Hi Andrea: I hope you and your love ones are fine,Can you tell me is there any way DMD can affect the vision? jackie "Gapko, Andrea M." <gapkoam@...>...
We found the best place to weigh our kids is at the kidney dialysis unit. They have a scale to drive onto with wheelchairs. They also have a hoyer lift with...
I guess you could read Kathy's post as "why do you need to weigh the hook" LOL. Here is a link to the scale Kathy is referring to. You may be able to find...
Why do you need to weigh the hook? kaj48ar <grandmacat@...> wrote: Does anyone know where you can get scales for weighing that hook on a hoyer lift ?...
Does anyone know where you can get scales for weighing that hook on a hoyer lift ? I have seen them somewhere , but can't find them now. Also is this...
Hi Cassie, I am 27, have congenital muscular dystrophy, and had physical therapy for many years often five times per week. I never put much store in any...
My son doesn't take ACE inhibitors and Beta Blockers and his heart is fine at 37 with DMD. It is possible he could do better, however I think to much of these...
My son with DMD, my husband and myself take Q10 and E. We can't see if it makes any difference but is suppose to be good for your heart. I don't go to much by...
hi Arnold Thanks for the useful info. I am going to look into the DMG> Greg ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]On Behalf Of...
Greg Evans
gregevans01@...
Jun 29, 2005 3:47 pm
16821
Dear Joanne: You may have a good suggestion. If you go to the Life Extension site (www.lef.org) you will find the following: DMG (N,N-dimethylglycine) 125 mg,...
Just curious. Has anyone tried DMG? I was looking at a book about it today and there are many claims, including being an effective anti-inflammatory. I think...
Dear Andrea: I'm so sorry you have had no noticeable effects. It could be that you and your son are not taking enough of either or that the quality of either...
What is your point? My kids with DMD have taken Co Q-10 with no noticeable changes. I take it plus Vit. E, also with no obvious effects. Andrea ... From:...
FRIEDREICH ATAXIA - Antioxidant, Coenzyme Q10, Vitamin E - In a study of 77 subjects who were confirmed clinically and genetically to have Friedreich ataxia...
Hi: Everyone wants to know when their child should be given ACE inhibitors and beta blockers to keep their heart healthy. Please show this paper to your...
I've had some cases of being able to copmletely reverse contractures too. Had one family in spina bifida clinic that I was sure would need surgery but they...
Yes they did get almost fully straight. We never really went to a physical therapist we were given a sheet showing the exercises that should be done and...
Gene. 2005 Jun 19; [Epub ahead of print] Links Increased IRP1 activity in Friedreich ataxia. Lobmayr L, Brooks DG, Wilson RB. University of Pennsylvania School...
Hi lanae, I had never thought of the assistant or judge thing, I did send a letter to everyone I mentioned and I am going to advocate for them to change and...
donna, Glad you had a great time. We took a cruise two years ago, it was the best vacation we had been on. what port did they have accessible transportation...
Hi, I wanted to respond to these 2 subjects. I have LGMD which is less sever than DMD but some of the same issues come up. First the play day issue being the...
your welcome ... From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com]On Behalf Of MDA mail list Sent: Wednesday, June 22, 2005 2:34 PM To:...
Greg Evans
gregevans01@...
Jun 22, 2005 8:07 pm
16804
You were able to get your sons legs straight after they were already tight from contractures? We stopped PT since we were told by many professionsals that no...
Here is a paper that shows that there is a protein in the eye that protects the eye from inflammation and auto-immune responses. The professionals who are...
It is necessary to have stretching exercises or physical therapy, otherwise when in a wheel chair your body will lock in place from sitting with the legs down...
Hello All, My name is Cassie and I am a physical therapy student in Dallas, Texas. I just wanted to get your opinion on what the role of physical therapy is...
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