Terri, I'm so sorry - you should have had longer with Alex, the bad cardiomyopathy when it happens is a real tragedy for us and our young ones...I wish there...
Joyce, I have a few questions about your son's experience. Right now we are very much on our own. Nathan has not seen a respiratory professional in 2 years....
My son does not have a feeding tube or very severe scoliosis. He has used the portable ventilator for the past couple of years. He has used a bipap at night...
JoyceGlass@...
Apr 2, 2007 2:17 pm
19689
As Joyce pointed out, Bach is literally the leading physician when it comes to NIV. He's been at the forefront for many years, developing the techniques that...
Dear group and family of Alex, This is a very hard time for Alex and family and possibly others too. We all know that because of our disease we will be facing...
Terri, My heart is breaking for you and your family. I wish there were words that could make things better but I know there is nothing that can take away the...
From ScienceDaily In the April 1st issue of Genes & Development, Dr. Bruce Spiegelman (Dana Farber Cancer Institute) and colleagues identify a key genetic...
I wrote several emails last night but wasn't sure how many details anyone wanted. I will say basic info and you can write me off list if you want more. ...
Dear Terri, I¹m keeping you and Alex in my thoughts and prayers today. My deepest sympathy. Marie ... Re: [MD-List] April 2, Alex Dear Terri, Im keeping you...
Dear Terri...I'm so so ever sorry that it came to this. My heart goes to you and your family during this very sad time. Our thoughts and prayers are with you...
I am so sorry Terri. May god be with you and yours now at your time in need. Sue mom of Jon DMD age21 ... From: momdmd@... To: md-list@yahoogroups.com ...
SKumbera@...
Apr 3, 2007 3:32 pm
19699
Terri My eyes are wet and my emotions are flowing with deepest sympathy to you. Know that he is free and happy now and we will all be joining him near term. ...
Greg Evans
gregevans01@...
Apr 3, 2007 3:59 pm
19700
hi there i am really sorry for you at this time , and you are in my thoughts, alice and harry 3 (DMD uk)...
Terri Our deepest sympathy. May God Bless you. You are in our thoughts and prayers. Luciana Mom to Ijay 14 SMA 2 ... From: Greg Evans To:...
LUCY SWANEPOEL
lucie@...
Apr 3, 2007 5:08 pm
19702
Terri, I am so sorry but I'm glad Alex was peaceful and that he was able to speak such good words before the end. Carol **************************************...
Dear Terri, My deepest sympathies for your loss. I cannot say more than what others have already expressed. I pray time will heal your greif. Brian Denger ...
... very hard time. Wanda mom of son with DMD that is 15. ... young ... more that ... with ... out to ... prayers to ... UAMS ... Michael C., ... too. ... ...
Hi Terri, I'm very sorry for your loss. You all are in my thoughts and prayers. Best, Joanne ... From: Terri To: md-list@yahoogroups.com Sent: Tuesday, April...
I spoke to Terri for quit a while last night. She is doing OK as are the boys. Probably at the funereal, it will hit them all. She is totally overwhelmed by...
Thanks for the information. Marie Marie Pichaske Administrative Coordinator Center for Genetic Medicine Children's National Medical Center 111 Michigan Avenue,...
Here is the link about Alex at the Funeral Home: http://www.palmerfuneralhomes.com/viewobit.cfm?ID=174 ... I spoke to Terri for quit a while last night. She...
I just talked to the funeral home about donations to help towards the funeral/cemtary. She advised that it is a few thousand dollars and if you like to send a...
Thanks Dee. I hadn't gotten to that yet. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of newspirit41 Sent: Wednesday,...
how soon do they need to money? I mean I'm wondering if a credit card NOW is better than a check in the mail?? I'm planning on sending a check but didn't...
You are in my thoughts and prayers.My deepest and heartfelt sympathy to you and your family. If you ever need to talk just email me. I lost my wife back in...
The funeral home is aware that we are helping raise money for this, as well as his school. So I don't think they will stop the funeral due to funds. I'm sure...
The funeral will happen on friday, the Home is being very helpful to Terri. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On...
