Hi Andrea: I hope you and your love ones are fine,Can you tell me is there any way DMD can affect the vision? jackie "Gapko, Andrea M." <gapkoam@...>...
I don't need to weigh the hook. i need a scale that hooks on to the lift for weighing a person ... Muscular dystrophy association Chronic illness ... Service....
I found this Hoyer Lift Digital Scale Hoyer Lift Digital Scale <http://www.rehabdirect.com/product/409.htm> Only $845.95 The Sunrise Medical 59011A digital...
Adele, thanks , It has been suggested that I look at a hanging scale for weighing animals, etc ,I found one at Harbor Freight Tools. Must say I like the...
Hi Jennifer, I am 32 and also have Congenital MD ( or so I'm told. this is my 3rd diagnosis) I was wondering if you would mind sharing how it has affected you?...
I'VE MADE SOME CHANGES TO MY SITE AND IT ALSO HAS A SLIGHTLY DIFFERENT ADDRESS. I ADDED A HTML CODE TO MY PREVIOUS SITE'S HOME PAGE. NOW I CAN NO LONGER FULLY...
Hi, I got an interesting phone message this afternoon from my hospital... I went to see my Dr. on the 27th of June at that time I took him a copy of an e-mail...
I have LGMD and my CPK levels are always elevated however LG is a slower progressing dystrophy than DMD. This higher level was probably in someone with DMD....
even as a carrier, my levels are elevated. I think CPK is also used as an indicator of heart problems in "normal" people which is probably why the big fuss....
I would say in any form of MD you are going to have muscle damage and therefore have an elevated cpk. 500 is not very high for someone with MD. My CPK runs...
I don't know much about LGMD, though I have heard it may.....and I think I have this correct, at times been the diagnosis prior to the idea that girls can also...
Did you know .. tocopherol has been shown to be able to .. substitute .. and is able to quench the destruction .. wreaked .. BY .. the iron .. ? .. in the ...
OK, So let me see if I am understanding things correct. You have LGMD, your CPK is at about 500,. Who was the doctor that you saw on the 27th? Is he a MDA...
Its very nice! Vikki Stefans, M.D., pediatric physiatrist (rehab doc for kids) at UAMS and Arkansas Children's Hospital. Working Mom of Sarah T. and Michael...
Hi all, Does anyone know of a foundation that grants wishes to older boys with DMD. Our son will be 20 the 27th of this month and would like to meet Ben...
SKumbera@...
Jul 7, 2005 12:03 am
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Hi: Try going to the wish foundation web,and explain to them what you have told us and see what happens hopefully they will help you grant your sons wish.God...
Hi Vikki, I am the mother of a 6 year old with DMD. and i am concerned about his behavior. my son moods swings from upset to sad from one jump and i am...
Sunshine Foundation P.O. Box 255 Loughman, FL 33858 (800)-767-1976 Ages Served - 3 to 21 Disabilities Served - chronic Terminal Geographical Area Served -...
I am only aware of Make a Wish, the Starlight Foundation. Have you contacted these to see what the cut off age is? Adele _____ From: MD-List@yahoogroups.com...
Hey Jackie, You might want a good psychologist at least as much as a physiatrist! Hard to even say if it is directly related to DMD or not. He almost sounds ...
Hy Vikky, Thanks for your reply, about the sleep study results their not back yet.johnell sleeps about 5-6hrs. per night the issue is he does not rest throught...
Lisa, I hope you and your love ones are fine. I love your new web,I hope one day i am able to do one for johnell.When you get a chance go on line so we can...
Holly, he is weighed at the clinic, but I wanted to be able to weigh more often to see if starting steroids is causing a big gain. ... these men, you need to...
Dr Vikki, Could you please read this. There are other post about this on fight for a future. Just wondering what your thouhgts are on this subject. I have...
Berit, this is very important to think about. Steroid medication should not be stopped abruptly unles it has been used only a short time. The dosages we are...
