Hi everyone. My name is Sarah. I live in Illinois. I am dating a male who has one of the diseases that fall under Muscular Dystrophy. There are things that I...
Hi Sarah, Are you disabled? Just curious! My son never liked talking about his disease either. First I'd suggest you find out if he has duchenne md or...
Hi Sarah, Welcome to the group. I have a son that just turned 20. He also doesn't like talking about his disability.. He has duchene md. If I can answer any...
SKumbera@...
Aug 4, 2005 1:48 am
16964
Hi Sarah! Nice to have you here. Out of curiousity- how old is the guy you are dating? My son is 17 and has Duchenne. He also doesn't talk much about it....
Seth & DeeDee Fuller
sethfuller@...
Aug 4, 2005 2:38 am
16965
Hi, It seems like your sons are pretty typical for their ages, wanting supermodels and all :-) They might get more realistic when they get older God willing. ...
My boyfriend is 34 and has SMA, I believe type II, but not for sure on that one. He was not properly diagnosed until the age of 18 but had it for most of his...
Hey Sarah! I don't post here all that often, but your message caught my attention. My name is Jen, and I also have SMA II (I'm pretty sure I'm a type 2, but...
Hi, welcome to the group. I have a best friend named Jason who is 20 years old who is diagnosed with Duchenne MD. It affected his speech ability, his legs...
Michael, Do you know where your firend Jason lives? I have a son Jason, who is 20 and has DMD. Adele ... From: "Michael Raymond" <mbrstooge@...> To:...
http://www.healthlibrary.com/news/2005/17-23-july05/news25.html 17 July 2005 The Hindu By Staff Reporter VISAKHAPATNAM: Muscular dystrophy, which is normally...
Histochem Cell Biol. 2005 Aug 10;:1-11 [Epub ahead of print] Links A new technique for the quantitative assessment of 8-oxoguanine in nuclear DNA as a marker...
Good morning everyone..I know its been awhile since I posted. I have not been feeling good physically (& emotionally) so I've not been arond to do the...
Yep, we're 3 weeks away from the Annual Jerry Lewis MDA Telethon. Click on the link below to find a station that's airing the program, and post that channel if...
Is there a mom on this site whose son swam with the dolphins for his make a wish ? I met a lady the other day who knew someone whose son did this, was...
I am thinking this isn't the one. I seem to remember this guy was from PA. ... http://www.geocities.com/HotSprings/Spa/9862/index.html ... son swam with the...
Oh I think I remember someone older getting to do this--wasn't it someone who always wanted to scuba dive? kaj48ar <grandmacat@...> wrote:I am thinking...
Has anyone in this group, either themselves or a friend or family member, that has a physical disabilty, ever taken a Disney Cruise line cruise? In October my...
We have taken cruises before, but not from the Disney Line. For the most part, the newer the ship, the better the accessibility is. We were on Carnival. The...
We were on the disney cruise in 2000 and the MAWF made sure we had a state room due to his w/c and equipment. otherwise there is plenty for you to do on there...
As far as the room goes, we already know all about it. They won't just give anyone a handicap accessible room, you have to go through all sorts of paperwork to...
Can someone tell me how to go about getting genetic testing and counseling? Does MDA provide this for people in relationships involving MD? We have been...
Hi Sarah, Your insurance won't cover a consult with a geneticist? If not I would speak with your primary care physician and see if there is bloodwork etc that...
I'm not absolutely sure but you may be able to get genetic testing through your local health dept. We have a local health dept. here that has a genetics...
