Hello, My name is Yvonne, and I am glad that you have accepted me to your group. I am also a Muscular Dystrophy patient. As of June of 2005, I was diagnosed...
Hi Yvonne and welcome. I think there are some other young women on the lists with similar dx. Can anyone recall the young woman who is an artist and on some...
Welcome to the list Yvonne. We understand what life is like when your have a NM disease. Most of us here are parents of boys with Duchenne MD(DMD), but we...
Hello Yvonne, My name is Holly. My son is 21 with dmd. any time you want to talk you can email me through the group or personal. hhjgreene@... Glad to...
I am sooooo broken hearted to hear this news! I will most definitely have Terri and the boys in prayer. I don't know what else to say. . . Anneliese mom of...
Hello, My name is Yvonne, and I am very happy that I was accepted to your Hugs-N-Pain Group. I hope to be able to get to know a lot of you, whether it's...
Where are you ordering the cough assist masks? Mike's vendor is sending the kit from Respironics and the mask is to large. Occasionally I get the smaller size...
Welcome Yvonne. This is a great group. I think the person with central core disease Joanne's talking about is Jessica. Here are a two links for her: ...
Hi Yvonne and welcome to the group. My name is Jenny, but everyone calls me
Jenn:) I live in New Zealand and have a NMC too. Jenn ... From: Yvonne Nieves ...
Hi Jenn, Very nice to meet you. You said that you have NMC also, but I really don't know what NMC means.I am still very new to the MDA, so I really don't know...
Welcome Yvonne, I read a little about Central Core Disease, which is not very common, at
least in my reaserch. My best to you in the reasearch, I know by...
Hi Yvonne, ok I can explain some things for you so you can understand:) The name Muscular Dystrophy Association (MDA) is an Umbrella name for many
different...
Hi MJ, I check out your site quite often and see you have got a new TDX5
powerchair:) How do you like it? I also have a fairly new TDX5 too with
Tilt/Recline...
Hi I'm just wondering who's the Moderator here and has access to removing a
link for me and my old yahoo name smile0598 as I deleted it, if it's not
already...
The moderator abandoned the group ages ago so I think there's no way to do it. ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of ...
The one I have is a Pulmanex Cushion-Flex Anesthesia/Respiratory Face Mask made by VIASYS Healthcare. Looking on their website, there appears they make it in...
In a message dated 1/31/2006 1:24:17 PM Central Standard Time, jasona65@... writes: I just got off the IM with Terri. She say’s that the doctors do...
Hi Jenn, I enjoyed your site, especially the pictures. Joanne ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]On Behalf Of Jenny Smyth Sent:...
I spoke with Terri this morning (2/2/2006) Alex is still with us. They have taken him off of the nitrous which was given because of his ARDS. They have also...
Thanks Adele for the update ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]On Behalf Of Adele Sent: Thursday, February 02, 2006 2:36 PM To:...
Glad to hear it Adele. Worried about him. I too have an ALex about the same age and he will probably need the surgery soon. He's in our prayers. kathy mcdonald...
Kmmx2@...
Feb 2, 2006 9:01 pm
18082
Hi Joanne Thanks for visiting my site and glad you like it and the graphics. Jenn 1 «·´`·.(*·.¸(`·.¸ ¸.·´)¸.·*).·´`·» «·´¨*·.¸¸.*Smiles...
HI Terry: Just to tell you i am praying for alex and the rest of your family,God will help and i do want you to believe that we all care. love jackie and...
Hello Everyone, I am here because I have recently become good friends with someone who has MD, and I want to understand more about it. My friend is totally...
Terri, I am so very happy to read that things are looking more positive for Alex. I hope that he continues to improve and that you are still holding up well!...
Dear Joy, Glad to hear about your wonderful relationship. With cardiac drugs and pulmonary support, guys with dmd can live longer. I know of one guy who...
Hi Joy, I kinda understand where you are coming from:) My Ex boyfriend has DMD and he is now 30yrs old doing well considering he has a severe s curve, as he...
