Terri, I'm so sorry - you should have had longer with Alex, the bad cardiomyopathy when it happens is a real tragedy for us and our young ones...I wish there...
Hello Terri and Alex, You are in our thoughts and prayer. May god be with you at this most difficult time. How old is Alex? Sue mom of Jon age 21 DMD ... From:...
SKumbera@...
Mar 31, 2007 3:32 pm
19683
http://www.zelnorm.com/index.jsp?usertrack.filter_applied=true&NovaId=7852773755750897237\ my son takes this wanted to share the link ...
Dearest Terri You are in our thoughts and prays. Kind regards Luciana Swanepoel South AfricaMother to Ijay SMA Type 2 ( 15 Years old ) ... From: Terri To:...
LUCY SWANEPOEL
lucie@...
Mar 30, 2007 6:56 am
19681
Dear Terri, Someone is with you know. I can¹t be holding your hand but I am with you nevertheless. Yours most sincerely, Marie ... Re: [MD-List] update,...
I wanted to thank-all of you on your support especially with Alex. I just wanted to let you know that test results from the complete blood workup done on Alex...
In case you haven't seen this one. New Credit Card Scam Snopes.com says this is true. See this site - http://www.snopes.com/crime/warnings/creditcard.asp This...
From Medical News Today Duchenne muscular dystrophy (DMD) is characterized by progressive muscle wasting and usually results in death by the age of 30....
Well Reg, you got this within 24 hours and you replied immediatelly. cheers, J.P. ... around the ... origanal ... that messages ... forward ... of late! ... ...
If you need Voc Rehab to help you with van modifications, look them up in your telephone directory. They might be listed under a variety of names in different...
who do i contact about this matter?? ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at...
I am reading the lists but the messages are taking the long way around the world to get to me. I will get several replies before i see the origanal posts. I...
When we got a new van two years ago, I paid $10,000 for the van. Voc Rehab paid over $14,000 to add a lift, high top w/high doors, and tie downs. The van I...
There should have been "flagging tape" on the wire for safety, especially if this was temporary, and if not, then some sort of permanent marking. Adele Always...
I knew that Voc rehab paid for lifts, I have a very old one that needed a new motor and they were willing to pay the $500 for a new motor. Do you know what the...
The cable was not an electrical cable, but a cable seperating two parking areas. It was taught and I just didn't see it. They have the cement posts pained a...
Our local voc rehab will help with adaptations to a vehicle you already own but not with the purchase of a vehicle. I am sorry to hear about your incident....
Reg and Johanna, Have you guys got a CSF fund going? Its a program through the national office that provides your chapter with 20% of your annual fundraising...
Lanae. I so glad you weren't hurt. In an incident like that, I would try to find out who was responsible for that cable and let them know how dangerous it is...
... Hi, I have question - I remember seeing a post a few months ago about someone getting help with the purchase of a van through their vocational rehab ...
Hi, I have question - I remember seeing a post a few months ago about someone getting help with the purchase of a van through their vocational rehab department...
We have a system that we got from Radio shack. I am not sure of the name, but my son pushes a button and an alarm, almost like a school bell rings in our room....
My son is 32 and chose not to have the trach. also. Instead of a bipap during the day he uses a small portable ventilator to help him. It is a LTV 800 made...
JoyceGlass@...
Mar 26, 2007 1:33 pm
19657
Nathan (21) (with DMD) chose to reject a tracheaostomy years ago. 2 years ago he began using the Bi-Pap during the day. He has been using it 24/7 for almost...
My son uses the Silkaire overlay mattress from Hillrom. It is a continuous flow air mattress. It is easy to take with you when you go away overnight. It's...
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