hello all, posting after a long time. in fact i tried visiting this group severel times earlier but got a msg that this group no longer exists. anyway. i'm...
Correction on my Blog site address. _http://brothertodsfootprints.blogspot.com/index.html_ (http://brothertodsfootprints.blogspot.com/index.html) Come visit...
Hello. I too have myotonic muscular dystrophy and have relied on a bypap to keep me breathing whenever I sleep, nap, or just lay back and relax. The bypap has...
Thank you Joyce - I will contact him. Barbara ________________________________ From: MD-List@yahoogroups.com on behalf of JoyceGlass@... Sent: Wed...
Benson, Barbara D.
bbenson@...
Dec 27, 2006 5:11 pm
19288
Dr. Bach's phone number is: 973-972-4393 and his email address is: bachjr@......
JoyceGlass@...
Dec 27, 2006 3:49 pm
19287
Well, the term "reasonable" is very subjective. I know that you can go to most of the places that do wheelchair conversion and see if they have any used vans....
HI, I've seen Dr. Bach's information many times here and have neglected to keep it each time - can someone please post an e-mail or phone number for him. ...
Benson, Barbara D.
bbenson@...
Dec 27, 2006 11:27 am
19285
Hi all, hope you all had a nice Christmas. Does anyone know of any wheelchair vans available in Arkansas for a reasonable price? Thanks for any and all info....
Barbara: I have LGMD and also wear a full face mask for bi-pap at night. The medical equipment company who provided your machine should be able to assist you...
Simplicityâ„¢ Nasal Mask, Respironics Here is a link to a small mask that fits over the nose and works very well. Also, Dr. Bach told us once that we could...
JoyceGlass@...
Dec 26, 2006 2:01 pm
19282
Hi, my name is Barbara. My husband has myotonic muscular dystropy and must start using a bi-pap at night. He is having a really hard time with accepting the...
Hi Lisa, You should be seeing an occupational therapist for your daughter. They have the knowledge and the skills to order a wheelchair that is suitable for...
Happy Holidays to you! Good to 'see' you and hope you are doing well. Candice ... From: Chris Coulson To: MD-List@yahoogroups.com Sent: Thursday, December 21,...
I have to agree with Lisa about how scary it can be. I once told a friend that if we met I might be afraid to hug him, because I was afraid I would hurt him....
Hello Kate  Welcome! I¹ve forwarded your email to my son and his girlfriend. She just moved here from CA to be with him (and he has MD, on a vent, etc). I...
Hi, I would love to get some advice on getting a wheelchair for my 17 month old girl who has Congenital MMD. Right now Kayla is able to get around slowly by...
Hi Kate, I think that is wonderful that you are in love and moving to be with your man. Try not to be intimidated by all of the technology. It doesn't take...
Thank you for your concern.... I'm sure that my motives are correct; I see only the man I love, and understand that he is not his illness. My questions stem...
I just wanted to let all of my MD friends know that the 2007 PPMD Legistrative conference in D.C. is scheduled for Feb 11-13. This year, more than ever, you...
The ventilator is nothing more than a fancy computer controlled fan or air pump that forces air into his lungs. When breathing muscles are weak one can not...
... just follow your heart. i was a caregiver for my wife for the last 3 years and i told her when we got married that in sickness and in health i took care of...
Kate, I'm just a little confused. Your do not have a disability, but the man you are in love with does? I hope I have that right and if so, don't be worried...
I'm so new to all of this... but I am in love with a wonderful man. We met several months ago online, and are now discussing the rest of our lives together....
I'm thinking you might need to see a rheumatologist as well as neurologist - high CPK and nodules can occur in a condition called polyarteritis nodosa for...
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