From Monday Morning in Washington, DC ...... _*Web-based Health Care Transition Training Program for Youth and Families*_ We are pleased to announce that...
For those who know about the special dedication in The Jeffrey Journey, please bear with me so I can explain it to those unfamiliar with it, or skip on down to...
hi Folks We are having a problem with my son's wheelchair and having no luck getting it fixed. Our wheelchair guy has no clue what is wrong with it so I...
MzBet@...
Oct 8, 2005 2:11 pm
17419
What about trying to change the batteries to see if that is the problem. Has the batteries ever been changed seeing as it is 2 yrs old that may be what it is....
Hi Betsy, Our chair did this as well. We don't have the invacare chair though. Ours was a battery issue. It was first thought to be a wiring problem or a level...
Betsy I don't know anything about the Invacare chair but might be able to help think this through. It sounds like something intermittant. When it does stop,...
As an engineer, I believe it is simply the problem with batteries. If it is two years old and the batteries have been charged daily as I would normally expect...
Thank you all who have responded to my email about Kevin's chair problem. Our wheelchair guy is coming again tomorrow to bring Kevin a loaner chair for ...
MzBet@...
Oct 9, 2005 1:44 am
17425
Hi again Betsy, Your problem sounds exactly like what was going on with our chair at one point. It was a problem with the 'sensors' or mercury ball that would...
Hello Everyone, I haven't written for a while. Peteyi's been pretty sick and now is recuperating. Does anyone recommend a physical therapist in DC? A new...
Marie, I am glad to hear that Petey is getting better. Did he start taking steroids rececently? I thought I remember that he was going to start on ...
JoyceGlass@...
Oct 9, 2005 3:59 pm
17428
Hi Joyce, Thanks for the concern. Yes, he started Prednisone but came off of them about 6 months later - his decision. There are plenty of folks that have...
Betsy, We had similar problems starting back in April, although, not as bad as that. Jason has and Invacare Ranger X. It was 3 years old back in April. He...
Hi Marie. Justin is doing very well. Would you mind saying why Petey decided to go off the Prednisone. Did it help improve him in any way and did it cause...
JoyceGlass@...
Oct 9, 2005 11:56 pm
17432
Hello, My name is Hans Raines from WV 24 year old Male with DMD, i have been in a wheelchair since i was 11 years old and found out that i had DMD when i was 8...
Was glad to hear about the problems with the chair. I will think twice about getting one. Let me know if they ever figure out what is wrong with it. How...
Hello Hans - Good to see you post - my 23 year-old son, Pete, went to camp in Maryland. I am impressed that you have an MDA Group. Take Care, Marie ...
Yes, Petey is home. We''ve had seven trips to the hospital, 5 admissions. He had a trach put in in July - his decision. We were supposed to be out in 5 - 7...
I forgot the most important thing - Pete is home and now doing better than over a year ago - he's a little jaded on life right now but I'm hoping he'll find...
Pat, Here is the link to the Power Hockey team that Jason plays on. http://bennettblazerhockey.tripod.com/ On the picture, Jason is the first player on the...
Marie, you and Petey have been through so much and I'm so sorry to hear that. I hope the worst is over and things will improve for both of you. Joyce...
JoyceGlass@...
Oct 10, 2005 3:17 pm
17439
Marie, I think we need a night out. Can you make plans for a few hours away. Maybe Joyce, Vickie you and I can go someplace? Adele _____ From:...
Great idea - Wednesdays and Thursday's are good for me. MARIE Marie Pichaske Administrative Coordinator Center for Genetic Medicine Children's National Medical...
Thanks Joyce - it helps. Marie ________________________________ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of JoyceGlass@... ...
Marie, I'm sorry you've been having a rough go with Petey. It's understandable that you've been crashing, so now you can only go forward. It's good to have...
