Hi, My son is still interested in hippotherapy, so I'm considering a class. I finally found a program that seems most qualified for neuromuscular issues....
Tony, Welcome. Your grandson is lucky to have you in his life. Limits on TV are a good thing for many, many reasons, one of just is low activity. We ...
ok now for another related question. I feel I have the basis covered leaving my son for emergencies (cell phone etc), but what about basic needs, non...
Hi Tony, I have heard that aquatic exercises are the best. They work out heart and lungs and there is no gravity in a pool. Lynda ... involved. ... nothing ...
Joanne, I agree, speaking from the perspective of a person born with a neuromuscular disorder I can relate to the whole TV thing. I think it is really...
Donna. There are places to rent a hoyer lift from. They will deliver it right onto the boat for you. But also check with your insurance co. Because you need...
PS to my last message. To purchase a hoyer that comes apart, is price at about $2,500. You could try looking into a hydraulic lift used for pulling engines...
Yes, Jason also lost the ability to walk after summer vacation. This just goes to what I have been saying, Use it, or lose it. I took him to Boy scout camp....
Well, I hate to say it, but even though he doesn't like the chest strap, he'll need to wear it when no one is at home. Ask him, did he like staying in that...
Ladies, please don't get me wrong, your concerns about leaving your boys are well founded, but I can pretty much guarantee they love being left alone sometime....
My son is 17, and I would be afraid to leave him alone. I worry about if there were a fire, could he get out fast enough without any help? And he has also...
Seth & DeeDee Fuller
sethfuller@...
May 1, 2005 5:05 pm
16219
Doug thanks for your prespective. you know, if you really look at it, we take chances every time we do anything, from driving down the freeway etc. So I will...
I can second that. Warm water is a great medium. My son hasn't walked for two years on land, but he can still stand in the pool. It's the one place he can...
Hey George, Are you going to be making a USA trip this summer? Adele _____ From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On Behalf Of George...
My son is 20 and as long as he has been toileted and fed and had his morning coffee and pills I can leave him for a couple of hours. I always leave the phone...
I was always told to much excercise can damage the muscles. Has anyone ever been told that? ERic's doctors and pt told me that... Holly knuckles 145...
Yes, I have. It's when ever anybody does strenuous exercise that you damage muscles. Some doctors believe that kids with DMD should do nothing in order to ...
IMMEDIATE ACTION NEEDED ON MEDICAID REFORM MONDAY Please flood their offices with phone calls and emails on Monday -- this is critical!! We have a chance to...
The sleep study is no big deal.....they just monitor him. My son has sleep apnea, he does take a pill for his heart but the heart doctors say his heart is in...
I am going on royal carribean cruise line. We are driving to LA then the ship docks at San Diego, Catalina Islands and Ensenada Mexico. I can't wait I have...
Do you know the name of the place you saw that lift for $100? I may be able to figure something out. Donna ... price at ... pulling ... can lift ... sling ... ...
The San Diego MDA office number is 858-492-9792. They might be able to hook you up with a local rental company or have an extra one in their loaner closet ...
My impression is that consensus today is: a certain amount of excercise is good for boys with DMD, too much isn't, and that the boys have a good feeling for...
The accessibility of the ship will depend on the ship. The newer the ship, the more accessible it might be. Most of the decks were accessible. The pool would...
check this place out. http://www.alabamatooloutlet.com/_wsn/page5.html Just check with any automotive supply place. Adele ... From: MD-List@yahoogroups.com...
I used to leave my son home alone. I was always rushing to get back, though. One day I went to the doctor and then I went to rent a DVD and to get us lunch....
JoyceGlass@...
May 2, 2005 12:49 pm
16236
Oh my goodness Joyce, that is so scary! Poor guy! I agree with you about the safety issue. I just never felt comfortable enough to leave my son. I have left...
Seth & DeeDee Fuller
sethfuller@...
May 2, 2005 1:31 pm
16237
Holly, I have heard that for kids with DMD. Years ago when I was growing up the exact opposite was being said. I am of the opinion that exercise is good if...
