The Duchenne may or may not be the cause, Lyme is the great imposter. Get him a blood test for lyme ASAP. Greg ... From: MD-List@yahoogroups.com...
Greg Evans
gregevans01@...
Mar 30, 2006 8:18 pm
18306
As I found out from a school bus driver yesterday (Wednesday), my best friend, Jason (diagnosed with DMD) may be able to talk. It was such a great, yet odd...
Boy, 8, is pioneer for gene therapy Trial may help treat muscular dystrophy Wednesday, March 29, 2006 Misti Crane THE COLUMBUS DISPATCH RENEE SAUER DISPATCH...
my name is ginger i am very sorry hear that your friend has been diagnosed with duchenne, he is so young . I am 51 and i was diagnosed with limb girdle when i...
Please check http://www.feedyourgenesright.com. It discusses a strategy that I have been suggesting for the last 6 years. It lists companies that can test your...
Hello group, just wondering if there are others on here with FSH. It seems there hasn't been any mention of it, at least from what I have noticed. Thanks....
I live in arlington,tx and my son who is 12 has dmd, I think it would be nice if we had a visit? ... From: Michael Raymond To: MD-List@yahoogroups.com Sent:...
Hi Valerie, I sent the survey to you, if it is not too much trouble just your first feelings regarding hand held screwdrivers would be helpful. Thank you so...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help peoplethose who are suffering...
You don't even have to open this message to know that it's spam - the subject line clearly tells you that it is. Spam messages like this happen in pretty much...
Just out of curiosity, why would you post a link to an off topic spam message from another group here? The group itself appears strange to me. It has a name...
A few weeks ago, I saw the oddest message in the DMD Support Group <http://health.groups.yahoo.com/group/DMD_Support/> on Yahoo! Groups. All I can tell you is...
http://www.beckermusculardystrophy.org/ is a site for Becker's. People with Becker's would be a good target group for power tools of this type. George ... ...
Hi ginger. i'm kathy and my 13 year old has Duchennes MD. What other types of MD do your siblings have? How does one get Limb Girdle? In other words, my son...
Kmmx2@...
Mar 25, 2006 4:30 pm
18287
Ginger, I live in Staunton with my husband. He works at VMI and I work at Bridgewater College. Our two grown children live in California and Nebraska. My son...
Lanae, My son has Becker's and his hand strength is limited but he can drive with manual controls, write, shave and so on. His email is pwebbplay@.... ...
Hi Ginger and welcome. I'm Adele and my son, Jason has Duchenne. He is almost 21. Where in Virginia do you live? We live in Maryland near Baltimore. Adele ...
Hi linda, I have given some thought to your project I am glad you are doing research and seeking out sources. Although most on this group have DMD and would be...
What was decided on this? I am interested in helping but want to do it in the right way. Thanks - Lanae ... acceptable ... are ... the ... them. ... that ... ...
Hi Ginger, I also have LGMD most on this group have DMD or children with DMD. It can be informative for general MD info. If you want to chat with some one with...
where in virginia, i live in waynesboro. He is Risen, Mike Keen ... From: hummingbird0607 To: MD-List@yahoogroups.com Sent: Friday, March 24, 2006 3:47 PM ...
I am a new member and I have Limb-Girdle Muscular Dystrophy. I'm 51 and I have 6 other siblings and all have various types of MD except 1. I like to cook,...
Valerina, I can not tell you how many amazing people I am meeting! Thank you so much for your response. I'm at my other job (I work full time and go to...
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