It looks to me like this post was a "virus" warning. It is a hoax - please disregard it. Snopes.com is an excellent source for checking rumors like these so we...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Hello Everyone, I dont like to brag much, but, I am currently attending AIU online for A.A Healthcare Admin. and I just found out that I made it on the Dean's...
Hi Kathy: We got a Hoyer Scale for MJ about 6 years ago. We had written a justification letter stating why it was needed, due to swallowing difficulty,...
Does anyone on this list use a hoyer lift that also has a scale? Was it covered by insurance or Medicaid? If not, how do you guys get weighed? A rep...
Does anyone here put olive oil through a gtube? My son doesn't have a bad problem but in case he would I just wondered if it would go through the tube or if...
I think as the boys get older their count is not as high as it was when young. They seem to deteriorate at a faster rate when young and growing. When older and...
Next time I see my doctor I will have to ask if they will do a DNA to see if I am a carrier or what it shows. Arlene ... high CPK is ... Behalf Of ... has...
I see a cardiologist annually for high chlosterol, it is borderline. She is a Hopkins cardiologiast that has done some reading on DMD, Mike also ggoes to her....
Michael went to Hopkins 3 days in August about a bloating problem. After having the stomach empty they found no problem there. However they told him it is...
sorry i've never had a liver biopsy ... From: Jackie Torres To: MD-List@yahoogroups.com Sent: Saturday, May 27, 2006 3:22 AM Subject: Re: [MD-List] Hello: What...
Constipation was the first thing I thought of - it is easy to be fooled, the stool coming out may not be as much as it really needs to be and build-up inside...
You got it right, the CPK is not reliable. DNA based carrier testing is used if there is only the one child of that mother affected, not cousins or uncles. It...
Adele Davey just had a back x-ray last week and it looked fine. He also has good posture in his wheel chair. This bloating symptom has me stumped. He also,...
Greg Evans
gregevans01@...
May 27, 2006 1:02 am
18553
Hello Adele, To my knowledge Davey has not walked for some time. Kind regards, Pat ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On...
Pat Furlong
pat@...
May 26, 2006 11:25 pm
18552
Greg, Have you recently checked Davey's cardiac status? Since I have not seen the 'bloating' you describe, I am unable to say anything definite, but my in my...
Pat Furlong
pat@...
May 26, 2006 11:23 pm
18551
Hi Jackie- Boys with DMD generally have elevated liver enzymes - it goes hand-in-hand with the elevated CPK level. A doctor who sees the elevated enzymes is...
The only way to test for carrier status is with the DNA test. A high CPK is just a indicator and in no way positive for carrier status. Adele ... From:...
Not sure what you all mean by "bloating" Most DMD boys when walking, push out their stomachs. It's their way of keeping their balance. If he is in a chair...
Davey is 13 now has in the last year appears to have started some bloating in the pelvic region. Last night I laid him on the bed and pressed around that area...
Greg Evans
gregevans01@...
May 26, 2006 7:44 pm
18547
When Mike was a child and the family tested my CPK was always borderling or average. Is there a better test to tell if a mother has MD? I get very tired these...
well it has already been two weeks so two more at the MOST...my sons pediatrician said that he would call as soon as the results come back...when i went to the...
why ... From: swpea503 To: MD-List@yahoogroups.com Sent: Thursday, May 25, 2006 3:04 AM Subject: [MD-List] Hello: Well most of us have boys with Duchenne...
Well, I'm not in agreement with the doctor when he say's that Duchenne is the only answer. It probably is, but there are other problems that could cause a...
My son went to the Hopkins Clinic and they never mentioned a liver biopsy. They did do a biopsy from his leg to see if he had DMD. Arlene ... question ... is...
I've heard of this and I think one person in the Baltimore/Washington area has one, but the cost is way high. I think, 5-8 years ago, it was around $50-60,000...
Thanks for your reply.But is good to know about the issues cause some Drs. are not educated enought and will like to find out what they believe with our...
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