I have had delayed email Adele, but that takes the cake. Greg ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]On Behalf Of Adele Sent:...
Greg Evans
gregevans01@...
Aug 1, 2006 9:25 am
18878
Hi: my name is Chris a new member. I differently know how you feel as I was in this same boat and I choose a good friend as my choose and as durable peower of...
Adele, I will try to get my daughter on this list. I know she would get a lot out of this message board and DMD support group. She sometimes goes on the...
A friend of mine has a son with CP and his grandfather left him a special Needs Trust. They have a lawyer handle it but he was in a group home and people they...
Hello. Does anyone living in New York state know of any program offering assistance to families needing an accessible van? Any help would be appreciated. ...
Hello, Why don't you tried through the mda association maybe they can help you. denger2@... wrote: Hello. Does anyone living in New York state know of...
Dear Arlene, There is a test tha was used on me called a nerve conduction which tests the time that it takes a electric current to travel from point a to point...
Hi Brian, In searching online, I can't find it, but It's my understanding that a family can have the lift and modifications paid as part of EPSDT services...
I meant to add that I have only heard of this being available in New York. ... From: David & Joanne Wechsler To: MD-List@yahoogroups.com Sent: Wednesday,...
Some states do a lot of improvements to the house, others do not. In out state it is the Dept.of Rehab that does try to help with modifications. Arlene ... ...
... HI JENNY I AM TRULY SORRY YOU AND YOUR BOY HAVE TO GO THROUGHT THIS AWFUL DISEASE,I WILL PRAY FOR BOTH AND HOPE THAT LIFE CAN BE MORE EASING FOR YOU AT...
Greetings to all! Here are a few updates for The Jeffrey Journey and Operation Oprah: For those wondering who I am (since I don't often post on any SMA board),...
I say your request and I also have CMT. I was glad to hear that someone else out there has it also. I will be 45 tomorrow and would very much like to share...
I wnat to thank you for haveing this and for all of you thyat send in messages to the chat board. I know that I really appreciate haveing this. ... Yahoo!...
I was womdering if there was any groups other than the state that helps with modifacations as I live in Kansas annd am not able to get any more help from my...
Dear Jenny: I was wondering how Jayson was? I have some idea what you are going through as I myself can't walk. Please knoe that you are not alone in your...
I live in California and we use to have help here with changes to houses and trailers for us wheelchair users, but they cut a lot of the funding i use to get,...
Chris. Most of the help you are looking from is provided through the state. But you can try contacting your local State office on the Ageded(Edlerly). Many...
Hi all, I posted a while back asking about the EasyPivot lift (http://www.rand-scot.com/) as an alternative to a sling Hoyer-type lift - I did not find anyone...
We.ve used the easy pivot a few times. It's the lift that Jason's school got to use for him. We didn't like it at all. It's fine if you have some upper body...
Hi Adele, Interesting. I'm not sure why, but I'm not having that experience. My mother (an adult) is very far along ... close to 0 upper body strength (she can...
Jason has contractures of the shoulders, elbows, hips, knees and ankles. The Easy pivot, tried to straighten him out too much. Plus, the straps cut into him....
My son had leg contractures, we didn't realize it, then all of a sudden his legs were bent in the sitting position. Exercising really does help. His legs had...
HELLO MY SON HAS DMD AND SPRAINE HIS RIGHT ANKLE HIS BEING WEARING A CAST FOR THE LAST 3 WEEKS BUT LAST WEEK THE DR. ORTHO CHANGE HIS FIRST CAST THAT WAS MORE...
Jackie, I wish I had some advice for you but I have no idea about sprains. I hope it heals soon. What did your ortho say about it? What do you mean exactly...
