Arlene, there is one place that I know of that is just for physically disabled people. It is right here in Columbia. I could find out more information for...
JoyceGlass@...
May 1, 2006 1:52 pm
18405
Hello, This message is for families affected by muscular dystrophy in Pennsylvania who have been directly affected by Medicaid cuts. A Washington, DC based...
The thing is, it is not only affecting PA but Florida big time as well...and probably other states as well. They have cut alot big time...and they seem to be...
Yea, I answered this BEFORE I read all the emails on the topic (although I did TRY to read them all first.) I actually think its probably a combination of the...
ok huge confusion. any takers? I asked to be shown how to use the cough assist with Alex because I heard that there is a trach attachement but I was told that...
Hello everyone, I don't post often but read every post that is sent. Vincent just had to have a PEG tube placed in order to "beef" him up prior to his...
hello group . i am a mom here , my son is now 2 5 yrs .old and he has duchennes : : : and HE stopped walking at the age of 1 0 and other moms here ? ...
Hi Josephine, My son has Duchenne also. He was diagnosed at age 10 and stopped walking at almost 13. He just had surgery to place a feeding tube because he...
Hi Josephine, My name is Terrie a.k.a. mammy to Trinity. She is my 2 year old grandaughter (she lives with us) and we are waiting for the results for Myotonic...
Years ago I received a booklet Central Maryland Region Guide to Services, Developmental Disabilities Administration. It list lots of agencies you can go to...
Where. I had an Aunt in Vineland. I'm just south of Baltimore. Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of ...
hi guys how r u guys this fine day and i have duchenne muscular dystrophy, 'm grant from england and i'm 29. my interests r asian cinema, collecting dvds and...
Hi. My son has Duchenne MD and he is 31 years old. I live near Adele and we are friends. Joyce...
JoyceGlass@...
May 6, 2006 10:08 pm
18422
My son is 10 1/2 years old with DMD and taking deflazacort for 3 1/2 years. He is ambulatory. During the last year, he suddenly developed cataracts and is...
Hi Prasad- My son will be 13 years old in July. He's been on deflazacort for 6 1/2 years. About three years ago he started developing cataracts. Bright...
jenkins5
jenkins5@...
May 7, 2006 4:25 pm
18425
My son has cataracts but his is not bad enough to be operated on. I also have them and do need my left eye operated on, I never took steroids. so I am not...
Even for minor dental surgery the doctors have recommended prednisone be increased. Arlene ... 1/2 ... developed ... changed ... ophthalmologist is ... treated...
Hi everyone: I am searching for a DME that does power wheelchairs in Southern Illinois/St Louis, MO area for a friend. Does anyone live in that area and can...
<>I am searching for a DME that does power wheelchairs in Southern Illinois/St Louis, MO area for a friend. Does anyone live in that area and can advise of...
There is a small article about the cough assist machine and medicare. After 13 months the machine is no longer rented and belongs to the patient. I would...
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