MD-List : Messages : 19745-19775 of 22639

I would have probably considered that myself but I didn't know how to go about it and of course Christian ended up having DMD so I doubt his would have helped.

Terri

----- Original Message -----

From: Vikki Stefans

To: MD-List@yahoogroups.com

Sent: Thursday, April 26, 2007 10:28 PM

Subject: [MD-List] Stem Cells

I have a family with an affected son who is wondering whether to banl stem
cells from their soon-to-be-born daughter in hopes they may someday
benefit him. Its expensive, but they would do it if there is any
significant chance it could be of value. Any and all advice and
perspectives appreciated.

Vikki Stefans, M.D., pediatric physiatrist (rehab doc for kids) at UAMS
and Arkansas Children's Hospital. Working Mom of Sarah T. and Michael C.,
and wife of Henry Stefans. Every mom is a working mom!- OK, dads too.

#19774

From: "Brian & Karen Wolf" <bkwolf@...>
Date: Sat Apr 28, 2007 2:04 pm
Subject: Re: Stem Cells

sbcbwolf

Offline

My son is 7 with DMD and we just had a girl on Thursday - we used Viacord to store the cord blood - I'd highly recommend doing this. you only get one shot at it, and you might as well make it count. You never know that if they don't come up with a need for DMD, you or someone else in your family could develop a medical issue that those cord cells could save a life. Right now the majority of illnesses that can be cured are blood related (leukemia, etc...) but only the future hold the answers.

We picked viacord from a recommendation from a friend, currently viacord is one of the few (if not the only) company that is growing the cells to multiply the number of them. We will know in 6-8 weeks if the sample sent out has enough in it to be used for storage.

Good luck!

Brian

#19773

From: Michael Raymond <mbrstooge@...>
Date: Fri Apr 27, 2007 4:54 pm
Subject: First Demonstration Of Muscle Restoration In An Animal Model Of Duchenne Muscular Dystrophy,

mbrstooge

Offline

You can read full story here.

Implications For Treating Many Types Of Genetic Diseases

From Medical News Today

Using a new type of drug that targets a specific genetic defect, researchers at the University of Pennsylvania School of Medicine, along with colleagues at PTC Therapeutics Inc. and the University of Massachusetts Medical School, have for the first time demonstrated restoration of muscle function in a mouse model of Duchenne's muscular dystrophy (DMD). The research appears ahead of print in an advanced online publication of Nature.

"This new class of treatment has the potential to help a large number of patients with different genetic diseases that have the same type of mutation," says senior author H. Lee Sweeney, PhD, chair of the Department of Physiology at Penn. This genetic flaw causes from 5 to 15 percent (and in a few instances up to 70 percent) of individual cases of most inherited diseases, including DMD, cystic fibrosis, and hemophilia.

Sincerely,

Michael Raymond

Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#19772

From: "Adele" <jasona65@...>
Date: Fri Apr 27, 2007 12:19 pm
Subject: RE: Stem Cells

navymom2josh

Offline

Vikki, So far, from what I’ve heard, it’s a great thing to be able to do. I don’t think at this time it’s a cure, but it seems to be helping. Who knows what research will find over the next few months and years.

Adele

From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Vikki Stefans
Sent: Thursday, April 26, 2007 10:28 PM
To: MD-List@yahoogroups.com
Subject: [MD-List] Stem Cells

I have a family with an affected son who is wondering whether to banl stem
cells from their soon-to-be-born daughter in hopes they may someday
benefit him. Its expensive, but they would do it if there is any
significant chance it could be of value. Any and all advice and
perspectives appreciated.

Vikki Stefans, M.D., pediatric physiatrist (rehab doc for kids) at UAMS
and Arkansas Children's Hospital. Working Mom of Sarah T. and Michael C.,
and wife of Henry Stefans. Every mom is a working mom!- OK, dads too.

#19771

From: Vikki Stefans <vstefans@...>
Date: Fri Apr 27, 2007 2:28 am
Subject: Stem Cells

vstefans

Offline

I have a family with an affected son who is wondering whether to banl stem
cells from their soon-to-be-born daughter in hopes they may someday
benefit him. Its expensive, but they would do it if there is any
significant chance it could be of value. Any and all advice and
perspectives appreciated.

Vikki Stefans, M.D., pediatric physiatrist (rehab doc for kids) at UAMS
and Arkansas Children's Hospital.  Working Mom of Sarah T. and Michael C.,
and wife of Henry Stefans. Every mom is a working mom!- OK, dads too.

#19770

From: Michael Raymond <mbrstooge@...>
Date: Thu Apr 26, 2007 8:56 pm
Subject: Muscular Dystrophy - Medical Research Council Award �3.5 Million, UK

mbrstooge

Offline

You can read the full story here.

From Medical News Today

The Medical research Council (MRC), has awarded �3.5 million to support collaboration between the Neuromuscular centres in London and Newcastle over the next five years, to tackle the gap between basic science and patient benefit. The bid was coordinated by Professor Michael Hanna and Philip Butcher, the CEO of the Muscular Dystrophy Campaign was actively involved in this initiative which will focus on the translation of laboratory research findings into clinical trials and new treatments for children and adults with disabling neuromuscular diseases.

A new research centre will be established by the end of the year. This centre will be the first 'translational' research centre in the UK for the study of neuromuscular diseases and will be based in the Institute of Neurology and the Institute of Child Health at University of London.

Sincerely,

Michael Raymond

Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#19769

From: Sam April <sam_prl@...>
Date: Tue Apr 24, 2007 5:29 pm
Subject: Re: sooooooooooo happy for all----more on PTC124

sam_prl

Offline

Hi Diane,
If they succeed, I would call it a revolution in medicine.Fit for a noble prize. Can you imagine 2000 genetic disorders & each disorder has millions of patients around the world? Can you imagine how many will benefit?

Diane <dpro@...> wrote:

Wow! Can you just imagine what a difference this will make to the medical community! It's just awesome.

Diane

----- Original Message -----

From: Sam April

To: md-list

Sent: Tuesday, April 24, 2007 4:46 AM

Subject: [MD-List] sooooooooooo happy for all----more on PTC124

A pill to treat 2,000 genetic disorders

    A radical new pill that could treat almost 2000 inherited diseases including some forms of cystic fibrosis and muscular dystrophy could be available within three years, say experts.
    The drug is able to repair faulty genes in the body that lead to crippling illness, and is already in the early stages of human trials after promising results in mice. Scientists say that if the trials go well, it could be licensed as early as 2009.
    The drug is unique because it can correct a mutation that leads to thousands of diseases. Known as PTC124, it has already had encouraging results in patients with Duchenne muscular dystrophy and cystic fibrosis.
    The pill works by effectively forcing the body to ignore genetic mutations, and to produce normal proteins, rather than the mutated versions which lead to disease. Patients would have to take it throughout their lives. �There are literally thousands of genetic diseases that could benefit from this approach,� Lee Sweeney, of the University of Pennsylvania, who is leading the research, said. �What�s unique about this drug is it doesn�t just target one mutation that causes disease, but a whole class of mutations.�
    Made by PTC Therapeutics, the pill has been staggeringly successful in animal models. A study published on MOnday in Nature magazine shows that in mice with a mutation that causes Duchenne muscular dystrophy, the drug starts dystrophin production and restores their muscles to health.
    The research also suggests it should also work against more than 1,800 other genetic illnesses.
    Experts on Monday hailed the �wonder pill� as a major breakthrough. Marita Pohlschmidt, director of research at the Muscular Dystrophy Campaign, said the results were �very encouraging�.
    She said: �We look forward to the publication of the full results of these clinical trials so that we can see more clearly what the prospects and possible timescales are for treatment.� DAILY MAIL

Read more about PTC124

Pls go thru the FAQ at the bottom of the page. Very encouraging.

Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#19768

From: "Diane" <dpro@...>
Date: Tue Apr 24, 2007 1:16 pm
Subject: Re: sooooooooooo happy for all----more on PTC124

dianeproc

Offline

Wow! Can you just imagine what a difference this will make to the medical community! It's just awesome.

Diane

----- Original Message -----

From: Sam April

To: md-list

Sent: Tuesday, April 24, 2007 4:46 AM

Subject: [MD-List] sooooooooooo happy for all----more on PTC124

A pill to treat 2,000 genetic disorders

    A radical new pill that could treat almost 2000 inherited diseases including some forms of cystic fibrosis and muscular dystrophy could be available within three years, say experts.
    The drug is able to repair faulty genes in the body that lead to crippling illness, and is already in the early stages of human trials after promising results in mice. Scientists say that if the trials go well, it could be licensed as early as 2009.
    The drug is unique because it can correct a mutation that leads to thousands of diseases. Known as PTC124, it has already had encouraging results in patients with Duchenne muscular dystrophy and cystic fibrosis.
    The pill works by effectively forcing the body to ignore genetic mutations, and to produce normal proteins, rather than the mutated versions which lead to disease. Patients would have to take it throughout their lives. �There are literally thousands of genetic diseases that could benefit from this approach,� Lee Sweeney, of the University of Pennsylvania, who is leading the research, said. �What�s unique about this drug is it doesn�t just target one mutation that causes disease, but a whole class of mutations.�
    Made by PTC Therapeutics, the pill has been staggeringly successful in animal models. A study published on MOnday in Nature magazine shows that in mice with a mutation that causes Duchenne muscular dystrophy, the drug starts dystrophin production and restores their muscles to health.
    The research also suggests it should also work against more than 1,800 other genetic illnesses.
    Experts on Monday hailed the �wonder pill� as a major breakthrough. Marita Pohlschmidt, director of research at the Muscular Dystrophy Campaign, said the results were �very encouraging�.
    She said: �We look forward to the publication of the full results of these clinical trials so that we can see more clearly what the prospects and possible timescales are for treatment.� DAILY MAIL

Read more about PTC124

Pls go thru the FAQ at the bottom of the page. Very encouraging.

Ahhh...imagining that irresistible "new car" smell?
Check out new cars at Yahoo! Autos.

#19766

From: Sam April <sam_prl@...>
Date: Tue Apr 24, 2007 9:46 am
Subject: sooooooooooo happy for all----more on PTC124

sam_prl

Offline

Send to a friend | Unsubscribe

A pill to treat 2,000 genetic disorders

    A radical new pill that could treat almost 2000 inherited diseases including some forms of cystic fibrosis and muscular dystrophy could be available within three years, say experts.
    The drug is able to repair faulty genes in the body that lead to crippling illness, and is already in the early stages of human trials after promising results in mice. Scientists say that if the trials go well, it could be licensed as early as 2009.
    The drug is unique because it can correct a mutation that leads to thousands of diseases. Known as PTC124, it has already had encouraging results in patients with Duchenne muscular dystrophy and cystic fibrosis.
    The pill works by effectively forcing the body to ignore genetic mutations, and to produce normal proteins, rather than the mutated versions which lead to disease. Patients would have to take it throughout their lives. �There are literally thousands of genetic diseases that could benefit from this approach,� Lee Sweeney, of the University of Pennsylvania, who is leading the research, said. �What�s unique about this drug is it doesn�t just target one mutation that causes disease, but a whole class of mutations.�
    Made by PTC Therapeutics, the pill has been staggeringly successful in animal models. A study published on MOnday in Nature magazine shows that in mice with a mutation that causes Duchenne muscular dystrophy, the drug starts dystrophin production and restores their muscles to health.
    The research also suggests it should also work against more than 1,800 other genetic illnesses.
    Experts on Monday hailed the �wonder pill� as a major breakthrough. Marita Pohlschmidt, director of research at the Muscular Dystrophy Campaign, said the results were �very encouraging�.
    She said: �We look forward to the publication of the full results of these clinical trials so that we can see more clearly what the prospects and possible timescales are for treatment.� DAILY MAIL

Click here to visit Nature
http://www.nature.com/index.html

Read PPMD's Press Release Below

FOR IMMEDIATE RELEASE

First Demonstration of Muscle Restoration in an Animal Model of Duchenne Muscular Dystrophy

Research funded by Parent Project Muscular Dystrophy

Using PTC124, a new type of drug that targets a specific genetic defect, H. Lee Sweeney, PhD, the scientific director of Parent Project Muscular Dystrophy (PPMD), along with colleagues at PTC Therapeutics, Inc. and the University of Massachusetts Medical School has for the first time demonstrated restoration of muscle function in a mouse model of Duchenne muscular dystrophy (DMD). The research appears ahead of print in an advanced online publication of Nature, released on Sunday, April 22.

“This new class of treatment has the potential to help a large number of patients with different genetic diseases that have the same type of mutation,” said Dr. Sweeney, the senior author of the study and chair of the Department of Physiology at the University of Pennsylvania. This genetic flaw causes anywhere from 5 to 15 percent of the individual cases of most inherited diseases, including DMD, cystic fibrosis, and hemophilia.”

The new drug was developed by PTC Therapeutics, a biotech firm located in South Plainfield, NJ. It binds to the ribosome, a cellular component where the genetic code is translated into proteins, one amino acid at a time. The drug allows the ribosome to read through a mistake in the genetic code called a premature stop codon in order to properly make whole proteins.

In DMD, patients are missing dystrophin, a protein that helps keep muscle cells intact. About 15 percent of DMD patients do not make dystrophin because of the mutation. DMD eventually affects all voluntary muscles, as well as heart and breathing muscles.

PTC124 attaches to ribosomes in all cell types within the MD mouse model, overriding the mutation in the dystrophin gene that tells it to halt production of the protein. Instead of stopping, the full-length dystrophin protein is made. The drug enables enough protein to be made to correct defects in the muscle of the DMD mouse, and at the same time the drug does not prevent the ribosome from reading correct “stop” signals in the genetic code to make other necessary proteins.

“Enough dystrophin accumulated in the muscles of the MD mice so that we could no longer find defects in the muscles when we examined them,” says Sweeney. “For all intents and purposes the disease was corrected by treatment with PTC124.” The drug allowed dystrophin to be made in cells in which it was previously absent, to be delivered to the proper location at the cell membrane, and to induce restoration of muscle function in rodent muscles.

PTC124 is presently nearing the end of a Phase II multi-center clinical trial in DMD patients, of which Children's Hospital of Philadelphia is a major accruing site.

“This is a very big first,” said Kimberly Galberaith, Vice President of Parent Project Muscular Dystrophy, which helped fund the research. “Twenty years ago, DMD was the first inherited disease to have its gene discovered. Now DMD is the first to be used as a model for restoration of muscle function through drug therapy. Clearly, the research dollars that go toward funding DMD research generate advances that are broad in scope and benefit families well beyond the DMD community.”

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy. PPMD funds critical research and provides families with up-to-date information and vital connections with other parents, supporters, and medical providers. For more information, visit www.parentprojectmd.org.

#19760

From: Vikki Stefans <vstefans@...>
Date: Mon Apr 23, 2007 2:49 am
Subject: Re: Son had Stroke

vstefans

Offline

I'm so sorry to hear this, and I think we had one patient with a similar
event here. It is possible to have stroke from either low output or
embolus (blod clot) from the heart. The Lovenox sounds like the right
idea, plus whatever heart meds they can put him on and maybe low dose
Lasix plus potassium supplement for fluid retention would be possible to
consider if they are not doing it already.

I'm glad you are seeing a good recovery already though, that's something
on the plus side!

Vikki Stefans, M.D., pediatric physiatrist (rehab doc for kids) at UAMS
and Arkansas Children's Hospital.  Working Mom of Sarah T. and Michael C.,
and wife of Henry Stefans. Every mom is a working mom!- OK, dads too.

On Sat, 21 Apr 2007, MDA mail list wrote:

> My son is almost 21, DMD, and had a stroke on Sunday afternoon. They
> believe it probably was a blood clot in the heart that threw off some
> little ones. He has a little damage in three places. He is almost
> completely recovered but has a little trouble with getting the right
> word sometimes. He has congestive heart failure that has been controlled
> with medication. I can't remember his number on his heart function, but
> it isn't too far below normal. They put him on IV fluids which I know is
> not good, but they felt it best. It ballooned him up so they stopped
> them. Then several days later he was to go for an MRI of his heart and
> they didn't want him to eat. They put him on the fluids again and he
> started ballooning up again. I just turned them off and his cardiologist
> said I had done the right thing. He seems to have a little more problem
> with fluid retention now. The heart MRI hasn't been done yet because it
> wouldn't change the course of treatment but I am concerned and want to
> see if the function has changed much. He's a big guy so echo didn't show
> much, poor quality picture. He was send home on Lovenox (low molecular
> weight heparin - blood thinner). Two shots a day. Has anyone else had
> this experience? Any advice? I had never heard of one of these guys
> having a stroke. We were completely shocked.  Kathy

#19759

From: Chris Coulson <robinc1961@...>
Date: Sat Apr 21, 2007 5:32 pm
Subject: Re: STROKE!!

robinc1961

Offline

--- MDA mail list <kathywilburn2@...> wrote:

> My son is almost 21, DMD, and had a stroke on Sunday
> afternoon. They believe it probably was a blood clot
> in the heart that threw off some little ones. He has
> a little damage in three places. He is almost
> completely recovered but has a little trouble with
> getting the right word sometimes. He has congestive
> heart failure that has been controlled with
> medication. I can't remember his number on his heart
> function, but it isn't too far below normal. They
> put him on IV fluids which I know is not good, but
> they felt it best. It ballooned him up so they
> stopped them. Then several days later he was to go
> for an MRI of his heart and they didn't want him to
> eat. They put him on the fluids again and he started
> ballooning up again. I just turned them off and his
> cardiologist said I had done the right thing. He
> seems to have a little more problem with fluid
> retention now. The heart MRI hasn't been done yet
> because it wouldn't change the course of treatment
> but I am concerned and want to
>  see if the function has changed much. He's a big
> guy so echo didn't show much, poor quality picture.
> He was send home on Lovenox (low molecular weight
> heparin - blood thinner). Two shots a day. Has
> anyone else had this experience? Any advice? I had
> never heard of one of these guys having a stroke. We
> were completely shocked.  Kathy
Dear Kathy,
      I sincerly hope that ur son is doing better and
the only advice that I can give is to either limit the
intake of fluids or if he's not wearing a cathiter
already then they might have to put in a perminently.
I hope u all have a good day.
                           Chris




__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
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#19758

From: MDA mail list <kathywilburn2@...>
Date: Sat Apr 21, 2007 4:37 pm
Subject: Son had Stroke

mdamaillist

Offline

My son is almost 21, DMD, and had a stroke on Sunday afternoon. They believe it probably was a blood clot in the heart that threw off some little ones. He has a little damage in three places. He is almost completely recovered but has a little trouble with getting the right word sometimes. He has congestive heart failure that has been controlled with medication. I can't remember his number on his heart function, but it isn't too far below normal. They put him on IV fluids which I know is not good, but they felt it best. It ballooned him up so they stopped them. Then several days later he was to go for an MRI of his heart and they didn't want him to eat. They put him on the fluids again and he started ballooning up again. I just turned them off and his cardiologist said I had done the right thing. He seems to have a little more problem with fluid retention now. The heart MRI hasn't been done yet because it wouldn't change the course of treatment but I am concerned and want to see if the function has changed much. He's a big guy so echo didn't show much, poor quality picture. He was send home on Lovenox (low molecular weight heparin - blood thinner). Two shots a day. Has anyone else had this experience? Any advice? I had never heard of one of these guys having a stroke. We were completely shocked. Kathy

#19757

From: "Leslie Krongold" <elkrong@...>
Date: Tue Apr 17, 2007 10:56 pm
Subject: Please help me with my doctoral pilot study

elkrong

Offline

Hi, I'm Leslie and I have myotonic dystrophy. I've been facilitating
an in-person support group for several years. I also am a doctoral
student. My general research interest is support groups for people
with chronic health conditions.

I would appreciate your participation in an online survey which is a
pilot study. Your responses are completely confidential. There are 59
brief statements which you respond to and hopefully it will take you
only 15-20 minutes.

Thanks in advance.

To take the survey online, visit this page:
http://www.surveymonkey.com/s.asp?u=843533651512

-- Leslie

#19756

From: "Evadne" <sissy0390@...>
Date: Sun Apr 15, 2007 3:18 am
Subject: Alex

sissy0390

Offline

I truly feel your loss and i'm so sorry. I to lost my Terry at age 14,
May 23, 2005 because of heart problems. He also had DMD. He was in TCH
in Houston. When he passed, he was in peace and knew he was going to
heaven, and I did also. I know how bad it hurts, and it still hurts.But
God had better plans for him. We lost them way to soon. Agian, i'm so
sorry for your familys loss.

Reply | Forward | Messages in this Topic (20)

#19755

From: Kmmx2@...
Date: Fri Apr 13, 2007 8:37 am
Subject: Re: New grand daughter

Kmmx2@...

I have another sister 2 years younger than me. She was tested and is not a carrier. thanks for your input. kathy

See what's free at AOL.com.

#19754

From: GABRIELA CASTRO <nuncastro@...>
Date: Fri Apr 13, 2007 11:54 am
Subject: Re: New grand daughter

gabby293

Offline

Your sister is most likely a carrier, I am from tx and my sister and I have boys with DMD. Insurance companies will not pay for it. I know alot of sisters that have all their boys with DMD.

Kmmx2@... wrote:

Can you Help? My 14 year old has DMD and I am a carrier. I have a younger sister recently married who needs to have her DNA done to see if she is a carrier. She is having so much hassle with insurance to pay for the procedure. I thought I remembered someone possibly in Utah that would analyze the DNA relatively inexpensively. Do you know anything aobut this? Kathy in FL

See what's free at AOL.com.

#19753

From: MD-List@yahoogroups.com
Date: Thu Apr 12, 2007 10:40 pm
Subject: Poll results for MD-List

MD-List@yahoogroups.com

The following MD-List poll is now closed.  Here are the
final results:


POLL QUESTION: Should new member's messages be temporarily screened to prevent
spam?

CHOICES AND RESULTS
- Yes, 21 votes, 95.45%
- No, 1 votes, 4.55%



For more information about this group, please visit
http://groups.yahoo.com/group/MD-List

For help with Yahoo! Groups, please visit
http://help.yahoo.com/help/us/groups/

#19752

From: Kmmx2@...
Date: Thu Apr 12, 2007 5:54 pm
Subject: Re: New grand daughter

Kmmx2@...

Can you Help? My 14 year old has DMD and I am a carrier. I have a younger sister recently married who needs to have her DNA done to see if she is a carrier. She is having so much hassle with insurance to pay for the procedure. I thought I remembered someone possibly in Utah that would analyze the DNA relatively inexpensively. Do you know anything aobut this? Kathy in FL

See what's free at AOL.com.

#19751

From: ILuvMere@...
Date: Thu Apr 12, 2007 8:30 am
Subject: Re: New grand daughter

iluvmere2003

Offline

Terri,

I sent a check in Alex's name to the funeral home and just wanted to be sure it arrived and they informed you.

Carol

See what's free at AOL.com.

#19750

From: Sam April <sam_prl@...>
Date: Thu Apr 12, 2007 8:59 am
Subject: more on muscle stem cell & DMD

sam_prl

Offline

http://www.livescience.com/humanbiology/070409_female_stemcells.html

Food fight? Enjoy some healthy debate
in the Yahoo! Answers Food Drink Q&A.

#19749

From: Terri <momdmd@...>
Date: Thu Apr 12, 2007 8:15 am
Subject: RE: New grand daughter

imblueangel

Offline

That's great! I am glad it all went well and happy to hear about it.
Terri

To: dmdsupport@yahoogroups.com; MD-List@yahoogroups.com
From: ILuvMere@...
Date: Wed, 11 Apr 2007 19:08:14 -0400
Subject: [MD-List] New grand daughter

Hi all,

I want to announce that I have a new grand daughter born April 6. Her name is Mariska Sara Isabella (no, she is not a royal). She was 12 days late and weighed 9 pounds, 14 ounces. My daughter was tested and found not to be a carrier before she conceived. It is a happy occasion for our family. By the way, Phil is doing fine and is becoming very involved in both advocacy and band promotion.

Carol

See what's free at AOL.com.

Live Search Maps � find all the local information you need, right when you need it. Find it!

#19748

From: Chris Coulson <robinc1961@...>
Date: Thu Apr 12, 2007 4:52 am
Subject: Re: New grand daughter

robinc1961

Offline

ILuvMere@... wrote:

Hi all,

I want to announce that I have a new grand daughter born April 6. Her name is Mariska Sara Isabella (no, she is not a royal). She was 12 days late and weighed 9 pounds, 14 ounces. My daughter was tested and found not to be a carrier before she conceived. It is a happy occasion for our family. By the way, Phil is doing fine and is becoming very involved in both advocacy and band promotion.

Carol

Dear Carol,

I just wanted to wish u and the family congrats on the new addition to the family.

Chris

See what's free at AOL.com.

Don't get soaked. Take a quick peak at the forecast
with theYahoo! Search weather shortcut.

#19747

From: "Charles D. Rhodes" <jedicharles@...>
Date: Thu Apr 12, 2007 1:18 am
Subject: Re: Spam control - Posts by New Members are now Moderated

jedimasterxp

Offline

Thanks for the announcement. I should however mention that Wolfgang_NJ (Jeff McAllister) passed away December of 2005. He was a fantastic guy, and is greatly missed.

Charles

----- Original Message -----

From: rayharwood85730

To: MD-List@yahoogroups.com

Sent: Wednesday, April 11, 2007 3:37 PM

Subject: [MD-List] Spam control - Posts by New Members are now Moderated

Greetings, MD-Listers:

I've now set the MD-List message post controls to require messages
from "New Members" to be "Moderated" (that is, approved by a
moderator before actually sending to the list). Messages from
you "established members" SHOULD flow through without delay.

As founder of the MD-List, which was originally an E-mail-only
discussion group back in the early 90's (when "Yahoo" was just a
country saying! *chuckle*), I'm unfortunately no longer able to
monitor the group on a frequent basis.

So I definitely appreciate the help of Charles (as jedimasterxp) and
Jeff (as Wolfgang_NJ) for their volunteer efforts to do list
moderation. Please do continue to work with them on list issues,
and they will contact me for major issues that needs "list owner"
intervention". If you experience any difficulties with the list and
it's new settings, please contact them with as much details as
possible, to facilitate troubleshooting.

I do read the posts to the list when time allows, and am glad that
the general tone remains cordial and helpful. Thank you all for
continuing to make the list a valuable resource for others.

Ray

Reply | Forward | Messages in this Topic (2)

#19746

From: ILuvMere@...
Date: Wed Apr 11, 2007 7:08 pm
Subject: New grand daughter

iluvmere2003

Offline

Hi all,

I want to announce that I have a new grand daughter born April 6. Her name is Mariska Sara Isabella (no, she is not a royal). She was 12 days late and weighed 9 pounds, 14 ounces. My daughter was tested and found not to be a carrier before she conceived. It is a happy occasion for our family. By the way, Phil is doing fine and is becoming very involved in both advocacy and band promotion.

Carol

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#19745

From: "rayharwood85730" <Ray@...>
Date: Wed Apr 11, 2007 10:37 pm
Subject: Spam control - Posts by New Members are now Moderated

rayharwood85730

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