Hi Sandra, Happy New Year to you and your son. I am new here also. Was diagnosed last month with Didtal Muscular Dystrophy/Markesbery Griggs type, adult onset....
Happy New Year to all! Thank you all for sharing your experiences. I can only say that it's true all of our kids are very unique and special and for us parents...
Happy New Year to all! Thank you all for sharing your experiences. I can only say that it's true all of our kids are very unique and special and for us parents...
My son turned 31 on December 30. He is doing very well considering he has Duchenne Muscular Dystrophy. He uses a ventilator during the day when he is home...
JoyceGlass@...
Jan 1, 2006 10:46 pm
17891
Happy Belated Birthday!!! May you have a wonderful new year and be blessed. That is awesome about the filmcompany and play writing! Best of luck in all his...
BEST OF LUCK TO JUSTINE AND HAPPY BELATED BIRTDAY! FROM JACKIE AV <raybug10@...> wrote: Happy Belated Birthday!!! May you have a wonderful new year and...
HI LIlieth: just to say i hope you have a happy new year next to your love ones.I was hoping to know if you can answer a couple of question i will like to ask...
Happy Birthday to Justin! my son Kevin (CMD) shares his birthday and just turned 18...
MzBet@...
Jan 2, 2006 1:02 am
17896
Sandra Welcome and I found your post very interesting. Kathy ... checked, even in 2000 there wasn't alot out there that really communicated. So I am glad there...
oh wow, that is IMPRESSIVE!! I hope that things continue to go so well!!! and he is a wonderful example, even for me!!! Easy to give up on our goals and dreams...
Happy Belated Birthday Justin, May this year meet all your needs in life with the progression of your business, may it flourish as you do with new and great...
Joyce, It is always great to hear about boys who have beaten the "old" statistics and have become fully involved men. It gives parents of today more hope than ...
I know and that is one reason why I am involved with this group. I feel like my experience is helping to give hope to all the other mothers and fathers who...
JoyceGlass@...
Jan 3, 2006 1:13 am
17902
It seems I .. have .. been right all along .. and the whole world .. wrong .. Just like I said .. They have been recommending almost if not ten times more iron...
Hello Jackie, Thanks and Happy New Year to you and your family as well! You can write me any time. I am currently at work but I am constantly checking my...
Joyce, Belated Happy Birthday wishes to Justin! Thank you for sharing a little about him. He sounds like a man who inspires those around him. He sure gives...
This sounds great. It's fun to hear what other kids long for. I wonder why only one adult can go? Hope Vincent has a great and memorable trip! Joanne ... ...
When my son had his wish trip, his dad and i both went and his two sisters SAMANTHA SAHM to Halee-6/19/92 Justin-4/14/96 _www.caringbridge.org/tx/justind_...
I am not sure about this case, but sometimes they will let the whole family go, and do everything BUT the main event.... wrestle mania in this case. In my...
I know a couple of friends already who have met a few nice honey’s off of this kind of stuff (here is the site they use: http://www.freebeerishere.info/irur...
brylee.stevens8602@...
Jan 6, 2006 2:51 pm
17913
Many of you might get duplicates of this. PPMD Parent Project Muscular Dystrophy is having their annual Legislative Conference in DC February 12-14. So far,...
Hello I'm new and hope you don't mind my jumping right in with a question. This is all so new to me. My mother has just been diagnosed with MD. She has a...
Welcome to the group, It's great to see more comming in here. I am pretty new myself. I dont have experieces in wheel chairs yet, only ankle foot orthodic...
Hi and Welcome. I'm Adele and my son Jason has Duchenne Muscular Dystrophy(DMD). What type of MD was your mother diagnosed with? You are right in assuming...
Adele thank you so much for all of your help. The doctor offered to do a muscle biopsy to determine what type of MD my mother has but she wasn't interested...
Hello: I am so sorry your mom hads this disease my son is 6 1/2 and has DMD and it is a very difficult thing when choosing something right or not for...
