Sissy, I'm so sorry about your loss. The death of a child is probably the hardest thing for parents to go through. I wish I could find something better to say,...
We are back and getting caught up on sleep. Sorry we haven't updated sooner, but we were tired. We think they packed a whole weeks worth of activities into two...
Looks like alot of great work happening Arnold. I hope we find some sucess. Thanks for sharing that info . Diane ... From: "apelofsky" <apelofsky@...> ...
Thank you all for your support. Another thing I would like to say is, that when Terry was in the ER, and fighting to get stable, He calmly said " I love you...
Sissy, I am so sorry for your loss. I know it is not easy to lose Terry. I will keep you and your family in prayer. If there is anything else I can do let...
Have you checked out the 2005 MDA grants? Check out http://www.mdausa.org/research/grants/2005GRANTS.pdf It seems there is nothing for today's generation. Does...
Hi Sissy, I am sorry for your loss but you and your family showed incredible courage to allow Terry to die in the way he wanted to. I'm so glad his last day...
Sissy, I am so very sorry for your loss. I was very moved by your post and encouraged somewhat that Terry's final day was spent in such a warm and supportive...
Sissy : I hope that when you get a chance you e-mail me at my e-mail wich is swpea503@... ... I am so sorry for your loss and in awe at the same time...
Hi sissy: I don't know what to tell you in a moment like this, sometimes words are not good enought but I will like you to know that im hurting with you, even...
Sissy, Our prayers are with you. I have a 14 year old son with DMD also. Thank you for alerting us to the heart issues. God is with you always. Do you have...
Sissy am so sorry to hear about your son. You and your family are in our prayers. Sue mom of Jon age 20 DMD, vent, trach, g-button....
SKumbera@...
May 31, 2005 1:20 pm
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Dear Sissy, I am sorry for your loss. Marie ________________________________ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of Evadne...
Sissy, I do remember you. I am sorry that nothing could be done for Terry. Losing a child is a terrible thing and I wish you the best. Know that you can still ...
ILuvMere@...
May 31, 2005 11:48 am
16569
Hi Sissy, I am so very sorry for your loss, your post was very moving but also scary, as my son has just started getting attention for his heart at 9, Please...
Sissy, I'm so sorry to hear of the loss of your son Terry. Despite what you say, he was too young. Any child that goes before his parents was too young. But...
... I am so sorry for your loss and in awe at the same time that you had time to spend with Terry and will always remember that and how special it was. You are...
tyson@...
May 31, 2005 7:05 am
16566
Hi Sissy, I am so sorry for your loss. I don't even know what to say. Though some may live longer than 14, sadly, not all do. :( I know of another mother of...
Hi, my name is Sissy, mother of Terry age 14 from Texas. My Terry had DMD and the problems that come with it. I know we are all different. Some of you may...
Hi everyone,, I just wanted to share a couple of poems I came across, some or all of you may have heard them already,, but I thought that they were worth...
Thanks Dana: Your responce was quiet impressive, and making choices some times is hard, but like you said casting is better then surgery,I respect ur...
Hi Jackie,, Tanner is 9 and he see's and orthopaedic surgeon,, a couple of times a year, when we saw him in January, we agree'd that Tanner was walking on his...
Hy Dana: My name is jackie and i am the mother of a 6 year old who has DMD. and my question to you is how do we mom know about when is time, for casting and...
My e-mail address is changing from kathywilburn1@... to kathywilburn2@... I would like to keep my subscription to these mailing lists. Thank...
Kathywilburn1@...
May 29, 2005 3:46 am
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Hi Joanne, Actually after I wrote that post, we went to get the next set put on and he had actually gained more then expected range, she was really pleased,...
Joanne, Dr. Shufflebarger is an incredibly rare and talented person who found his perfect niche. I don't hand out "glowing reports" often or easily - lol!...
Wow, that is the most glowing report I've ever heard of a doctor! That's great you can trust his opinion and that he offered you an alternative before surgery...
Dana, I have a friend whose son did the serial castings. I will ask her to write you about it. She was happy with the improved range of motion in her young...
Dear Vikki: I think we are arguing symantics more than science. Do you have any definitive data (not assumption) to support your opinions? If so, please point...
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