Diana, Glad to hear the surgery went well. I am hoping the recovery goes smoothly and you can find solutions to some of the issues you are facing now. Looks...
No I didn't see any photo. Candice ... From: Adele To: MD-List@yahoogroups.com Sent: Thursday, August 31, 2006 10:01 AM Subject: RE: [MD-List] Vincent's Spinal...
Hi- We tried the mobile arm support after Ben's spinal fusion, but he could never use it effectively. So, I have one if you want me to send it to you. Now,...
hi all,I have started a blog http://outofstress.blogspot.com which explains about stress relief , weightloss,obesity ,constipation,cancer prevention etc...In...
Diana Really glad that the surgery went well. We went from hospital (Johns Hopkins) to Kennedy Krieger for rehab after Alex's surgery this summer. OT and PT...
HI Everyone Today I am working on the location for our BBQ Family fun...right now the best one I can find that is w/c accessible and affordable for up to 100...
Hi Everyone, First e-mail from my NEW college apartment! I'm still going through e-mail so if you haven't heard from me, I'm not ignoring you. I'm sure my...
Depending on what agency you are with you can ask to find your own nurses. I used to run my own ads, we interviewed the nurses then the agency met with them...
Hi Everyone, I am here in my apartment, watching the MDA telethon and relaxing. I have had a pretty good few days (always hit some speed bumps along the...
The dads' group at Yahoo that was recently started and mentioned here is developing nicely. It's not quite up to critical mass yet, so we're actively...
LAS VEGAS, Nev. (AP) — Jerry Lewis' annual Labor Day telethon raised a record $61 million to fight muscular dystrophy, bolstered by a huge donation from a...
I watched the telethone and on the updates they were talking like the FDA has approved a drug to start looking at useing on DMD as a treatment which has just...
Hi Jenny, yes there is a Mom's Cafe. I started the group a few years ago. It originally started as single parents cafe for single mom's with NMD/MD kids but we...
I posted a press release on mature muscle cells in fruit flies. What makes this important is the the genome of the fruit fly is essentially identical to the...
I talked to someone from ABIL today and was told that the program to pay the caregivers directly was approved last month but that the state is working out the...
I wanted to let everyone know that i'm doing alright however I did have a rough time watching the telethone last weekend. However the good news is that Kansas...
I wanted to let everyone know that i'm doing alright however I did have a rough time watching the telethone last weekend. However the good news is that Kansas...
New group This is for the serious minded people that have phycial disability and really wanting to meet people for friendship amd maybe more later.. Most group...
Hi: I posted 3 more papers on my blog today. I think these 3 papers give additional clues to the treatment and management of DMD. Please show this blog to your...
Hi everyone: Well, almost a full week has gone by and I have survived my first week of classes. Four days of classes and it went well. Tuesday and Thursday...
Hi, We just had our first Team meeting at school today for the year. I won't bore you with my frustrations, but I do have a question. Now that Adam is 10 and...
Hello group, Vincent is going through a really bad depression following his spinal fusion. He feels as though he has nothing to contribute to the world and...
Diana, That's a very hard thing to deal with. No matter what you or I can tell him, he may not listen. If you can get him to talk to some of the older guys...
Hi Diana, I am so sorry that Vincent is going through depression. Michael had his spinal fusion last October he was in the hospital for 19 days. Although he...
Thanks Elizabeth. Vincent can still play his x-box and uses his computer. I am so thankful for that. He has experienced a little more weakness in his hands...
I have beakers and not dmd, but at a stage where i am in bed or in my wheel chair, inside almost all the time now and found taking a light antidepressant...
