the question, Is it all worth it? Where we go for the sleep studies, they have a lift that we can use. Jason uses a urinal for pee...
Hello Doug, I'm sure most doctors realize the "hassle" we face, yet in order to make better decisions concerning patient care they put families through certain...
I have been told I am a carrier my brother had duchene muscular distrophy and I need to know if my baby will definitely have this they have done the tests and...
Hi, DMD is caused by a flaw in the X chromosome of our DNA. A female has 2 X chromosomes and a male has an X and a Y chromosome. You will pass on one of your...
He there. If you are a confirmed carrier of Duchenne, then each one of your sons has a 50% chance of having DMD. Each one of your girls has an 50% chance of...
